ISA has members from across the world. Currently we have 39 countries represented in our member base. More than half of our members are individuals: health professionals, bereaved parents or other family members, students and supporters.
You may recognize our members also by our ISA Membership Badge. However, please note that display of the ISA membership badge does not equate to ISA’s endorsement of individuals, organizations or companies or their viewpoints, research, products or projects or other activities.
Please read our Membership Requirements Policy ISA Membership Requirements Policy – 10-27-2021
Details of ISA member organizations by region can be found below.
Join us or for further information please email [email protected].
Africa
Ghana
Promise Initiative Ghana
House Number 8 Riders Street, North Kwesimintsim Ridge, Takoradi
Contact: Dr. Linda A. Vanotoo, Founder / CEO
Phone: +233 243 714 095 / +233 592 420 625
Email: [email protected]
Phone: +233 243 714 095 / +233 592 420 625
Email: [email protected]
Kenya
The Tears Foundation
Contact: Joyce Wanderi-Wachira, Kenya Chapter Leader
Phone: +254 723 661 937
Email: [email protected]
Website: https://thetearsfoundation.org/kenya
Phone: +254 723 661 937
Email: [email protected]
Website: https://thetearsfoundation.org/kenya
Uganda
Vessel is Me Project
Plot 4, Natasha Road, Mutungo, Kampala
Contact: Denise Kekimuri, Founder & CEO
Phone: +256 787 837734
Email: [email protected]
Website: https://www.vesselisme.org
Phone: +256 787 837734
Email: [email protected]
Website: https://www.vesselisme.org
Asia
India
Fernandez Foundation
4-1-1230, Bogulkunta, near Abids, Hyderabad-500001, Telangana
Contact: Dr. Nuzhat Aziz, Consultant Obstetrician
Phone: +91 40 40632300 (hospital); 91 9885026391 (Dr. Nuzhat Aziz)
Email: [email protected]
Website: http://www.fernandezhospital.com
Phone: +91 40 40632300 (hospital); 91 9885026391 (Dr. Nuzhat Aziz)
Email: [email protected]
Website: http://www.fernandezhospital.com
Stillbirth Society of India
B-2249, Indranagar, Lucknow-226016, Uttar Pradesh
Contact: Dr. Asna Ashraf, Joint Secretary
Phone: +91 6394350750
Email: [email protected]
Website: http://www.stillbirthindia.org/
Phone: +91 6394350750
Email: [email protected]
Website: http://www.stillbirthindia.org/
Japan
SIDS Family Association Japan
1-24-11 Hon Machi, Forest House Hatsudai A203, Shibuya-ku, Tokyo 151-0071
Australia & Pacific
Australia
Bears of Hope Pregnancy & Infant Loss Support
45/5 Gladstone Rd Castle Hill NSW Australia 2154
Contact: Amanda Bowles, CEO & Co-Founder
Phone: +61 439 643 203
Email: [email protected]
Website: http://www.bearsofhope.org.au
Phone: +61 439 643 203
Email: [email protected]
Website: http://www.bearsofhope.org.au
Possum Portraits Inc
Victoria
Contact: Larissa Reinboth, Founder/CEO
Email: [email protected]
Website: http://www.possumportraits.org
Email: [email protected]
Website: http://www.possumportraits.org
Red Nose Australia
Suite 17, 75 Lorimer St, Docklands, Victoria 3008
Contact: Keren Ludski, Co-CEO
Phone: +61 3 9034 1273
Email: [email protected]
Website: http://www.rednose.org.au
Phone: +61 3 9034 1273
Email: [email protected]
Website: http://www.rednose.org.au
Robinson Research Institute
55 King William Road, North Adelaide, South Australia 5006
Contact: Sarah Eley, Research Engagement Manager
Phone: +61 8 8313 1341
Email: [email protected]
Website: https://www.adelaide.edu.au/robinson-research-institute/
Phone: +61 8 8313 1341
Email: [email protected]
Website: https://www.adelaide.edu.au/robinson-research-institute/
Stillbirth Centre of Research Excellence
Level 3, Aubigny Place, Mater Research Institute, South Brisbane, Queensland
Contact: Vicki Flenady, Director
Phone: +61 73163 1592
Email: [email protected]
Website: https://www.stillbirthcre.org.au/
Phone: +61 73163 1592
Email: [email protected]
Website: https://www.stillbirthcre.org.au/
Stillbirth Foundation Australia
105/283 Alfred Street North, North Sydney, NSW 2060
Contact: Leigh Brezler, CEO
Phone: +61 02 9557 9070
Email: [email protected]
Website: https://stillbirthfoundation.org.au/
Phone: +61 02 9557 9070
Email: [email protected]
Website: https://stillbirthfoundation.org.au/
