Aims related to stillbirth: 1st Breath is committed to providing education, advocacy, and public awareness of stillbirth in addition to assisting families and professionals dealing with the death of a baby.
Other aims: Honoring those born who never took a breath. Serving so all born may have a first breath. 1st Breath is committed to providing education, advocacy, and public awareness of stillbirth in addition to assisting families and professionals dealing with the death of a baby.
Support offered: Resources & activities include information signposting, peer support forums, information on patient rights, information for friends and family, sibling grief resources, resources for fathers, a hotline, a memorial garden and memorial events, hospital compassion care kits for bereaved parents, bereaved parent surveys/research, cuddle cot and accessories, and advocacy. We provide information/advice on stillbirths to bereaved parents, healthcare professionals, & employers; informal post-stillbirth counselling for parents and families; and space for bereaved parents and families to meet and support each other.
Groups targeted: Bereaved mothers, fathers, and other family members; healthcare professionals; employers; and anyone else who needs support. We also target elderly individuals whose loss was not acknowledged at the time of stillbirth.
Language: English
Geographies reached: USA
Location 1: United States 2981 Pullen Drive Leland North Carolina 28451
Aims related to stillbirth: 3Hopeful Hearts provides grief-informed support to empower and equip those impacted by the death of a baby or child of any age, while increasing grief literacy in our larger community.
3Hopeful Hearts services for those who have lost children of any age as well as grief training for schools, businesses, and first responders in Northern Colorado.
Other aims: 3Hopeful Hearts supports mothers, fathers, siblings, and grandparents to navigate the loss of a baby with whatever services best fit their needs.
Support offered: -Support groups for miscarriage and perinatal loss
-Peer to Peer Grief Listening Sessions
-Bear2Hope
-Annual honoring events including Walk to Remember, PAIL Day, and Candlelight Tribute
Groups targeted: 3Hopeful Hearts supports mothers, fathers, siblings, and grandparents to navigate the loss of a baby with whatever services best fit their needs.
Language: English, Spanish, and 3Hopeful Hearts is fortunate to be able to work with UCHealth Translators to be able to help families in 350 languages
Geographies reached: Northern Colorado
Fort Collins, Loveland, Greeley
Weld County, Larimer County
Location 1: United States 712 Whalers Way A201 Fort Collins Colorado 80525
Aims related to stillbirth: A Jamaica that embraces and supports grieving parents and puts measures in place to safeguard the lives of babies, to ensure no family experiences this trauma.
Other aims: Provide emotional support for families who have experienced stillbirth in Jamaica and let them know they\'re not alone
A Jamaica that embraces and supports grieving parents and puts measures in place to safeguard the lives of babies, to ensure no family experiences this trauma.
Support offered: Private support group where you\'re free to speak about your experience, seek help, get support from those who have gone through a similar experience
Support group meetings with a psychologist
Aims related to stillbirth: 4Louis is a UK charity that works across the country to support anyone affected by miscarriage, stillbirth and the death of a baby or child. We also work to improve the care bereaved families receive from health care and other professionals.
4Louis was founded by Louis’ family in 2009 who found that there was very little access to support and memory making following his stillbirth at 38 weeks gestation. Parents and families who have experienced a miscarriage, stillbirth, baby or child death are still at the core of everything we do.
Thanks to the hard work of our supporters we are able to ensure our services are available to a wide range of hospital trusts, hospices and any professional who may deal with miscarriages, baby or child deaths.
Other aims:
Support offered: We supply cuddle cots to give parents that extra time with their little ones. We also supply memory boxes to create precious memories of their little ones.
Groups targeted:
Language: English
Geographies reached:
Location 1: United Kingdom Unit 3b Sunderland SR4 6SN
Aims related to stillbirth: We aim to support all parents whose baby has died or is going to die in or around the time of birth.
Other aims: We aim to offer emotional support, counselling, and resources to individuals and families who have experienced the loss of a baby.
We aim to raise awareness about baby loss to reduce stigma, increase understanding, and promote empathy within society.
We aim to provide opportunities for families to remember and honour their lost babies through memorial events
We aim to create a supportive community where parents who have experienced baby loss can connect with others who understand their experiences, share their stories, and find solidarity and comfort in knowing they are not alone.
Support offered: We offer
One to one counselling/couples counselling
Newly bereaved groups
General support groups
Pregnancy after loss
Compassionate journey support
Dads only support
Concerns with care support
Rainbow groups
Creative workshops
Remembrance services
Groups targeted: One to one counselling/couples counselling
Newly bereaved groups
General support groups
Pregnancy after loss
Compassionate journey support
Dads only support
Concerns with care support
Rainbow groups
Twin loss
Receiving a diagnosis during pregnancy
Language: English
Geographies reached:
Location 1: Ireland (Republic) Unit 18 Orion Business Campus Rosemount Business park , Ballycoolin, Dublin 15 Dublin 15 Ireland D15HD91
Location 2: Ireland (Republic) Unit 18 Orion Business Campus Rosemount Business park Ballycoolin Dublin 15 D15HD91
Aims related to stillbirth: A Memory Grows provides retreats and special events for parents who are grieving the death of their child.
Other aims: We offer specific retreats and events for infant loss, but also offer other retreats and events for parents whose children have died at any age from all causes.
Support offered: Weekend Retreats
One Day Retreats
Art Experientials
Workshops
Wave of Light Ceremony on October 15
Groups targeted: Our Retreats are focused solely on parents. Parents can attend individually or as a couple.
Our Special Events are open to the entire family, extended family, grandparents, and friends.
Aims related to stillbirth: Supporting parents with bereavement resources.
Other aims: Aaliyah in Action provides women, birthing people and families with tangible bereavement support, in the form of self-care packages and support books, after experiencing a perinatal, neonatal or infant loss.
Aaliyah in Action partners with hospitals who have inventory of our thoughtfully curated Aaliyah in Action Self-Care Packages and accompanying support books and we ship packages nationwide to families who self-request.
Support offered: Self-care packages and support books after loss.
Groups targeted: Mothers primarily
Support books for fathers, Spanish speaking and children\\'s book for living siblings available
Language: English
Geographies reached: United States
Location 1: United States 1742 Galen St. SE Washington DC 20020
Abdiaziz Mohamed Issack
Email: abdulaziz.mohamedissack@gmail.com
Phone: +254728896024
Social Media: Abdiaziz Mohamed
Permission to share:
Language: English
Location 1: Somalia Baidoa 2017/2/01 Baidoa Bay 252
Aims related to stillbirth: We are a baby loss charity providing support and counselling for bereaved parents and families as well as specialist bereavement training for midwives and healthcare professionals.
Since 2010, we have worked to improve the way bereaved parents are cared for by hospitals and to better educate midwives on how to care for grieving parents. Sadly, stillbirths and neo-natal deaths occur daily, yet many hospitals are not equipped to deal with the parental care required, they have inadequate facilities and their staff receive little to no bereavement training.
By working with medical professionals to understand the issues and seek solutions our charity has helped many families.
Other aims:
Support offered: 1) Improve bereavement training for health care professionals; to improve the bereavement training that health care professionals and care staff receive and to improve the quality of supportive information that families receive if their family suffers a stillbirth.
2) Provide vital equipment; to provide the necessary equipment in each maternity unit to preserve a stillborn baby until at least the day after the mother’s discharge from hospital.
3) Ensure that bereavement suites are located away from the main maternity ward; by making the best use of hospital architecture and layout; fund sensitively designed delivery rooms located away from maternity wards in each on Britain’s maternity units.
Groups targeted:
Language: English
Geographies reached: United Kingdom
Location 1: United Kingdom PO Box 741, Rochester Kent ME1 9PZ
Aims related to stillbirth: Aching Arms is a charity that gives its comfort bears to hospitals and hospices, for midwives and nurses to offer to bereaved parents in their care. Along with the bears, we also offer a support service to parents after their loss, whether it was during pregnancy, at birth or soon after.
Other aims: 1. promote and protect the health of parents, their families and friends when a baby dies in utero, at birth or soon after birth.
2. Advance education about the experience of baby loss particularly, but not exclusively, amongst healthcare professionals.
3. Support and promote research into baby loss and the methods of alleviating suffering arising from baby loss and to disseminate the results of such research.
Support offered: We provide bears from one bereaved family to another
we have Supporting Arms which is an email, text, phone support service where families can talk to another bereaved parent for support
Be Together events - bringing bereaved families together for events.
Men\\'s support group and community events
Groups targeted:
Language: English
Geographies reached: UK
Location 1: United Kingdom 33 victoria road Warley Brentwood CM14 5DR
Aims related to stillbirth: We care for families in our community/area who have had a stillbirth or infant loss. We provide education and support to anyone, even if they did not deliver with our hospital. We provide community events as well to further educate the community on ways to prevent stillbirth and infant loss.
Other aims:
Support offered: Pregnancy and Infant Loss Support Group, the first and third Thursdays of every month from 7-8pm, FREE
Pregnancy After A Loss Support Group, the second and fourth Thursdays of every month from 7-8pm, FREE
Assistance in finding support in person or online as well as counseling. FREE
We offer sit down meeting with family to help navigate through their loss and discuss options that are available to them. FREE service
Help with funeral arrangements when looking for free or discounted services.
Groups targeted:
Language: english, spanish upon request
Geographies reached: Kansas City metro area and surrounding communities.
Location 1: United States 9100 W 74th St Merriam Kansas 66204
Aims related to stillbirth: To provide counselling to individuals affected by the loss of a baby before, during or after birth.
Other aims: Counselling for individuals affected by all pregnancy distress, including miscarriage, infertility, pregnancy decisions and abortion.
Counselling for individuals affected by the loss of children to the care system and counselling for individuals facing the adoption of children.
Support offered: Professional counselling; telephone support; face to face sessions; online video counselling; person-centred support. We provide professional counselling for parents and families, and a space for bereaved parents and families to tell the stories of their stillborn babies.
Groups targeted: Bereaved mothers, fathers, healthcare professionals. Our support is available for all those who are facing a pregnancy loss including through miscarriage, stillbirth, termination and infertility and also to birth parents whose children are adopted or in care.
Language: English
Geographies reached: Dundee, Tayside, Scotland
Location 1: United Kingdom 10 Constitution Road Dundee PH2 7SN
Aims related to stillbirth: Our non profit organization wishes to accompany families who have had pregnancy losses, stillbirths or whose babies have died during their first days after their birth.
Amparos is composed by parents who have gone through any of this experiences. We are there to support grieving families through individual support or group meetings that focus on giving support to those who attend.
Other aims:
Support offered: -we accompany parents who have lost their babies
-we have individual and group meetings to support parents an families
- we create networks
-we promote respectful treatments in hospitals and health centers
- help train health professionals in giving a respectful treatment to parents that have experienced a lose
- we have worked with the government and other institutions on order to promote laws that protect the grieving
Groups targeted: We focus on
- mothers
- fathers
- siblings
- grandparents
- everyone who has been affected by the loss
Language: Spanish, English, Italian
Geographies reached: We work in Chile. Our headquarters are in Santiago, our capital.
Location 1: Chile Hernando de Aguirre 329 apt 52 Santiago Región Metropólitana
Aims related to stillbirth: Angel Casts offers bereaved families a unique gift of being able to preserve their child\\'s likeness in stone. We visit with families at their home, Waikato Hospital, or funeral home, to take molds of their child\\'s hands and feet shortly after they\\'ve passed away. These molds are then cast in high definition resin rock, painted, and framed with precious keepsakes and photos. We offer families two sets of casts – one set framed and one set freestanding to hold and touch. The feedback from parents has told us that these casts have been instrumental in their grieving process, as well as helped with their other children\\'s understanding.
