We, at ISA, understand that sharing personal experience is a powerful way to increase attention and advocate for action towards stillbirth prevention and improving care of the bereaved families.
To this effect, the Stillbirth Advocacy Working Group of the ISA has developed a Stillbirth Spokespersons Registry. The registry contains names of volunteers from different countries who have agreed to share their experiences of stillbirth – as a mother, father, sibling, family. We call upon our volunteers from time to time to share their stories in reports, policy briefs, meetings, and media to advance the mission of stillbirth prevention together. Raising voice together can and will make the difference!
A health care professional or a researcher can also be a volunteer to be spokesperson for stillbirth.
When you sign up as a volunteer, your details are not made available publicly. For all requests to share your story or experience, we always first ask you for your interest. You can accept or decline in every case. If you are willing to be contacted, we then put you in contact with the requester. It is entirely up to you to decide what kind of information and experience you would like to share about yourself and your baby.
We are expanding our volunteer community to include volunteers for new-born death. Please contact us at [email protected] for more information.