The Royal Australian and New Zealand College of Obstetricians and Gynaecologists (RANZCOG)
254 Albert Street, East Melbourne, Victoria, 3002
Contact: Dr Vijay Roach, President
Phone: +61 3 9417 1699
Email: [email protected]
Website: http://www.ranzcog.edu.au
Phone: +61 3 9417 1699
Email: [email protected]
Website: http://www.ranzcog.edu.au
New Zealand
SIDS and Kids New Zealand Incorporated
104 Cornwall Road, Waiuku
Contact: Margret Free
Phone: 0800 164 455 - 24 hour Helpline
Email: [email protected]
Website: http://www.sidsandkids.org.nz
Phone: 0800 164 455 - 24 hour Helpline
Email: [email protected]
Website: http://www.sidsandkids.org.nz
Europe
Georgia
Women's Rehabilitation Association
33 Chavchavadze Avenue, Tbilisi
Contact: Natia Sharabidze, Co-founder and board member
Phone: +995 599624300, +995 599621111
Email: [email protected], [email protected]
Website: http://wra.org.ge
Phone: +995 599624300, +995 599621111
Email: [email protected], [email protected]
Website: http://wra.org.ge
Ireland
A Little Lifetime Foundation
Unit 18 Orion Business Campus, Rosemount Business Park, Ballycoolin, Dublin 15, D15HD91
Contact: Linda Corcoran, Secretary
Phone: +353 18829030
Email: [email protected]
Website: https://alittlelifetime.ie/
Phone: +353 18829030
Email: [email protected]
Website: https://alittlelifetime.ie/
Italy
Ciao Lapo Onlus
Via degli Abatoni 11/11, Prato 59100
Contact: Claudia Ravaldi, President
Phone: +39 3470465494
Email: [email protected], [email protected]
Website: http://www.ciaolapo.it
Phone: +39 3470465494
Email: [email protected], [email protected]
Website: http://www.ciaolapo.it
Netherlands
Stille Levens | Kenniscentrum Babysterfte
Postbus 4012, 3006 AA Rotterdam
Norway
Laerdal Global Health
Stavanger
Contact: Anna af Ugglas, Global Programme & Implementation Manager
Phone: +47 48213554
Email: [email protected]
Website: https://laerdalglobalhealth.com/
Phone: +47 48213554
Email: [email protected]
Website: https://laerdalglobalhealth.com/
Norwegian SIDS and Stillbirth Society
Ole Fladagersgate 1a, 0353 Oslo
Contact: Trond Mathiesen, Secretary general
Phone: +47 22545200 FREE
Email: [email protected], [email protected]
Website: http://www.lub.no
Phone: +47 22545200 FREE
Email: [email protected], [email protected]
Website: http://www.lub.no
Russia
Charitable foundation “Light in hands”
Moscow, st. Petrozavodskaya 18, cor. 1
Contact: Alexandra Kraus, Director
Phone: 8-800-511-04-80 Free in Russia
Email: [email protected]
Website: http://www.lightinhands.ru
Phone: 8-800-511-04-80 Free in Russia
Email: [email protected]
Website: http://www.lightinhands.ru
Spain
Umamanita, stillbirth and neonatal death charity
Calle Major 3, Ultramort, 17133 Girona
Contact: Jillian Cassidy, Cofounder and chair
Phone: +34 637409739
Email: [email protected]
Website: https://www.umamanita.es/
Phone: +34 637409739
Email: [email protected]
Website: https://www.umamanita.es/
Sweden
Swedish Infant Death Foundation (Spadbarnsfonden)
Stigbergsliden 18, 41463 Gothenburg
Contact: Anneli Wikström, Managing Director
Phone: +46 31 3875757
Email: [email protected]
Website: https://www.spadbarnsfonden.se/english
Phone: +46 31 3875757
Email: [email protected]
Website: https://www.spadbarnsfonden.se/english
United Kingdom
Aching Arms
33 Victoria Rd, Brentwood, Essex, CM14 5DR
Contact: Lindsay Oliver, Bereavement Care Manager
Phone: +44 7787 599257
Email: [email protected]
Website: https://www.achingarms.co.uk/
Phone: +44 7787 599257
Email: [email protected]
Website: https://www.achingarms.co.uk/
Centre for Childbirth, Women’s and Newborn Health. CWNH
Liverpool School of Tropical Medicine, Pembroke St, Liverpool, L3 5QA
Contact: Jonathan Wood, Research Administrator
Email: [email protected]
Website: https://www.lstmed.ac.uk/research/departments/international-public-health/stillbirth-prevention-in-sub-saharan-africa-0
Email: [email protected]
Website: https://www.lstmed.ac.uk/research/departments/international-public-health/stillbirth-prevention-in-sub-saharan-africa-0
ICP Support
Sutton Coldfield
Contact: Jenny Chambers, CEO
Phone: +44 121 323 4316
Email: [email protected]
Website: http://www.icpsupport.org
Phone: +44 121 323 4316
Email: [email protected]
Website: http://www.icpsupport.org
MAMA Academy