Other aims: Angel Casts offers bereaved families a unique gift of being able to preserve their child\\'s likeness in stone. We visit with families at their home, Waikato Hospital, or funeral home, to take molds of their child\\'s hands and feet shortly after they\\'ve passed away. These molds are then cast in high definition resin rock, painted, and framed with precious keepsakes and photos. We offer families two sets of casts – one set framed and one set freestanding to hold and touch. The feedback from parents has told us that these casts have been instrumental in their grieving process, as well as helped with their other children\\'s understanding.
Support offered: We offer bereaved families hand and feet stone casts which are exact replicas of their child, made from molds taken before they\\'re laid to rest. We also provide hospitals and funeral homes in our area with hand and feet ink prints.
Groups targeted: Our services are available to all parents and extended family.
Language: English
Geographies reached: Waikato & Bay of Plenty, New Zealand
Location 1: New Zealand 28 Carey Street Maeroa Hamilton 3200
Aims related to stillbirth: Angel Eyes is a non-profit organization that offers free professional grief support to families that have been impacted by pregnancy loss or the unexpected death of an infant
Other aims: Grief Counseling for children and adults related to child loss, infant loss, and still birth.
Awareness and advocacy events.
Support offered: Individual pro-bono grief counseling
Groups
Groups targeted: Mothers, siblings, fathers, and others.
Language: English
Geographies reached: Colorado state
Location 1: United States 422 21st Street Denver Colorado 80205
Aims related to stillbirth: We transform donated wedding dresses into baby burial garments using customised patterns. These are gifted to bereaved families who suffer from a stillbirth free of charge. We hope to provide comfort and the gift of time, to make precious memories to last a lifetime.
Other aims: We use excess donated materials to create tutu skirts and dress-ups. These are gifted to children with long term illnesses and special needs to bring a little fun to their day.
Support offered: We create and gift baby burial garments at no charge to hospitals, funeral homes and directly to families. We include Parent Resources Information brochures and a sentimental poem card with keepsake angel pendant in every package. We offer a Special Request service for styles and sizes not in our standard range. We also make Early Loss Pouches to respect very early miscarriages. Our Online Shop offers memorial gifts for bereaved family members to purchase.
Groups targeted: Everyone
Language: English
Geographies reached: Australia only
Location 1: Australia 18 Essex Street Guildford New South Wales
Aims related to stillbirth: We repurpose wedding gowns to Angel Gowns for babies who passed away due to pregnancy losses ranging from miscarriages, stillborn or complications
Other aims: We work with partners to provide Grief Recovery Method (GRM) for bereaved parents to help them cope with grief.
Support offered: We work with partners to provide Grief Recovery Method (GRM) for bereaved parents to help them cope with grief.
Aims related to stillbirth: For families in the United States who have lost their precious baby due to stillbirth, Angel Names assists with financial support, associated with “end of life” expenses. We also offer financial assistance with counseling and support research efforts.
Other aims:
Support offered: Financial assistance
Please visit our website
Groups targeted:
Language: English
Geographies reached: Our organization is structured to supporting those within the United States.
Location 1: United States PO Box 423 Saratoga Springs NY 12866
Aims related to stillbirth: Support families that have experienced the loss of a baby to stillbirth.
Other aims: To inspire hope & healing and offer compassion & understanding to families devastated by the loss of a baby.
Support offered: Information; support groups; resources; connect parents. We provide information/advice on stillbirths to bereaved parents, information on stillbirth parent support for healthcare professionals, informal post-stillbirth counselling for parents and families (e.g. peer support), a space for bereaved parents and families to meet and support each other, space for bereaved parents and families to tell the stories of their stillborn babies.
Aims related to stillbirth: Creating awareness around pregnancy loss.
Providing relevant and up to date information on best practices, resources and rights for parents and health professionals.
Providing support for parents.
Training health professionals
Training in best care practices for health professionals.
Empirical research
Participating in international research programs
Creating guidelines and articles in the local language.
Other aims:
Support offered: Providing information for parents on best care practices; their options for birth.
Information regarding parental rights
We often do an initial support session with parents and then defer them to a local support group (groups are not run by umamanita), this can be done by email or phone
Helping parents request autopsy photos
Helping parents recover their baby\'s body for burial.
Providing support for family members.
Proving support for health professionals who are supporting parents through a loss.
Introducing memory boxes into hospitals
Groups targeted:
Language: Spanish (main language) and English
Geographies reached: Our main area is Spain, however half of our website visits are from South America.
Aims related to stillbirth: Lead the midwifery profession. Engage with midwives Australia-wide. Support midwives to succeed and thrive across their professional lives. Influence the transformation of maternity services to enable more satisfying careers for midwives.
Other aims: To position and profile midwifery as the primary profession for quality maternity care through advocacy, CPD and support
Support offered: Information signposting; information/advice on stillbirth parent support for healthcare professionals
Groups targeted: Healthcare professionals
Language: English
Geographies reached: National (Australia)
Location 1: Australia 89-97 JONES STREET ULTIMO NSW 2007
Baby Loss Family Advisors
Website: www.babylossfamilyadvisors.org
Email: sherokeeilse@yahoo.com
Phone: +19522018667
Aims related to stillbirth: We offer immediate one-on-one support to parents and their families who have just received the news that their baby has died (miscarriage, stillbirth or neonatal death). This includes those whose baby has problems and will/may die.
We help them understand this is a 'love story' not just a 'loss'; story and guide them in making the best decisions possible at the time and over time in order to minimize regrets, maximize memories and love/parent their baby to the fullest.
We work with clinics, sonography centers and other professionals. Our gifts include literature, personal guidance, support through phone, email or in person group gatherings. We also teach and support the care providers and train others to become Loss Advisors and Loss Doulas.
Other aims:
Support offered: Literature, mementos and more
One-on-one support
Guidance, listening and preparation to meet their baby and fully engage as a parent now and as parents always
Grief mentorship for those needing extra one-on-one support over time
Support group opportunities
Groups targeted: Parents, siblings, other family members and their close community.
Language: English
Geographies reached: The US and other countries as appropriate.
Location 1: United States 14108 N Biltmore Drive Oro Valley AZ 85755
Aims related to stillbirth: We aim to relieve the emotional and psychological suffering of parents who have had stillborn, neonatal death, miscarriage, IVF, medical termination.
Other aims:
Support offered: We offer trauma therapy, a free retreat to reflect on parents' loss, 6 counselling sessions; support groups every 3 weeks, live lunch every 6 months. We provide information/advice on stillbirths to bereaved parents, information/advice on stillbirth parent support for employers, professional post-stillbirth counselling for parents and families, informal post-stillbirth counselling for parents and families (e.g. peer support), space for bereaved parents and families to meet and support each other, and space for bereaved parents and families to tell the stories of their stillborn babies.
Groups targeted: Bereaved mothers, fathers, and other bereaved family members, healthcare professionals, employers
Language: English
Geographies reached:
Location 1: United Kingdom
Baby’s Breath Canada
Website: www.babysbreathcanada.ca
Email: info@babysbreathcanada.ca
Phone: +19056888884
Social Media: @babysbreathca Facebook @babysbreathca Twitter @babysbreathcanada Instagram
Aims related to stillbirth: Baby’s Breath Canada is working with Flutter Care and BébéBouge BabyKicks to petition the Canadian Government to implement a National Action Plan to reduce stillbirth in Canada by 30% by 2030.
Other aims:
Support offered: We provide grief counselling and bereavement packages.
Groups targeted:
Language: Engligh
Geographies reached: We are a national organization and support all of Canada.
Aims related to stillbirth: Provide support and information to families who experience stillbirth.
Other aims: This group is for anyone who has had a miscarriage, ectopic pregnancy, stillbirth or newborn death; it is not a therapy group, but a self-help support group. Reservations are not necessary, nor is there a fee. This group is available regardless of provider or hospital where care was received and regardless of how long it has been since the loss occurred. Each meeting begins with introductions, followed by a topic of discussion and then open sharing. Discussion is not limited to the presentation topic; each meeting includes independent sharing based on concerns and interests expressed by the participants in addition to specific topics. Interaction among the group is encouraged, however, no one is required to participate more than what is comfortable. A Perinatal Bereavement Support Person is at each meeting as the facilitator.
Support offered: Online group support; face to face support group when COVID restrictions are lifted. We provide information/advice on stillbirths to bereaved parents, information/advice on stillbirth parent support for healthcare professionals, informal post-stillbirth support for parents and families (e.g. peer support), a space for bereaved parents and families to meet and support each other, and a space for bereaved parents and families to tell the stories of their stillborn babies. Location if support group meets in person when there are not COVID restrictions (Bluegrass Care Navigators): 1733 Harrodsburg Rd. (we are currently meeting via Zoom)
Groups targeted: Bereaved mothers, fathers and other family members, healthcare professionals, and anyone who needs support
Language: English
Geographies reached:
Location 1: United States 1740 Nicholasville Road Lexington Kentucky 40503
Location 2: United States 1733 Harrodsburg Road Lexington Kentucky 40504
Aims related to stillbirth: Provision of peer support
Other aims: Advocacy for stillbirth awareness and prevention
Advocacy for increased support for parents experiencing a stillbirth
Advocacy for more bereavement support
Support offered: Provide a space for bereaved parents and families in British Columbia to meet and support each other
Aims related to stillbirth: Providing leading support and exceptional care for families who experience the loss of their baby.
Other aims: Providing leading support and exceptional care for families who experience the loss of their baby.
Support offered: Bear Of Hope and keepsakes at the time of loss to guide families through saying hello and goodbye.
Providing cuddle cots to hospitals to allow families more time together.
Health professional educational sessions
Counselling for parents
Facilitated support groups and weekend
Donation of cuddle cots to hospitals
Aims related to stillbirth: Plan and execute Pregnancy & Baby loss event including our Pregnancy & baby loss summit every 4 years
Create a strong support group for pregnancy & baby loss couples
To plan outreach events in low income area
Other aims: Provide free fertility treatment to low income earners
Plan fertility walks every year
Plan outreach events for other fertility issues as well as spreading awareness
Support offered: Free consultation and medical investigation for reoccurring pregnancy loss
Support through our social media network
Groups targeted: We focus mainly on mothers
Language: English
Geographies reached: We mainly focus on Nigeria and neighbouring countries such as Ghana
Aims related to stillbirth: We offer support to those who have experienced stillbirth, miscarriage, and infant loss, as well as to those expecting again after a loss. We also promote awareness and support legislation to support loss families and research.
Other aims: Our Mission
Immediate HUGS Support & Ongoing Support for parents who have experienced an early pregnancy loss, stillbirth, or infant death.
Resource Provider for families and the community, and the professionals that support them.
Education & Outreach for nursing students, health care professionals, and community organizations.
Bereaved Parents of Madison, Inc. provides support and resources to grieving families during and after pregnancy loss, termination, stillbirth, infant death, and subsequent pregnancies by offering personal and group support, as well as programs and events for families. We also provide education and awareness to the community through outreach programs and relationships with area hospitals. We strive to nurture healing and renew hope in grieving families.
Support offered: Hospital and home direct peer support
Monthly support group
Private Facebook page connecting bereaved parents to each other
Resources for burial information, funeral information, therapy and more
Programing and events
Remembrance crafts and services
Support around lactation after loss
Books
Groups targeted: Support group for all grieving parents
Individual events for mothers, fathers, and families occur throughout the year
Language: English, Spanish
Geographies reached: Madison, Wisconsin USA and surrounding areas
Aims related to stillbirth: Peer support groups for bereaved parents, adult siblings, and grandparents after the death of a child, any age, including miscarriage, post-natal, and stillbirth.
