Parents: Resources, organizations, and projects

Parent led activities A year after his loss Adam Sanford wrote and illustrated a children’s book named after his son. It is about loss, grief, and support. It is very colorful and whimsical, and was published this year. Here is a link to information about the book. Dying with dignity and love: Read this beautiful […]

Advocacy

Organizations UNICEF has released new data on stillbirth. In 14 countries – including three low- and lower-middle income countries (Cambodia, India, Mongolia) – the stillbirth rate decreased by more than half between 2000 and 2019. More insights into the situation with stillbirths around the world can be found here. UNICEF has also developed a Joint […]

Prevention

Organizations working to prevent stillbirth Tommy’s and NHS England on ‘Feeling your baby move’ Resources from Tommy’s stillbirth research centre in St Mary’s Hospital in Manchester https://www.tommys.org/pregnancy-information/health-professionals Flutter Care is on a mission to spread the word about the importance of fetal movement counting and positive pregnancies. You can see the posters and other materials  Home | Flutter […]

Your Stories

The loss of a baby is a devastating reality that can happen to families in all countries. Experiencing the death of a baby can be both shocking and overwhelming. The intensity of grief will not last forever and lessen with time. You have entered a community of grieving parents who have learned to create a […]

Safer Baby Resources

ISA’s Western Pacific Regional Office, the Stillbirth Centre for Research Excellence (Stillbirth CRE) launches culturally-sensitive resources to address unacceptably high stillbirth rates. These resources are an extension of the Safer Baby Bundle and aim to help prevent stillbirth in First Nations, migrant and refugee populations in Australia and elsewhere. Stakeholder Implementation Kit Baby Bundle Resources […]

Support Organizations Registry

The Parent Voices Initiative (PVI) Global Registry of Stillbirth Support Organizations & Individuals is a registry of organizations around the world that provide any type of support to those affected by stillbirth. The Registry also includes “point persons”, individuals who are based in countries with few (or no) support organizations, who offer support to those […]

SAWG Blog Series

“Is it a boy or a girl?” I ran into a neighbor as I entered the elevator, and she unintentionally triggered a breakdown I tried my best to avoid. “Congratulations! Is it a boy or a girl?” she cheerfully asked, not realizing that I had had a stillborn baby. I was torn and conflicted by […]

Presentation of Dr. Karen Joash

Please watch a fascinating presentation by Dr Karen Joash from Imperial college Healthcare NHS Trust prepared for ISA’s 2023 Conference held in Sheffield.

JOIN THE ISA WORKING GROUP

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The ISA Annual Conference 2023 Opening Remark

The ISA Annual Conference in Sheffield, UK, was opened by ISA’s Chair, Dr. Paula Quigley, and Professor Marta Cohen on June 30th. ISA is celebrating 20 years in 2023 and Antoinette Ayers, one of ISA’s co-founders, was sending a message at the conference. Do listen to her speak here. https://www.youtube.com/watch?v=NmIvB_BPg3E