Addlestone, Surrey
Contact: Heidi Eldridge, CEO
Phone: +44 7427 851670
Email: [email protected]
Website: http://www.mamaacademy.org.uk
Phone: +44 7427 851670
Email: [email protected]
Website: http://www.mamaacademy.org.uk
Perinatal Bereavement Team, Sheffield
Jessop Wing, Tree Root Walk, Sheffield S10 2SF
Petals
1 Tunbridge Court, Tunbridge Lane, Bottisham, Cambs CB25
Contact: Karen Burgess, CEO and Founder
Phone: +44 1223 813989
Email: [email protected]
Website: http://www.petalscharity.org
Phone: +44 1223 813989
Email: [email protected]
Website: http://www.petalscharity.org
Sands (Stillbirth and Neonatal Death Society)
Victoria Charity Centre, 11 Belgrave Road, London, SW1V 1RB
Contact: Marc Harder, National Bereavement Care Pathway Project Lead
Phone: +44 20 74367940, +44 20 7436 7940 FREE
Email: [email protected], [email protected]
Website: http://www.sands.org.uk
Phone: +44 20 74367940, +44 20 7436 7940 FREE
Email: [email protected], [email protected]
Website: http://www.sands.org.uk
Tommy’s
Nicholas House, 3 Laurence Pountney Hill, London, EC4R 0BB
Contact: Jane Brewin, CEO
Phone: +44 207 398 3400
Email: [email protected]
Website: http://www.tommys.org
Phone: +44 207 398 3400
Email: [email protected]
Website: http://www.tommys.org
North America
Canada
Pregnancy and Infant Loss (PAIL) Network Sunnybrook Health Sciences Centre
2075 Bayview Avenue, Toronto, ON M4N 3M5
Contact: Michelle La Fontaine, Program Manager
Phone: +1 888 303 7245
Email: [email protected]
Website: https://pailnetwork.sunnybrook.ca/
Phone: +1 888 303 7245
Email: [email protected]
Website: https://pailnetwork.sunnybrook.ca/
United States
1st Breath
2981 Pullen Dr., Leland NC 28451
Contact: Pat Flynn, CEO
Phone: +1 816 830 9572
Email: [email protected]
Website: http://www.1stBreath.org
Phone: +1 816 830 9572
Email: [email protected]
Website: http://www.1stBreath.org
Aaliyah in Action
1742 Galen St. SE Washington, DC 20020
Contact: Elizabeth O'Donnell, Founder/CEO
Phone: +1 (908) 227-2290
Email: [email protected]
Website: https://www.aaliyahinaction.org
Phone: +1 (908) 227-2290
Email: [email protected]
Website: https://www.aaliyahinaction.org
Global Alliance to Prevent Prematurity and Stillbirth (GAPPS)
19009 33rd Ave W, STE 200, Lynnwood, WA 98036
Contact: Courtney Gravett, Program Director
Phone: +1 206 413 6823
Email: [email protected]
Website: http://www.gapps.org
Phone: +1 206 413 6823
Email: [email protected]
Website: http://www.gapps.org
Group B Strep International
11 El Dorado Court, Pomona, CA 91766
Contact: Marti Perhach, CEO/Cofounder
Phone: +1 909 620 7214
Email: [email protected]
Website: http://www.groupbstrepinternational.org
Phone: +1 909 620 7214
Email: [email protected]
Website: http://www.groupbstrepinternational.org
Healthy Birth Day, Inc. / Count the Kicks
501 SW 7th Street, Suite G, Des Moines, Iowa 50309
Contact: Emily Price, Executive Director
Phone: +1 515 523 5666
Email: [email protected]
Website: http://www.countthekicks.org
Phone: +1 515 523 5666
Email: [email protected]
Website: http://www.countthekicks.org
ICP Care
500 NW 2nd Ave #12896, Miami, FL, United States, Florida
Contact: Donna Benavides, Founder/CEO
Phone: +1 (320) 566-9427
Email: [email protected]
Website: https://icpcare.org/
Phone: +1 (320) 566-9427
Email: [email protected]
Website: https://icpcare.org/
ISPID (International Society for the Study and Prevention of Perinatal and Infant Death)
PO Box 459, Earlysville, VA 22936
Contact: Richard D. Goldstein, MD & Treasurer
Phone: +1 857 218 5598
Email: [email protected]
Website: http://www.ispid.org
Phone: +1 857 218 5598
Email: [email protected]
Website: http://www.ispid.org
M.E.N.D. (Mommies Enduring Neonatal Death)
1019 Cartha Valley Ct, Irving, TX 75063
Contact: Rebekah Mitchell, Founder / President
Phone: +1 972 506 9000
Email: [email protected]
Website: https://www.mend.org
Phone: +1 972 506 9000
Email: [email protected]
Website: https://www.mend.org
Matties Memory Inc
2481 W Auer Ave Milwaukee WI 53206
Contact: Hazel Jones, Owner/founder
Phone: +1 414 676 5466
Email: [email protected]
Website: http://www.mattiesmemory.org/
Phone: +1 414 676 5466
Email: [email protected]
Website: http://www.mattiesmemory.org/
Neo-Fight, Inc.