Other aims: Mission: To help grieving parents and their families to rebuild their lives following the death of a child. Goals: To offer support, understanding, encouragement and hope to bereaved parents, siblings and grandparents. To assist all who have experienced the loss of a child, brother, sister or grandchild regardless of ethnicity, ideology or financial status. To educate families about the grief process in all its complexities pertaining to the death of a child or a sibling at any age and from any cause. To connect fellow bereaved parents, siblings and grandparents who can offer support to each other and to each newly bereaved family. To charter chapters and train and assist chapter leaders across the country. These chapters meet on a regular basis to offer self-help support and comfort to local bereaved families. To publish an online National Newsletter and offer help to individual chapters with newsletters to inform and educate their members about the grieving process. To sponsor an annual Conference that features inspirational speakers, informative workshops, and heartfelt remembrance ceremonies. To inform and educate professionals, employers, co-workers, clergy, friends and others on the intensity and duration of parental, sibling and grandparent grief.
Support offered: We have some workshops or speakers at our Annual conference presented by those who have experienced a stillbirth or early infant loss. Please see the Find a Chapter page on our website for the contact information of chapters in the USA
Groups targeted: Bereaved mothers, fathers, grandparents, and other bereaved family members (siblings over age 18)
Language: English
Geographies reached: We have chapters across the USA. Please check the Find A Chapter page on our website.
Aims related to stillbirth: The "Bundesverband Verwaiste Eltern und trauernde Geschwister in Deutschland e.V.", also referred to below as VEID, sees itself as a supportive partner for parents, siblings and relatives who have to suffer the death of a child. In addition, the federal association wants to exert political influence in the sense of social responsibility for those affected in order to raise public awareness of the concerns and needs of these people. To this end, in close cooperation with the state associations, regional offices, self-help associations and self-help groups, a nationwide self-help offer in the healthcare system for those affected is sought.
The VEID acts on a subsidiary basis and represents the work of its members as an umbrella organization nationally and internationally.
Other aims: Representatives in all federal states of Germany.
The purpose of the VEID is to promote charitable purposes, within the meaning of Section 53, No.1 of the Tax Code.
The VEID is committed to ensuring that
• affected relatives are given the opportunity to mourn a deceased child so that they can live through it,
• Affected relatives overcome mental and physical health side effects of grief or learn to live with it,
• the grief work with those affected is no longer a taboo and is perceived by the public as both health-promoting and economically sensible,
• All those affected have access to grieving services locally and across the board.
Support offered: Mediation of support after the death of a child throughout Germany
assisted bereavement groups
Aims related to stillbirth: The Butterfly Run is a registered non-profit organization that provides integrated support, resources, and community for all people who have experienced unimaginable loss during the journey to parenthood. We hope to empower families to share their stories and we provide this run as a healing space for you in your journey. As alone you might feel right now, we want you to know that we walk beside you.
It is estimated that 1 in 4 women will experience miscarriage or pregnancy loss (also known as perinatal loss) and that 1 in 6 Canadians experience infertility.
The Butterfly Run Canada exists to offer support, compassion and community to honour the babies gone too soon and hold hope for the children to come. Together we raise awareness around infertility, pregnancy loss and infant loss by
Other aims: Mission: Supporting individuals and families who have experienced infertility, pregnancy loss, and infant loss by organizing peer support and a memorial run to create community, raise awareness, and fundraise for supporting programs. Vision: Being a bereaved parent is a path that no one should walk alone.
Support offered: Annual memorial 3K/5K run or walk. We provide information/advice on stillbirths to bereaved parents, information/advice on stillbirth parent support for healthcare professionals, informal post-stillbirth counselling for parents and families (e.g. peer support), a space for bereaved parents and families to meet and support each other, a space for bereaved parents and families to tell the stories of their stillborn babies.
Groups targeted: Bereaved mothers, fathers, and other bereaved family members, healthcare professionals, and anyone who needs support.
Aims related to stillbirth: Child Bereavement UK helps families to rebuild their lives when a child grieves or when a child dies. We support parents and the wider family when a baby or child of any age dies or is dying. We provide training to professionals in health and social care, education, and the voluntary and corporate sectors, equipping them to provide the best possible care to bereaved families.
Other aims: Child Bereavement UK helps families to rebuild their lives when a child grieves or when a child dies. We support children and young people (up to the age of 25) when someone important to them has died or is not expected to live, and parents and the wider family when a baby or child of any age dies or is dying.
Support offered: We provide confidential support, information and guidance to individuals, families and professionals throughout the UK. Our support team is available to respond to calls, Live Chat or email from 9am - 5pm, Monday to Friday (except bank holidays).
Email: helpline@childbereavementuk.org
Telephone: 0800 02 888 40
Live Chat: via our website
We offer free, confidential bereavement support for individuals, couples and families, by telephone, video or instant messenger, wherever you live in the UK. We also offer face-to-face support from a number of locations.
Groups for parents - facilitated groups for bereaved parents and carers to meet in a supportive environment
Groups targeted: Mothers
Fathers
Carers
Siblings
Grandparents
Language: English
Geographies reached: United Kingdom
Location 1: United Kingdom Unit B Knaves Beech Way, Knaves Beech Industrial Estate Loudwater, High Wycombe Buckinghamshire HP10 9QY
Aims related to stillbirth: Offer peer support to stillbirth families
Promote the status of stillbirth families in the society
Promote the well-being of stillbirth families
Spread information on stillbirth as expert and expert by experience
Promote parents\' right to register officially the name of the stillborn child
Promote bereavement leave for stillbirth parents
Other aims: Offer peer support to all families whose child has died
Promote the status of all child death families in the society
Promote the well-being of all families whose child has died
Spread information on child death as expert and expert by experience
Promote bereavement leave for parents whose child has died
Support offered: Peer support groups
On-line support (peer support groups, peer support evenings, Facebook discussion group)
Peer support weekend
Peer supporters (individual phone support)
Support literature
Groups targeted: Parents
Siblings
Grandparents
Language: Finnish, Swedish, English
Geographies reached: Finland
Location 1: Finland Tampellan esplanadi 8 B LH 35 Tampere 33100
Chums Babyloss Bereavement Service
Website: www.chums.uk.com/Babyloss
Email: BLBS@chums.uk.com
Phone: +441525863924
Aims related to stillbirth: Chums offers bereavement support to families who have sadly experienced the death of a baby through stillbirth.
Other aims: Chums offers bereavement support to families who have sadly experienced the death of a baby through late miscarriage, compassionate termination, stillbirth or neonatal death.
Support offered: Chums offers bereavement support and counselling for parents, grandparents and siblings through:
Telephone support
Virtual and face to face support sessions
Home visits
1:1 and couples support
Monthly groups for bereaved parents that offer a chance to meet others with similar experiences : Snowdrop Group - for bereaved parents
Fathers Group - bi monthly for bereaved dads
Sunrise and Sunset Group - for bereaved parents where one of twins or triplets has died
Rainbow Group - for those expecting again or who have had a rainbow baby.
Closed Facebook groups for members
Annual Memory Day
Annual Snowdrop Remembrance Service
Support in future pregnancies
Groups targeted: see above
Language: English
Geographies reached: We support across Luton and Bedfordshire, UK
Location 1: United Kingdom Wrest Park Enterprise Centre, Wrest Park Silsoe Bedfordshire MK45 4HS
Aims related to stillbirth: CiaoLapo main aim is to create a network of parents of stillborn babies in order to fight social isolation and stigma. We also work together with healthcare professionals to promote their specific training in stillbirth prevention and bereavement care. We promote social activities and advocacy initiatives to increase stillbirth awareness in Italy.
Other aims: To support the different stages of bereavement and subsequent pregnancies; sharing stories and experiences and increasing the availability of resources for parents and professionals leading to an important change in cultural framework, allowing parents and professionals to discuss this sensitive topic and to improve their skills.
Support offered: Incontri mensili vis a vis; gruppo di automutuaiuto; seminari / monthly face-to-face meetings; self-help group facilitation; seminars; memory boxes. We provide information/advice on stillbirths to bereaved parents, information/advice on stillbirth parent support for healthcare professionals, professional post-stillbirth counselling for parents and families, informal post-stillbirth counselling for parents and families (e.g. peer support), a space for bereaved parents and families to meet and support each other, a space for bereaved parents and families to tell the stories of their stillborn babies.
Groups targeted: Bereaved mothers and fathers, healthcare professionals
Language: Italian, English
Geographies reached:
Location 1: Italy Via degli Abatoni Prato PO 59100
Aims related to stillbirth: Reduce racial disparities that persist in stillbirth in the U.S.
Other aims: Healthy Birth Day, Inc. is a 501(c)(3) American nonprofit organization founded in 2009 by five women who all lost daughters to stillbirth or infant death. Our mission is to save babies using the evidence-based Count the Kicks stillbirth prevention campaign. Count the Kicks educates expectant parents on the importance of tracking their babies’ movements in the 3rd trimester of pregnancy and to speak up if they notice a change. Count the Kicks helped lower our home state of Iowa\'s stillbirth rate by nearly 32 percent in the first decade of our campaign, and our goal is to realize this reduction in all 50 U.S. states. A 32% reduction in America\'s stillbirth rate would mean saving 6,000 babies each year from preventable stillbirth.
Support offered: Healthy Birth Day, Inc., was founded on the belief that stillbirths and poor birth outcomes can be preventable. By providing stillbirth prevention education and resources, we improve care and empower expectant parents to advocate for themselves and their baby. We will bravely push for systemic change, speak truth to power, and not shy away from difficult conversations, meetings and decisions.
Healthy Birth Day, Inc., believes knowledge is power. When we make the world a safer place for reproductive and maternal health care, everyone wins. The job is urgent and bigger than any one person or organization. Sharing the work, lifting up voices, and being inclusive matters. We will actively recruit and connect with allies to teach and learn prevention strategies.
Groups targeted: Expectant parents
State health departments in the US
Maternal healthcare professionals
Employers
Insurance companies
Language: English
Geographies reached: All of the U.S.
Location 1: United States 1820 NW 118th Street 220 Clive Iowa 50325
Emma's Footprints
Website: www.emmasfootprints.com
Email: emma@emmasfootprints.com
Phone: +18144645989
Social Media: EmmasFootprintss
Aims related to stillbirth: Provide financial resources, emotional support, and compassionate guidance to families that experience a pregnancy loss
Other aims:
Support offered: Financial support paying for burials/cremations
Financial support paying for headstones/urns
Financial support paying for counseling sessions
Monthly support groups in person and virtual
Provide couples retreats
One on one care team moms
Podcast titled "Confessions of a Grieving Mother"
Groups targeted:
Language: English
Geographies reached:
Location 1: United States 412 West 8th Street Erie PA 16502
Aims related to stillbirth: Peer support to parents who've experienced a stillbirth
Grassroots awareness on the impact of stillbirths and need for compassionate care in all community levels
Participation in stillbirth reduction campaigns/strategies
Other aims: We aim to raise awareness on the impact of perinatal losses (miscarriage, stillbirth, infant loss) to families and advocate for the need of effective and compassionate bereavement support to bereaved parents; to offer emotional and psychosocial support to bereaved parents and have one-on-one sessions or support groups. We currently have virtual support group sessions. We empower and equip bereaved parents with information on what grief is and tools to navigate through it healthily. We aim to contribute to suicide prevention awareness as the loss of a baby is one of the risk factors and to provide compassionate support for bereaved parents so they know where to seek for help in case of a crisis. We partner with Befrienders Kenya in suicide prevention awareness campaigns.