P.O. Box 17715, Indianapolis, IN 46217-0715, U.S.
Phone: (317) 446-3013, (317) 446-3013 FREE
Owlet
2500 Executive Pkwy, Lehi, UT 84043
Contact: Jim Fidacaro, Owlet healthcare division General Manager
Phone: +1 208 670 4754
Email: [email protected]
Website: https://owletcare.com/
Phone: +1 208 670 4754
Email: [email protected]
Website: https://owletcare.com/
PUSH for Empowered Pregnancy
34 Quicks Ln, Katonah, NY 10536
Contact: Samantha Banerjee, Executive Director
Phone: +1 332 244 PUSH(7874)
Email: [email protected]
Website: http://www.pushpregnancy.org
Phone: +1 332 244 PUSH(7874)
Email: [email protected]
Website: http://www.pushpregnancy.org
Project Alive & Kicking
P.O. Box 63202 North Charleston, South Carolina 29419-3202
Contact: Connie Hosker, Founder
Phone: +1 678 858 4719
Email: [email protected]
Website: http://www.projectaliveandkicking.org
Phone: +1 678 858 4719
Email: [email protected]
Website: http://www.projectaliveandkicking.org
Share Parents of Utah
Draper, UT 84020
Contact: Jaymie Maines
Phone: +1 801 272 5355
Email: [email protected]
Website: https://www.sputah.org
Phone: +1 801 272 5355
Email: [email protected]
Website: https://www.sputah.org
Star Legacy Foundation
6438 City West Parkway, Suite 100, Eden Prairie, MN 55347
Contact: Shauna Libsack, Director of Operations
Phone: +1 952 715 7731
Email: [email protected]
Website: http://www.starlegacyfoundation.org
Phone: +1 952 715 7731
Email: [email protected]
Website: http://www.starlegacyfoundation.org
The 2 Degrees Foundation
12 Euclid Avenue, Maplewood, NJ 07040
Contact: Debbie Haine Vijayvergiya, Co-Founder and President
Phone: +1 646 584 8400
Email: [email protected], [email protected]
Website: http://www.the2degrees.org
Phone: +1 646 584 8400
Email: [email protected], [email protected]
Website: http://www.the2degrees.org
University of Utah - The Obstetrics and Gynecology Research Network (OGRN)
50 North Medical Drive, School of Medicine, Salt Lake City, UT 84132
Contact: Sarah Lopez, Stillbirth Clinical Research Coordinator
Phone: +1 801 587 0975
Email: [email protected]
Website: https://medicine.utah.edu/obgyn/research/stillbirth/
Phone: +1 801 587 0975
Email: [email protected]
Website: https://medicine.utah.edu/obgyn/research/stillbirth/
South & Central America & Caribbean
Argentina
Fundación Era en Abril
Avellaneda, Buenos Aires
Contact: Jessica Ruidiaz, Founding President
Phone: +54 91161726609
Email: [email protected]
Website: http://www.eraenabril.org
Phone: +54 91161726609
Email: [email protected]
Website: http://www.eraenabril.org
Colombia
JIC Fundación de Apoyo Ante la Muerte Gestacional y Neonatal (JIC Foundation)
Calle 103b#51-41 Bogotá
Contact: Angela María Muñoz Carrillo, Directora Ejecutiva (Executive Director)
Phone: +57 3214707244
Email: [email protected]
Website: https://www.jicfundacion.com/
Phone: +57 3214707244
Email: [email protected]
Website: https://www.jicfundacion.com/
Mexico
Instituto Nacional de Perinatologia
Montes Urales 800 Lomas de Chapultepec CP11000 Mexico City
Contact: Monica Aguinaga Rios, Head of Medical Genetics & Coordinator of fetal death program
Phone: +52 55-55209900 (ext. 367)
Email: [email protected]
Website: http://www.inper.mx
Phone: +52 55-55209900 (ext. 367)
Email: [email protected]
Website: http://www.inper.mx
Paraguay
Semillas del Corazón
Avenida Cerro león #997 casi Estados Unidos - Barrio Obrero - Asunción
Contact: Patricia Coronel, Coordinadora General
Phone: +595 981261717
Email: [email protected], [email protected]
Phone: +595 981261717
Email: [email protected], [email protected]
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