Support offered: Psycho-social and emotional support; support groups; workshops; remembrance activities and events; advocacy; raising awareness, We provide information/advice on stillbirths to bereaved parents, information/advice on stillbirth parent support for healthcare professionals, information/advice on stillbirth parent support for employers, professional post-stillbirth counselling for parents and families, informal post-stillbirth counselling for parents and families (e.g. peer support), a space for bereaved parents and families to meet and support each other, a space for bereaved parents and families to tell the stories of their stillborn babies
Groups targeted: Bereaved mothers and fathers, healthcare professionals, employers, religious spaces, and anyone who needs support.
Aims related to stillbirth: Help bereaved parents get the help they need to survive the death of their baby. Help the family and friends of bereaved parents become more knowledgeable about what the grief process is like. Help professionals who care for bereaved parents have the resources they need to do their jobs well.
Other aims:
Support offered: Support groups; individual support; online resources; suggested reading; referral to therapists; remembrance. We provide information/advice on stillbirths to bereaved parents, information/advice on stillbirth parent support for healthcare professionals, information/advice on stillbirth parent support for employers, informal post-stillbirth counselling for parents and families (e.g. peer support), a space for bereaved parents and families to meet and support each other, a space for bereaved parents and families to tell the stories of their stillborn babies, and bedside peer to peer support services at the time of loss.
Groups targeted: Bereaved mothers, fathers and other bereaved family members, healthcare professionals, and anyone who needs support
Language: English
Geographies reached: Western Massachusetts
Location 1: United States
Empty Cradle (Metro Vancouver Empty Cradle Bereaved Parents Society)
Website: www.emptycradle.bc.ca
Email: emptycradle@telus.net
Phone: +16045254349
Aims related to stillbirth: Monthly Peer Support Meetings via Zoom (in-person in the Vancouver area) for those who have experienced stillbirth, miscarriage, or neo-natal loss.
This is a safe place to share feelings and experiences, which family and friends might not understand, with encouragement instead of judgement. If our meeting times conflict with your schedule, we can chat by phone or email, but Empty Cradle is a peer support group - we are not accredited professionals.
Other aims: We endeavour to support bereaved parents who have suffered pregnancy or infant loss in all circumstances or situations. Miscarriage, stillbirth, genetic or other termination, or neo-natal loss.
In addition to monthly online / in-person meetings we also have monthly newletters and other resources.
Support offered: Online & in-person peer support meetings for those who have encountered or experienced stillbirth or other pregnancy losses.
Groups targeted: Fathers and other adult family members or support people are welcome at our monthly meetings.
Language: English
Geographies reached: We are located in the Vancouver area, but online meetings are open to those from other areas (please notify us ahead so we can ensure Zoom will allow entrance for international visitors).
Location 1: Canada 613 Queens Ave New Westminster British Columbia
Aims related to stillbirth: Provide a place for mothers, fathers, or other family members to express their grief, to answer their questions, to support their journey for as long as they need us.
Other aims: Empty Cradles was started many years ago in Oxford, MS by two mothers who both had experienced the traumatic loss of children. Our group is for parents who have lost children before, during, or after birth. We offer a supportive place to share your story, to discuss pregnancy/infant loss issues, and to remember your children.
We hold meetings when we are contacted by bereaved parents or when someone tells us bereaved parents are interested in meeting. Both mothers and fathers are welcome. Our schedule is flexible and we meet as often as is needed for members.
Support offered: group meeting when requested
individual meeting when requested
references to materials for grief support
Groups targeted: Typically, we see mothers, but we are open to anyone -- fathers, siblings, and any family member who needs support.
Language: English
Geographies reached: Oxford, MSLafayette County, MSBatesville, MSPanola County, MS
Location 1: United States 1423 Jefferson Avenue Oxford Mississippi 38655
Location 2: United States St. Peter\'s Episcopal Church; 113 S. 9th Street Oxford Misssissippi 38655
Aims related to stillbirth: We have a variety of different retreats offered year-round, grieving families can find support, resources and hope when they are ready. The tranquil setting of Faith’s Lodge provides a peaceful escape for families coping with the death of a child to refresh their minds and spirits while spending time with others who understand their experiences. Our long weekend retreats combine professional grief counseling, therapeutic experiences, and group activities that help families heal. As the first dedicated retreat facility of its kind, our goal is to connect families and give them tools for coping with grief and its challenges in a healthy way.
Other aims: We offer many different child loss retreats: bereaved family, bereaved mothers, suicide loss, early pregnancy loss, infant/toddler loss bereaved families or parents of a medically complex child.
CHILD LOSS RETREATS
The death of a child is the worst experience a parent can endure. A child’s death puts a family on a journey of grief that will last their entire life. We provide a serene stop along the way in the Northwoods of Wisconsin to get away from day-to-day life and honor their child.
As the first dedicated retreat facility, Faith’s Lodge was created to be a safe haven for grieving families to reflect, explore and just be with people going through a similar experience.
Retreats offered year-round.
Support offered: A stay at Faith’s Lodge is generally a long weekend and guests have their own spacious guest suite with a private bathroom, fireplace, balcony/patio, reading area, desk and small refrigerator. Guests choose to do as much or as little connecting with others as they prefer while there. Meals and activities are included in each stay. We offer therapeutic programing and grief counseling to bereaved parents and families.
Groups targeted: We offer childloss retreats for mothers, fathers, and siblings age 18 and under.
Language: English
Geographies reached: As the only facility of our kind in the U.S., we’ve served over 12,500 people from 46 states and 4 countries since 2007.
Location 1: United States 505 Hwy 169 N Suite 245 Plymouth MN 55441
Location 2: United States 6942 Co Rd C Danbury WI 54830
Aims related to stillbirth: Féileacáin provides support to families bereaved through perinatal death.
Féileacáin offer Memory Making opportunities to families, including Precious Imprints, Cuddle Cots and Memory Boxes.
Féileacáin also offer long term peer support, Remembrance Services, Support Meetings.
Other aims: Féileacáin provides support to families bereaved through perinatal death.
Féileacáin offer Memory Making opportunities to families, including Precious Imprints, Cuddle Cots and Memory Boxes.
Féileacáin also offer long term peer support, Remembrance Services, Support Meetings.
Support offered: Peer Support
Remembrance Services
Memory Boxes
Cuddle Cots
Precious Imprints
Play Therapy
Creative Workshops
Supportline
Groups targeted: Sibling Workshops
Support Groups for Parents whose only Child(ren) live in their Hearts
Pregnancy After Loss Support Group
Father\\\'s Football
Language: English
Geographies reached: The Island of Ireland
Location 1: Ireland (Republic) 37 North Street Skibbereen Cork P81X370
Aims related to stillbirth: Our mission is to offer compassionate personalised counselling and care to anyone affected by fertility or pregnancy issues, traumatic birth or baby loss, in partnership with other support agencies.
Other aims:
Support offered: Free/donation-based professional counselling service for anyone affected by pregnancy or baby loss or other related issues including fertility problems and postnatal depression; support groups for pregnancy related issues.
Groups targeted: Bereaved mothers and fathers, anyone who needs support
Language: English
Geographies reached: Gloucestershire area
Location 1: United Kingdom 51 Westgate Street Gloucester GL1 2NW
Aims related to stillbirth: To be inclusive, accessible and available 24/7 in our hospice, at home, in hospital and in our communities; to ensure every penny raised and every minute gifted is focussed on the needs of the families we support
Other aims: We are a pioneering children's hospice with a vision to deliver pioneering care through pregnancy, childhood and loss, whenever families need us, whatever their future holds.
Support offered: home-based hospice services; counselling; informal talking; support groups; music and art therapy; ParentsSuites; Snowflake Suite for families who need to say a last goodbye; memory boxes, heartbeat lullaby, photos; assistance with funeral arrangements; longer-term support including Celebration Evenings for remembering your child, connecting families. We provide information/advice on stillbirths to bereaved parents, information/advice on stillbirth parent support for healthcare professionals, information/advice on stillbirth parent support for employers, professional post-stillbirth counselling for parents and families, informal post-stillbirth counselling for parents and families (e.g. peer support), a space for bereaved parents and families to meet and support each other
Groups targeted: Bereaved mothers, fathers, and other bereaved family members, healthcare professionals, all BME backgrounds and Eastern European families and anyone who needs support
Language: English
Geographies reached: West Yorkshire
Location 1: United Kingdom Russell House, Fell Greave Road Huddersfield West Yorkshire HD2 1NH
Aims related to stillbirth: Forget Me Not is a peer-to-peer pregnancy and infant loss support group located in Greater Rochester, NY. Forget Me Not was created in the legacy of Face 2 Face, Rochester\'s former support group. Our goal is to provide companionship for those who have lost a baby so that they know that they are not alone and to help keep their baby\'s memory alive.
Other aims: Forget Me Not provides support and companionship for those who have lost a baby to ectopic pregnancy, miscarriage, missed miscarriage, TFMR, stillbirth, premature delivery, neonatal loss, SIDS, or infant loss up to age one.
Support offered: Forget Me Not holds monthly in-person support group meetings. We also have a private Facebook group where parents who have lost a baby can find companionship, ask questions, share their experiences, and find support from others.
Groups targeted: mothers and fathers
Language: English
Geographies reached: Greater Rochester, NY
Western NY
Aims related to stillbirth: Friends of Serenity aims to preserve and protect the health of sick pregnant women and those who have suffered a miscarriage, stillbirth, or neonatal death in particular (but not exclusively. Friends of Serenity helps by providing and assisting in the provision of facilities, Serenity Suites, and equipment at East Lancashire Women and New Born Centre. We particularly provide services not normally provided by the statutory authorities. We work hard to support newly bereaved parents through the provision of memory boxes and miscarriage keepsakes. By dressing their babies we hope to make a distressing and devastating time a little more comforting by taking the pressure off them. We provide services in East Lancashire and throughout the country.
Other aims: Additionally, we strive to provide qualified information by any means appropriate on the 2nd most common chromosome disorder Trisomy 13.
Support offered: - Providing and assisting in the provision of facilities and equipment at East Lancashire Women and New Born Centre.
- Assisting in the provision of memory boxes and keepsakes as well as the need for universal public benefit.
- Supporting women in subsequent pregnancies through the rainbow clinic and with the provision of rainbow boxes and bags.
- providing equipment and bereavement suites and rooms that would not typically be funded by the NHS.
Location 1: United Kingdom Darwen Lancashire Bb39bp
Fundacion Amparos
Website: www.amparos.cl
Email: contacto@amparos.cl
Phone: +56995290917
Social Media: Fb fundación amparos IG fundacion_amparos None
Aims related to stillbirth: No.
Other aims: Our aim is to accompany parents that have lost a baby during the pregnancy or during the first days after birth. We hope to be able to support them during the pregnancy and the mourning.
We seek to promote good treatment for this families in the health system , social programs , aswell as in public and legislative policies.
In this way, make their experience more bearable.
Support offered: Our aim is to accompany parents that have lost a baby during the pregnancy or during the first days after birth.
We seek to promote good treatment for this families in the health system , social programs , aswell as in public and legislative policies.
On the other hand, we believe its essential to educate about perinatal losses in college education , in carreers that hace to deal with prgnancy and delivery. We seek to create different protocols that can be helpful during this difficult moments. We promote giving memory boxes, and helping lead parents and also health care professionals during this moments with certain protocols.
We also have meeting throughout the year where mourning parents can meet and also share contact networks that can be helpful.
Groups targeted: Mothers
Siblings
Fahters
health personnel
Doctors
Nurses
medicine professors
psychologists and psychiatrists
Legislators
Language: Spanish
Geographies reached: Chile (all the regions)Latinoamerica
Location 1: Chile Hernando de Aguirre 329 Santiago Providencia Providencia
Aims related to stillbirth: Fundación Era en Abril is the first organization in Latin America dedicated to providing comprehensive support in the face of perinatal death. Our work includes research, prevention, awareness, and support for grieving families.
Other aims:
Support offered: - Bereavement support groups
- Psychological and legal advice before death
- Drafting of bills to amend existing legislation
- Campaigns to raise awareness of stillbirths
- Professional training
Groups targeted: - Support groups for mothers and fathers
- Pregnancy Loss Support Groups
Language: Español
Geographies reached: * Argentina (En 17 provincias)* MÉXICO* CHILE* COLOMBIA* VENEZUELA* URUGUAY* ESTADOS UNIDOS* GUATEMALA* EL SALVADOR* NICARAGUA* COSTA RICA* REP. DOMINICANA* ECUADOR* PERÚ* PARAGUAY
Location 1: Argentina Avellaneda Buenos Aires 1870
Gifts from Liam
Website: giftsfromliam.org
Email: info@giftsfromliam.org
Phone: +13128807411
Social Media: @giftsfromliam on IG, Facebook, YouTube, LinkedIn
Aims related to stillbirth: Provide education to families to prevent pregnancy and infant loss, and support underserved bereaved families.
Aims related to stillbirth: Gleym mér ei is a charity for parents who have experienced loss during pregnancy and in, or soon after, birth. Our main purpose is to support projects that help these little children, who have gone too soon, live on in memory. We support parents after loss and advocate for their rights. We donate Memory Boxes and other supplies for hospitals, we organize events, such as our annual ceremony on 15th of October, as well as providing grief counselling, organize support groups and peer-to-peer support for parents.
Other aims:
Support offered: We offer people consultations, peer support and not only for the parents but also for grandparents and the people around them. We also offer support groups, craft evenings and health promotion events. We also give everybody that experience loss from week 12 a memorial box and we give keychains for everybody that loose before that time. Among other things.
Aims related to stillbirth: We offer counseling services to parents who have experienced a stillbirth, a free monthly support group, and the Perinatal Loss Alert Program (PLAProgram.com).
Other aims: We offer grief support for all types of loss including: perinatal loss, infertility and related losses; subsequent pregnancy following a loss; fatal fetal diagnoses; and deaths of family, friends, pets, etc.
Support offered: We offer counseling, a support group, the Perinatal Loss Alert Program (PLAProgram.com), and we collaborate with local loss organizations.
Groups targeted:
Language: English
Geographies reached: We work with all individuals in the state of Virginia and are located in Virginia Beach, VA. For those outside of the Hampton Roads area, we offer Telehealth counseling services.
Location 1: United States 3630 South Plaza Trail 210 C Virginia Beach Virginia 23452
Aims related to stillbirth: Supporting grieving parents worldwide
Other aims:
Support offered: Peer support group; resources; information. We provide a space for bereaved parents and families to meet and support each other, a space for bereaved parents and families to tell the stories of their stillborn babies
Groups targeted: Bereaved mothers, fathers and other bereaved family members, healthcare professionals, and anyone who needs support
Aims related to stillbirth: 1) Promote awareness and prevention of group B strep disease in babies during pregnancy
2) We sponsor October as Prenatal-onset GBS Disease Recognition Month. Currently, most medical literature considers there to be two types of GBS disease: early-onset (birth to 6 days of age) and late-onset (7 days to 3 months of age). However, pregnancy is also a distinct time when babies can become infected by group B strep.
3) Promote the furthering of GBS research at all stages of life including the One Health approach through GBS Research Connect https://www.gbsresearchconnect.org/
Other aims: 1) To promote awareness and prevention of group B strep disease in babies at birth through early infancy
2) We sponsor July as Group B Strep Awareness Month with a focus on July 8-14 as Group B Strep Awareness Week.
3) To promote awareness and prevention of the many types of prenatal infection
4) We sponsor February as International Prenatal Infection Prevention Month.
Support offered: We offer informational resources for awareness and prevention via our website and social media.
Groups targeted:
Language: English primarily with limited resources available in Spanish and French.
Geographies reached:
Location 1: United States 11 El Dorado Court Pomona California 91766
Aims related to stillbirth: The H.E.A.R.T.S. Baby Loss Support Program was created in 1996 and exists for anyone who has been touched by the loss of a precious baby during pregnancy or anytime after birth. We provide individual and family support to those who have experienced stillbirth as well as miscarriage prior to 20 weeks. Our programs offer education, support, compassion and resources. Those who have experienced stillbirth are welcome to attend everything we offer.
Other aims:
Support offered: * Baby Loss Workshops that are 6 to 8 weeks in length (families only) ~ held quarterly thru the year
* Annual Baby Loss Retreat (mothers only) ~ Spring each year
* Annual Baby Steps Walk to Remember (families and community) ~ Late Summer each year
* Annual Bridge Lighting for International Pregnancy and Infant Loss Awareness Day (families and community) ~ October 15th
* Annual Candle Light Memorial Service - 2nd Sunday in December each year (families and community)
Groups targeted: Mothers, families, community. Only our retreat is for Grieving Mothers only.
Language: English
Geographies reached: We are located in Sherwood Park, Alberta, Canada but with virtual programming and Facebook, our reach has become International.
Location 1: Canada 48 Brentwood Boulevard, #207 Sherwood Park Alberta T8A 2H5
Aims related to stillbirth: We provide mental health services to the community at large. While we provide counseling to a variety of clients and needs, many of our providers, including our founder, specialize in grief/bereavement work, infant loss, and pregnancy loss. We engage in events that support bereaved parents, including conferences and events sponsored by PLIDA, Star Legacy, and Faith's Lodge.
Other aims: In general, we aim to provide personalized mental health services to our community.
Support offered: We provide individual, couples, family, and group counseling to bereaved parents and their loved ones. Additionally, we provide educational and training opportunities as well as speaking engagements.
Groups targeted:
Language: English
Geographies reached: We are located in Minnesota, and as a result, our counseling services are provided within the state. We offer training opportunities and speaking engagements internationally.
Location 1: United States 1262 Cedar Street Monticello Minnesota 55362
Location 2: United States 185 High Point Place NE Suite 101 Byron Minnesota 55920
Aims related to stillbirth: Baby loss counselling and support
So that no-one has to face baby loss alone
One to One Peer Support
Counselling
Group support for grandparents
Group support for bereaved parents
Other aims: We are an Edinburgh based, community charity providing specialist baby loss counselling and peer support to bereaved families. Lived experience is at the heart of the charity, through the staff, including our CEO, board and volunteers, ensuring we can truly empathise, providing compassion and support to the families we support and helping ensure we stay connected to the needs of the community that we serve.
All our support services are free and offered on a long-term basis. Our approach is person centred, responding to families’ individual needs and building the supports they need around them. Since 1996, we have been offering free one-to-one or couple specialist baby loss trauma counselling for up to 18 months.
Support offered: Specialist baby loss counselling for individuals and couples
Group and 1:1 peer support
Groups targeted:
Language: English
Geographies reached: Edinburgh and the Lothians
Fife
Forth Valley
Borders
Highlands
Aims related to stillbirth: HUG provides information on support networks from a range of charities and organisations online and through our hospital information packs. We provide free to attend group sessions (currently online due to covid-19) whilst raising awareness of baby loss and promoting positive mental well-being.
Other aims:
Support offered: Signposting to resources; online support group including specific groups for mums and dads; information and resources; HUG app. We provide information/advice on stillbirths to bereaved parents, information/advice on stillbirth parent support for healthcare professionals, information/advice on stillbirth parent support for employers, professional post-stillbirth counselling for parents and families, informal post-stillbirth counselling for parents and families (e.g. peer support), a space for bereaved parents and families to meet and support each other, and a space for bereaved parents and families to tell the stories of their stillborn babies. We also run a HUG Singers group that is free to attend. Singing in a group has been proven to help mental health issues such as depression. It is a form of physical exercise and has many health benefits as well. It provides a safe space to talk to others whose experiences may be similar whilst forming new friendships and having some fun. We have helped others in other areas set up similar support groups.
Groups targeted: Bereaved mothers, fathers and other bereaved family members, healthcare professionals, employers, and anyone who needs support
Aims related to stillbirth: We provide a place where parents and families can come to grieve and find solace. The Angel of Hope statue is based on The Christmas Box by Richard Paul Evans. We have a small garden area in the town park where the Angel is located. Families may purchase a memorial paver with their child’s name to be placed at the site. We also host an annual candlelight vigil on Dec 6 each year in memory of our children.
Other aims:
Support offered: Annual candlelight vigil, memorial pavers
Groups targeted:
Language: English
Geographies reached:
Location 1: United States 6570 E US Hwy 36 Avon Indiana 46123
Hispañola Health Partners
Website: https://www.hispanolahealthpartners.org/
Email: llindenmeyr@gmail.com
Phone: +18602481813
Aims related to stillbirth: HHP helps administer a midwifery center and outreach homebirth services in southeastern Haiti and would like to contribute to the registry of stillbirths in Haiti in order to help give a more realistic picture of the incidence there.
Other aims:
Support offered: perinatal care and parents\' classes, home visits, traditional birth attendant program, home births, midwifery center skilled birth attendant labor and delivery services, emergency evacuation system
Groups targeted:
Language: English
Geographies reached: Arrondissement de Belle Anse, SE Dept, Haiti
Location 1: United States 374 Taconic Rd Salisbury CT 06068
Location 2: United States Rte Nle #8 Marre-Joffrey Grand-Gosier, Sud-Est
Aims related to stillbirth: Help those who experience pregnancy and or infant loss to find the inspiration of hope by providing connections, comfort and care.
Other aims:
Support offered: Peer support; online support; support groups; resources; information signposting. Provide a space for bereaved parents and families to meet and support each other, and for bereaved parents and families to tell the stories of their stillborn babies.
Groups targeted: Bereaved mothers and fathers; healthcare professionals
Language: English
Geographies reached: Support groups in: New Haven, Wolcott, West Hartford, Guilford, Manchester, New London, Fairfield, Virtual
Location 1: United States 900 Chapel Street, 10th Floor New Haven Connecticut 06510
Aims related to stillbirth: We provide grief support for families that have experienced pregnancy and infant loss.
Other aims: Our goal is to provide hope and healing at a most challenging time for families that have experienced pregnancy and infant loss.
Support offered: Hope boxes include an easy to read version of the Bible, book on infant loss, journal, pen, notecards, candle, footprint pin, lotion/soap, brochure, resources. We provide information/advice on stillbirths to bereaved parents, information/advice on stillbirth parent support for healthcare professionals, information/advice on stillbirth parent support for employers, professional post-stillbirth counselling for parents and families, informal post-stillbirth counselling for parents and families (e.g. peer support), a space for bereaved parents and families to meet and support each other, a space for bereaved parents and families to tell the stories of their stillborn babies
Groups targeted: Bereaved mothers, fathers and other bereaved family members, healthcare professionals, employers, people experiencing specific type(s) of death (terminal diagnosis support, SIDS, early child loss), and anyone who needs support.
Language: English
Geographies reached: Nationwide (Canada)
Location 1: Canada 30 Grenfell Ave. Swastika ON P0K1T0
Hope Restoration Center (part of the PROMISE Initiative Ghana)
Aims related to stillbirth: Provide care to mothers and families after pregnancy loss.
Provide training for health providers on stillbirth auditing.
Conduct research on stillbirth.
Provide care to the whole family including referrals. Provide customized care to special groups such as the clergy, services to the elderly, adolescent care, general counseling services. Support set-up of health facilities and provide training to ensure quality of care. Support hospitals and clinics to establish and effectively run Pregnancy Schools for pregnant women. Provide maternal, newborn and general health care services for women with disabilities (hearing and visual impairments) and their families. Provide online classes on reproductive health, pregnancy, delivery, childcare and family health (Online Pregnancy School).
Other aims: To ensure that pregnant women go through pregnancy successfully; to provide timely, relevant and accurate information on pregnancy and childcare; to conduct research on pregnancy related issues; to provide psychosocial support to pregnant women including post-loss care.
Train health providers on how to provide care communicate with women and families after pregnancy loss including stillbirth.
Provide psychosocial support to pregnant and post natal women
Support offered: Individual counselling; pregnancy planning; information/advice on stillbirths to bereaved parents and on stillbirth parent support for healthcare professionals; professional post-stillbirth counselling for parents and families, informal post-stillbirth counselling for parents and families (e.g. peer support), provide a space for bereaved parents and families to tell the stories of their stillborn babies.
Provide safe space for parents to discuss their loss.
Groups targeted: Bereaved mothers and fathers, healthcare professionals, anyone who needs it; we provide public education on stillbirth on radio and television
Language: English, Fanti, Twi, Ga; we will get interpreters for other Ghanaian languagesanguages as needed
Geographies reached: The Online Pregnancy School is aired on YouTube, Facebook and Health TV so reaches most parts of Ghana and other countries such as Nigeria, The Gambia and Cameroon among others
Location 1: Ghana House Number 8, Riders Street, North Kwesimintsim Ridge Takoradi Western Region WS-542-8340
Location 2: Ghana New Ashongman, Musuku Accra, Ga East Greater Accra GE-253-9753
House of Fertility Empty Wombs Pregnancy Loss and Baby Loss Support
Aims related to stillbirth: We provide support to both bereaved parents and to healthcare workers
Other aims:
Support offered: Provide information/advice on stillbirths to bereaved parents and on stillbirth parent support for healthcare professionals; provide information/advice on stillbirth parent support for employers, professional post-stillbirth counselling for parents and families, a space for bereaved parents and families to meet and support each other, and tell the stories of their stillborn babies. We hold physical monthly support group meetings; we work extremely closely with The Hope Box Initiative in providing support for loss parents at the time of the loss through referral from hospitals, other loss parents, and members of the public.
Groups targeted: Bereaved mothers and fathers, other bereaved family members, healthcare professionals, employers
Language: English
Geographies reached:
Location 1: South Africa Summit Square, 15 School Road, Morningside, Sandton Johannesburg Gauteng 2196
Aims related to stillbirth: ICP Supports aims are to:
Provide information and support to people affected by ICP
Raise awareness of ICP through the public and health sectors
Promote and fund research into ICP
Other aims: ICP Support works to reduce the number of stillbirths caused by the condition intrahepatic cholestasis of pregnancy (also known as obstetric cholestasis). They provide support to those affected by stillbirth because of ICP.
Support offered: ICP Support has a specialist Facebook group for those affected by stillbirth because of ICP as well as a telephone support line
Groups targeted:
Language: English
Geographies reached: Our work and aims are international as well as national
Location 1: United Kingdom 69 Mere Green Road Sutton Coldfield Birmingham B75 5BY
Aims related to stillbirth: Imagine provides grief education to schools, work places and the community on how to support grieving children and families.
Other aims: Imagine provides free peer support groups for children and families who have experienced a loss due to death. Imagine offers a group specifically for parents who have experienced the death of a child.
Support offered: Peer support groups for parents who have a lost child.
Groups targeted: Peer support groups for parents who have experienced the death of a child.
Peer support groups for children who have experienced the death of a sibling.
Language: English, Spanish
Geographies reached: Imagine has support centers in Mountainside and Newark, New Jersey. We also offer virtual support groups.
Location 1: United States 244 Sheffield Street Mountainside New Jersey 07092
Aims related to stillbirth: We have groups for parents who have lost a child from the age of 0-30 yo.
Other aims: Mission: To support children and families coping with loss and to foster resiliency and emotional well-being for all those who grieve.
Vision: A world where grief, trauma, and loss are transformed into resilience, empathy, and compassion, where children coping with loss grow up emotionally healthy and able to lead meaningful and productive lives and where no child grieves alone.
Support offered: Free peer support groups for NJ residents. Groups are offered in English and Spanish.
Groups targeted: We work with children from 3-18 yo, young adults and parents and caregivers. Everyone who attends Imagine has had someone significant in their lives who died. There is only 1 group that is specific to the type of loss and thats parents who had a child die.
Language: English & Spanish
Geographies reached: It is only a service to NJ residents. We have 3 sites; Mountainside, Newark and virtual platform.
Location 1: United States 244 Sheffield St Mountainside NJ 07092
Location 2: United States 570 Broad St Floor 4 Newark NJ 07102
Aims related to stillbirth: IRIS volunteer arranges for many locations to be lit in pink and blue on Oct. 15th – Pregnancy and Infant Loss Remembrance Day. IRIS provides an Oct. 15th Candle Lighting Service at 7 pm in front of our office at the life-sized bronze statue of an angel weeping over an empty cradle (I knew you in the womb; by sculptor Timothy P. Schmalz). Parents, family, and friends from around the world are welcome to mail a heart, of any size, and made of any material, to be place in the cradle of the statue for the service. IRIS hosts a holiday Service of Remembrance on the first Sunday in December at the Chapel of the Good Shepherd on Shattuck/St. Mary’s Campus, 1000 Shumway Ave in Faribault MN. Many other events held throughout the year including memorial events and IRIS Advocate Training.
Other aims: To offer support, education and resources to parents, families, friends, and professionals on the death of a child in early pregnancy (miscarriage, ectopic pregnancy, molar pregnancy) or from stillbirth, premature birth, neonatal death, birth defects, SIDS and related syndromes, illness, accidents, and all other types of infant and early childhood death.
Support offered: Founded in 1987 IRIS provides a wide array of services including: IRIS Advocate Program (assistance as a doula if requested, assist with creating keepsakes, memory making for parents); bereavement support packets; clothing sets for infants 10 – 42 gestational weeks (2” – 24”); early loss common burial site in Faribault; newsletter; Annual Holiday Service of Remembrance since 1994; Mother’s Day event, Support Group meetings; one-on-one support, along with many other memorial events. We also host training for those interested in helping grieving parents.
Groups targeted: Mothers, fathers, siblings, grandparents, family, friends, and professionals.
Language: English; website has ben translated into 360 languages
Geographies reached: IRIS was established in 1987. Full services provided free of charge to those to live in, deliver in, or bury a child in Dodge, Goodhue, LeSueur, Steele, Rice, and Waseca Counties of southern Minnesota. Other services provided worldwide.
Location 1: United States 218 Third Ave. NW Faribault MN 55021
Integrative CAP Health Practices
Website: www.icaphp.com
Email: nutrileees@icaphp.com
Phone: +14702821200
Aims related to stillbirth: Our Aim is to help each mother and supportive family members to regain the confident needed to work towards acceptance and hope, through multiple wellness offerings.
Other aims: Our objective is to empower each individual mothers, fathers and other family members and friends towards selfcare through continuous supportive options for still-birth loss in however and whenever form of acceptance the patient chooses.
Support offered: Post Natal Care, Educate on latest biological Maternal health research, Nutrition, Exercise, Mental Health, Spiritual Wellness, Water Hydrotherapy, Womb Cleaning.
Groups targeted: Mothers, Fathers, siblings, extended Family members and friends
Language: English
Geographies reached: Within United States,,State of Georgia, City of Roswell, City of Atlanta and surrounding Cities in Fulton County,
Location 1: United States 1170 Grimes Bridge Road Suite 300 Roswell Georgia 30075
Isaac Abramour Nketiah
Email: nisaacabramour@yahoo.com
Phone: +233243562231
Social Media: Mase Saint Barcelona Agambo Isaac Abramour Nketiah
Aims related to stillbirth: 1. Brindar apoyo, espacios de contención y de información, a familias que afrontan la muerte fetal y neonatal. 2. Promover, desarrollar e implementar herramientas de humanización de la atención en salud a madres y padres en caso de muerte gestacional y neonatal. 3. Generar conciencia a la sociedad en general, sobre la muerte gestacional y neonatal. 4. Promover proyectos de ley y políticas públicas relacionadas con muerte gestacional y neonatal. 5. Promover la reducción de la mortalidad fetal y neonatal en Colombia. 6. Desarrollar congresos, foros y espacios de formación y discusión sobre muerte gestacional y neonatal.
Other aims:
Support offered: PARA LAS FAMILIAS:
• Consejería y apoyo terapeútico: Se realiza de manera virtual o presencial.
• Acompañamiento a familias que reciben diagnósticos al límite de la vida o malformaciones durante la gestación o al nacer.
• Grupos de ayuda mutua: 1. Grupo de mujeres en duelo. 2. Grupo de hombres en duelo. 3. Grupo de abuelos en duelo. 4. Grupo de gestación después de la pérdida.
• Acompañamiento en el postparto sin bebé en brazos. Asesoría lactancia y duelo.
• Creación de recuerdos físicos del bebé: Toma o retoque de fotografías, huellas, fotografías conmemorativas.
• Apoyo legal trámites relacionados con la restitución del cuerpo del bebé sin vida.
PARA LOS PROFESIONALES DE LA SALUD
• Formación en herramientas de atención de la muerte y el duelo gestacional y neonatal.
• Cajas de memoria
Groups targeted: Bereaved mothers, fathers and other bereaved family members, healthcare professionals, employers
Aims related to stillbirth: To support families after the devastation of baby loss, through subsequent pregnancy and parenting. We aim to celebrate a family as a whole and break the taboo associated with baby loss.
Other aims: To support families after the devastation of miscarriage, stillbirth, and neonatal death.
Support offered: *Online support via our closed Facebook group JOEL TCP
*Pregnancy & Parenting After Loss monthly peer support group
* Online peer support group for Dads/affected men plus regular meet-ups throughout the year with a focus on physical & mental wellbeing
*A family support pack, which can be ordered from our website for free. Developed to support families through the life long journey of baby loss.
* Support booklets for Siblings, Employers & Employees returning to work, Pregnancy After Loss diaries, plus other materials
*Provision of counselling links & other support links
*Creating angel gowns for babies, out of wedding dresses donated to hospitals and funeral directors. Available directly from JOEL
*\'Walk & talks\' for those affected
*Family fun sessions, yoga
Groups targeted: All-inclusive support for Mums, Dads, Siblings, Grandparents, family, and friends.
Language: English
Geographies reached: We support globally; international
Location 1: United Kingdom 3 Victoria Square Worksop Nottinghamshire S80 1DX
Aims related to stillbirth: The Kansas Infant Death and SIDS Network, Inc. serves those individuals who have been touched by the tragedy of infant death, stillbirth, miscarriage or SIDS and those individuals or organizations who strive to reduce the risk of perinatal and infant deaths by providing supportive services, community education, professional training, and supporting associated research.
Other aims:
Support offered: KIDS Network professional counselor responds to bereavement referrals with: grief materials, grief support and community resource information.
KIDS Network Grief Support Meetings provide peer support for parents, grandparents, relatives, friends, caregivers, and child care providers who have experienced the loss of a loved one due to SIDS or other sudden infant death, miscarriage or stillbirth. The meetings are held on a regular monthly basis with follow-up for those individuals who would like individual support. We can also help arrange peer-to-peer support as well. Support meetings are held virtually.
Groups targeted:
Language: English and Spanish
Geographies reached: The KIDS Network mainly serves bereaved families in Kansas, but has provided support to families in areas without grief support as needed.
Location 1: United States 300 W. Douglas 145 Wichita KS 67202
Aims related to stillbirth: Kicks Count is the UK's biggest baby movement awareness campaign. By raising awareness of the importance of baby movements, and by inspiring parents with the confidence to report concerns, we aim to reduce the number of babies that are stillborn, or that die shortly after their birth.
Other aims:
Support offered: Providing pregnant people and their families with current information and guidance on how and why to monitor their baby's movements. This information is provided in various formats (posters, flyers, banners, stickers, maternity note pages etc) and is largely distributed by midwives and medical professionals. Resources are available in numerous languages, including Arabic, Urdu and Romanian.
We support families who are pregnant following a stillbirth or neonatal death via our Rainbow Project. Parents can request a free care bundle of items compiled from other parent's suggestions. The contents focus on monitoring their baby's movements and supporting their mental health.
Groups targeted:
Language: English
Geographies reached: United Kingdom
Location 1: United Kingdom 10 The Copse Ripley Surrey RH19 4AP
Aims related to stillbirth: Support for the bereived families , support for those who are planning to become parents with the experience of baby loss, prevention of babyloss
Other aims: Support to all the helping specialists (medics and psychologists), learning courses for the specialists working in perinatal sphere, support for the families dealing with IVF, awareness of the society regarding the problem of stillbirth
Support offered: Psychological support (counsulting and work in groups) , informational, legal counsulting, medical counsulting, social rehabilitation
Groups targeted: All those who are affected by the problem
Language: Russian, English
Geographies reached: All the support is available in Russian language only
Aims related to stillbirth: We provide the same support to families that have lost older children, including those families who have lost adult children.
Other aims: Love, Jasmine supports families bereaved by the loss of a child, from 20 weeks gestation. We provide emotional and practical support and promote self-care to improve the emotional wellbeing of the whole family.
Support offered: Emotional Support - One to one counselling, couples counselling, peer group support.
Practical Support - Help with getting to appointment, signposting, advocacy.
Self-Care - Access to complimentary therapies, yoga, meditation and well being activities
Groups targeted:
Language: English
Geographies reached: Families can access our counselling service from across the UK using video conferencing however, most of our work is centred in the Mersesyside area of England.
Location 1: United Kingdom 10 Tapton way Liverpool L13 1DA
Aims related to stillbirth: Annual 5k run/1 mile walk/kids' dash with raffle, silent auction, and children's entertainment. Goal is to bring loss families and their supporters together to celebrate their children and fundraise to prevent future stillbirth. All proceeds donated to Count the Kicks.
Other aims: Create a positive environment for families who have lost their children to say their names and actively be their parents. Help connect loss parents so they do not feel alone.
Support offered: An event to honor baby
Groups targeted: All welcome including families and friends.
Language: English
Geographies reached: Ohio
Location 1: United States 213 Camrose Ct Gahanna OH 43230
Aims related to stillbirth: M.E.N.D. is a Christian non-profit organization that reaches out to families who have lost a baby to miscarriage, stillbirth, or early infant death through monthly support groups, annual remembrance ceremonies, social media and our free bi-monthly magazine.
Other aims:
Support offered: Virtual support group; resources; signposting; social media; events; bi-monthly newsletter; provide information/advice on stillbirths to bereaved parents, on stillbirth parent support for healthcare professionals and employers, informal post-stillbirth counselling for parents and families (e.g. peer support), a space for bereaved parents and families to meet and support each other, a space for bereaved parents and families to tell the stories of their stillborn babies
Groups targeted: Bereaved mothers, fathers, and other bereaved family members, healthcare professionals, and anyone who needs it
Language: English
Geographies reached: NW Washington; SW Missouri; Tulsa, Oklahoma; Columbus, Ohio; Chicago, Illinois; Midland, Michigan; Denver, Colorado; San Antonio, Texas; Lynchburg, Virginia, East Valley, Arizona; Kingwood, Texas; Katy, TX
Location 1: United States Irving Archives Museum, 801 West Irving Boulevard Irving Texas 75060
Location 2: United States 4210 Industrial Street Rowlett Texas 75088
Location 3: United States 3200 College Park Drive, Room A228 The Woodlands Texas 77384
Madison's Closet
Website: https://madisonscloset.org/
Email: henderson@madisonscloset.org
Phone: +17042932745
Aims related to stillbirth: Advocating for bereaved families and stillbirth prevention.
Other aims:
Support offered: Our mission is to comfort and clothe perinatal loss moms by providing complimentary clothing. When you have something to wear, you feel better about yourself. The women who donate to Madison’s Closet do so thinking of the women they will help.
Groups targeted:
Language: English
Geographies reached:
Location 1: United States 828 Abbeywood Drive Waxhaw North Carolina 28173
Maggie Rose Perinatal Bereavement Program
Website: https://www.bcwtreehouse.org/
Email: pad9085@nyp.org
Phone: +19147876158
Aims related to stillbirth: The goal of the Maggie Rose Perinatal Bereavement Program is to support the bereft as they heal their deep wounds from pregnancy loss. We remain committed to being responsive to the complexities of perinatal bereavement. Understanding the compounded stressors individuals experience, we continue to provide perinatal bereavement services free of charge.
Other aims:
Support offered: Following the assessment process, a plan of care is offered to each member which includes individual and couples counseling, bimonthly group meetings, and extended counseling, including art therapy to family members. We continue to provide perinatal bereavement services free of charge.
Groups targeted:
Language: English
Geographies reached:
Location 1: United States 670 White Plains Rd. Ste 213 Scarsdale New York 10583
Making Miracles
Website: www.making miracles.org.uk
Email: kelly@makingmiracles.org.uk
Phone: +447791872115
Social Media: Making miracles charity making_miracles_charity
Aims related to stillbirth: To provide support to anyone suffering loss through still birth.
To parents, grandparents and siblings.
Other aims: We provide trauma support through pregnancy and birth.
We provide support through miscarriage, neo natal death and deaths up to baby is one year old.
Support offered: Providing emotional support through professional counselling.
Providing a place to go at out baby memorial garden.
Providing support for children with our book “The Baby”
Providing peer support facilitated by team and support groups.
Providing a podcast to support people at a time that is chosen by them.
Groups targeted: Mums
Dads
Siblings
Grandmothers
Grandfathers
Language: English
Geographies reached: Kent England Medway England England - via Zoom.
Location 1: United Kingdom 7 the street Detling Kent Me143ju
Aims related to stillbirth: MAMA Academy is a UK charity which has been helping save babies lives since 2012. Sadly, the UK has one of the highest stillbirth rates in the developed world with the majority of deaths potentially preventable. We empower parents with safer pregnancy information, educate healthcare professionals on stillbirth prevention methods and raise awareness of the issues around stillbirth and early infant mortality. Our midwifery resources aid consistent maternity care across the country; improving outcomes for families and their precious babies.
Other aims:
Support offered: We provide Wellbeing Wallets to various trusts across the UK to help mums have safer pregnancies. The wallets are given out by their midwife at the booking in appointment and help keep their antenatal notes safe. They are printed front and back with key health messages and act as a check list for midwives to discuss important topics with mums such as how to monitor their babies movements. We are working with NHS England to enable us to distribute the wallets to many more trusts this year.
Groups targeted:
Language: English
Geographies reached: United Kingdom
Location 1: United Kingdom 10 Hartland Close Addlestone Surrey KT15 3AD
Aims related to stillbirth: Mission: To make a safe, respectful and natural childbirth experience available to every woman
Other aims: to make a safe, respectful and natural childbirth experience available to every woman
Support offered: Stillbirth and miscarriage support group, every third Thursday of the month, 5.30-7 pm; Provide information/advice on stillbirths to bereaved parents, and on stillbirth parent support for healthcare professionals; informal post-stillbirth counselling for parents and families (e.g. peer support), a space for bereaved parents and families to meet and support each other
Groups targeted: Bereaved mothers, fathers and other bereaved family members, healthcare professionals, and anyone who needs it
Language: English
Geographies reached:
Location 1: Trinidad & Tobago 32-34 Clifford Street Belmont 240706
Aims related to stillbirth: To provide support to our families and those outside of our hospital who have lost a baby at any gestational age.
Other aims: To formally train and educate all of our team members to make sure you get the care you need and deserve
Support offered: Memory making; footprints, photography, mementos; specialised support groups; resources; techniques for coping and healing; Pregnancy Infant Loss Group; referrals to counselors and other support groups; testing options; information signposting; Provide information/advice on stillbirths to bereaved parents, professional post-stillbirth counselling for parents and families, informal post-stillbirth counselling for parents and families (e.g. peer support), a space for bereaved parents and families to meet and support each other, a space for bereaved parents and families to tell the stories of their stillborn babies
Groups targeted: Bereaved mothers, fathers, and other bereaved family members; anyone who needs it
Language: English
Geographies reached:
Location 1: United States 9875 Hospital Drive Maple Grove Minnesota 55369
Aims related to stillbirth: Help families recieve bereavement support that is up to date. Provide on going memorial events and support for families including bereavement doula services and for pregnancy after loss
Other aims: We help provide memory packs, burial gowns and bereavement support folders to families who have experienced stillbirth
We also help families get their stillbirth certificate if they fall within the guidelines
Support offered: One on one peer support
Memorial items
Bereavement support packs
Help relieve state stillbirth certification
Help push legislative change in regards to shine for autumn act and the stillbirth and maternal health act
Groups targeted:
Language: lEnglish
Geographies reached:
Location 1: United States 2481 west auer avenue Milwaukee Wisconsin 53206
Location 2: United States Mount Pleasant Wisconsin
Aims related to stillbirth: To offer a safe and sacred place for parents to grieve.
Other aims:
Support offered: Support groups; lending library; remembrance ceremonies; informal post-stillbirth counselling for parents and families (e.g. peer support), a space for bereaved parents and families to meet and support each other, a space for bereaved parents and families to tell the stories of their stillborn babies
Groups targeted: Bereaved mothers and fathers
Language: English
Geographies reached:
Location 1: United States Bellingham Washington State 98225
Metro Vancouver Empty Cradle Bereaved Parents Society
Website: https://emptycradle.bc.ca/
Email: emptycradlebc@gmail.com
Phone: +16045254349
Aims related to stillbirth: Provide peer support including opportunities to share their healing journey with others, in-person, via email, by telephone, or online. Provide support to families who have suffered pregnancy loss due to miscarriage, stillbirth, genetic termination, or neo-natal death.
Other aims: Online and In-Person Pregnancy Loss Peer Support Meetings in the Vancouver area.
Support offered: Online support groups on the second Wednesday of each month at 7.30pm (Pacific Time); resources; information; support group; Provide information/advice on stillbirths to bereaved parents and on stillbirth parent support for healthcare professionals; informal post-stillbirth counselling for parents and families (e.g. peer support), a space for bereaved parents and families to meet and support each other, a space for bereaved parents and families to tell the stories of their stillborn babies
Groups targeted: Bereaved mothers, fathers, and other bereaved family members, healthcare professionals, anyone who needs it
Language: English
Geographies reached: Vancouver area of British Columbia. Other areas of North America are welcome to participate online.
Location 1: Canada New Westminster British Columbia V3M 2P9
Aims related to stillbirth: Star Legacy Foundation created the Minnesota Center for Stillbirth and Infant Death. This is a statewide program that provides a framework for early referral and intervention when a baby dies in Minnesota. Eligible families are those who live in Minnesota and experience the death of a baby through stillbirth, neonatal death, SUID/SIDS, or any other infant death. The Center is Minnesota’s resource for information on strategies to reduce the risk for stillbirth and infant death. We provide comprehensive answers to frequently asked questions, as well as grief resources, funeral assistance and support for bereaved families.
Other aims: Infant Death and SUID/SIDS support
Support offered: The Minnesota Center for Stillbirth and Infant Death will contact each family and offer the services of our Family Support Coordinators. These individuals are health professionals who have expertise in caring for families after the death of a baby. They can listen, provide information, ensure families have access to appropriate resources, and minimize barriers to quality bereavement care. Family Support Coordinators can continue to be a contact person for the entire family for the months to come.
Each family situation will be assessed to determine which resources could be helpful or are desired. Examples include information, birth planning, books/blogs/podcasts/websites, counseling/therapy, support groups, support line, bereavement photography, spiritual or cultural support, funeral h
Groups targeted:
Language: English, can use an intepretor for any phone call. Also have resources available in Spanish, Hmong, Somali
Geographies reached: Families who live in and/or deliver a baby in the State of MN
Location 1: United States 6400 Flying Cloud Drive 225 eden praire Minnesota 55344
Aims related to stillbirth: MotherHope Indonesia provides emotional support to mothers and parents who have lost pregnancy and their babies through peer support groups, psychoeducational sessions with experts, and sharing sessions on Instagram. We also have WhatsApp groups.
Other aims: -Improving maternal mental health literacy from pre-marriage, and in the perinatal period
-Improving access to communication and information on maternal mental health in pre-marital and perinatal periods
-Increasing mothers\\' mental health support network with various stakeholders, professional organizations, academics, non-governmental organizations and donor agencies at national, regional and international levels
Support offered: MotherHope Indonesia provides emotional support to mothers and parents who have lost pregnancy and their babies through peer support groups and psychoeducational sessions. We invite obstetricians/gynecologists. clinical psychologists and psychiatrists. We also had collaboration on Project Kick Side Asian Parents to prevent stillbirth last year. Peer support groups are available including for fathers/dads.
Groups targeted: mothers, fathers
Language: English
Geographies reached: Bekasi, West Java; Bandung, West Java; Jakarta; Tangerang, Banten; Cilacap, Central Java; DIY Yogyakarta; Solo, Central Java; Denspasar, Bali; Tarakan, North Kalimantan; Polewali Mandar, West Sulawesi
Location 1: Indonesia Perum Griya Suradita Indah I1 NO 31 E Tangerang Banten 15343
Location 2: Indonesia Gang Lindung Bintara no 2 Bekasi West Java 17136
Support offered: Online forum; support forum; Provide information/advice on stillbirths to bereaved parents and on stillbirth parent support for healthcare professionals and employers, informal post-stillbirth counselling for parents and families (e.g. peer support), a space for bereaved parents and families to meet and support each other, a space for bereaved parents and families to tell the stories of their stillborn babies
Groups targeted: Bereaved mothers, healthcare professionals
Aims related to stillbirth: To compile relevant information on the impact of these experiences and needs of those affected that can be used to improve future service provision
Other aims: Providing support for those affected by infertility, perinatal mental health issues and perinatal death through counselling and holistic therapies. In addition the collation of useful information into the impact of these issues on those affected and the results of therapeutic interventions.
Support offered: Professional counselling and therapies, community group, informal chats, space for quiet; professional post-stillbirth counselling for parents and families, informal post-stillbirth counselling for parents and families (e.g. peer support), a space for bereaved parents and families to meet and support each other, a space for bereaved parents and families to tell the stories of their stillborn babies
Groups targeted: Bereaved mothers, fathers, and other bereaved family members
Language: English
Geographies reached: UK - online
Location 1: United Kingdom Unit 4 Beverley Business Park, Finmere Road Eastbourne East Sussex BN22 8QG
NAIOMI Foundation
Website: https://naiomi.org
Email: info@naiomi.org
Phone: +16123616635
Social Media: Facebook- naiomifoundation Instagram- naiomifoundation
Aims related to stillbirth: 1. Raise Awareness About Stillbirth- Storytelling, community events and advocacy.
2. Promote Remembrance and Legacy Building
Create opportunities for families to honor and remember their babies through memorial walks, memory boxes, digital tributes, and legacy photography.
3. Support In-Hospital Grieving Families
Supply hospitals with CuddleCots, memory-making kits, and comfort companions so families can spend more time with their stillborn babies and create keepsakes.
4. Educate and Train Comfort Doulas
Train volunteers to serve as Comfort Doulas who support families during and after a stillbirth, offering non-medical emotional and practical care.
Other aims: 5. Advocate for Maternal Health Care.
6. Share other organization resources that may help them such as finacial, emotional support and funeral support.
Support offered: 1. Breavement Comfort Doulas- To support and comfort families going through unimaginable loss, these volunteers will go through training and also have the lived experience of losing a baby.
2. Promote Remembrance and Legacy Building
Create opportunities for families to honor and remember their babies through memorial walks, memory boxes, digital tributes, and legacy photography. We have partened with Giliane Mansfield a master newborn photographer to capture these precious moments.
3. We will raise money for Cuddle Cots, they will be gifted to hospitals in honor of babies gone too soon including my daughter Naiomi.
Aims related to stillbirth: To educate healthcare professionals, bereaved families, other bereavement care organisations and the wider community about twin loss issues.
Other aims:
Support offered: Free newsletters and brochures available from the NTLS Facebook page and website. Our books which form a twinloss trilogy can be purchased as per links in our website. Our books cover the twinloss ‘life-cycle’ from before birth to the next generation of survivors in adulthood.
Groups targeted: Mothers of surviving twins and higher order multiple birth loss such as surviving triplets, quadruplets, etc. Bereaved mothers (mothers who had one twin die and one twin survive), healthcare professionals, anyone who needs it. Special focus groups include twin and higher order multiple birth loss families and health care professionals and organisations who care for such families. We also provide information and support for the surviving twins and other higher order multiples.
Language: English
Geographies reached: National (Australia)
Location 1: Australia Salisbury East South Australia 5109
Aims related to stillbirth: We offer choices to families on how to put this tragic trauma into their life and not through it; we work with Jewish communities around the globe
Other aims:
Support offered: Provide information/advice on stillbirths to bereaved parents and on stillbirth parent support for healthcare professionals, professional post-stillbirth counselling for parents and families, informal post-stillbirth counselling for parents and families (e.g. peer support)
Groups targeted: Bereaved mothers, fathers, and other bereaved family members, healthcare professionals. We work with all Jewish families.
Aims related to stillbirth: We aim to create a community for bereaved parents and also to increase awareness about perinatal grief.
Other aims: Our mission is to support families who have experienced the loss of a baby due to stillbirth, miscarriage or neonatal death and to provide community for these families post loss.
Support offered: Telephone support; email support; memory making; bereavement photography; newsletter; counselling referrals; resources; information signposting; support groups; annual remembrance event; Provide information/advice on stillbirths to bereaved parents and on stillbirth parent support for healthcare professionals, informal post-stillbirth counselling for parents and families (e.g. peer support), a space for bereaved parents and families to meet and support each other, a space for bereaved parents and families to tell the stories of their stillborn babies
Groups targeted: Bereaved mothers, fathers, and other bereaved family members, healthcare professionals, anyone who needs it; also parents who have lost one or more multiples, but have a surviving multiple; parents experiencing a pregnancy after loss; parents who have terminated for medical reasons.
Language: English
Geographies reached:
Location 1: United States 1000 Johnson Ferry Road, Northeast Atlanta Georgia 30342
Norwegian SIDS and Stillbirth Society (Landsforeningen uventet barnedød)
Aims related to stillbirth: The Norwegian SIDS and Stillbirth Society (Landsforeningen uventet barnedød) also offers membership and support to families having experience the loss of an infant (incl. SIDS and SUDI) or a toddler. Prevention of SIDS is another aim. In addition we fund research on unexpected deaths among infants and toddlers.
Other aims: The Norwegian SIDS and Stillbirth Society offers membership and support to families who have experienced a stillbirth (perinatal losses). Programmes:
- Bereavement support (peer support) to families who have experienced the loss of a child.
- Education for professionals (midwives, etc.), especially recommendations concerning follow-up and support to bereaved parents, and on prevention of stillbirths.
- Prevention of stillbirths.
- Funding research on perinatal deaths and on grief.
- Providing information on stillbirths and on grief related to stillbirths, including information on the needs of parents and advice to health professionals and social network on how to support families.
Support offered: - Peer support, both one-on-one and in groups.
- Follow-up from staff, with the aim of getting an unederstanding of families\\' situation and needs. The staff also coordinates our peer support offers to the respective families.
- Providing information to newly bereaved parents about grief, grief reactions, self-help strategies, etc., through our website, booklets, brochures, etc.
- Hosting meetings and seminars for bereaved parents and grandparents.
Groups targeted: - Parents
- Siblings
- Grandparents
- Bereaved parent\\'s social network
Language: Norwegian, English
Geographies reached: The organization is nationwide.
Location 1: Norway Ole Fladagersgate 1 A Oslo 0353
Nova Foundation
Website: https://www.novafoundation.org.uk/
Email: info@novafoundation.org.uk
Phone:
Aims related to stillbirth: Nova means new star. A supernova is when two stars come together for a short time to create a light greater then their own. Nova Foundation’s vision is a world without babyloss. Our mission is to provide trauma informed support for babyloss parents. No bereaved parent should ever feel alone. #togetherthroughbabyloss Our Founder Tara’s son was stillborn. Every element of Nova’s website is designed to provide the support she wished she received.
Other aims: To run antenatal classes that will in time fund trauma support for babyloss parents
Support offered: We provide: A stillbirth birth plan; a support booklet to guide around the early days of loss and grief; a grief handbook for bereaved parents; signposting; videos and resources around traumatic grief; a bereavement app; resources for parents pregnant after stillbirth
Groups targeted: Bereaved parents, health and birth workers that support them, family and friends
Aims related to stillbirth: Apoyo y asesoramiento a familias en duelo por muertes gestacionales, perinatales y neonatales.
Información y formación a personal médico y sanitario.
Visibilizar y Concienciar sobre los duelos gestacionales, perinatales y neonatales.
Luchar por los derechos de las familias huérfilas.
Other aims:
Support offered: .- Apoyo individual.
.- Asesoramiento a las familias en cuestiones burocráticas.
.- Grupos de apoyo mutuo, dirigidos por psicólogas.
.- Talleres para familias en duelo.
.- Jornadas y Encuentros para familias en duelo.
.- Cursos y Jornadas para personal médico y sanitario.
Groups targeted: Grupos de apoyo mutuo, dirigidos por psicólogas, online y presenciales
.- Grupos para madres y padres en duelo
.- Grupos para familias en duelo
.- Grupos para padres y madres no gestantes en duelo
.- Grupo para mujeres. Duelo a la fertilidad y duelo a la maternidad
.- Grupo para madres y padres. Nuevo embarazo tras una pérdida
.- Grupos de duelo por Interrupciones legales del embarazo, para madres y padres.
Language: español
Geographies reached: Ciudades: Valencia, Alicante y Castellón. Provincia de Valencia (España)
Location 1: Spain Valencia Valencia 46001
October 15 – Pregnancy and Infant Loss Awareness Day Canada
Website: http://october15.ca/
Email: info@october15.ca
Phone: +17785467894
Aims related to stillbirth: Support, resources, advocacy
Other aims: Support, resources, advocacy
Support offered: Organise events for Pregnancy and Infant Loss Awareness Day and Month; resources for parents; resources for families; Provide information/advice on stillbirths to bereaved parents and on stillbirth parent support for healthcare professionals
Groups targeted: Bereaved mothers, fathers, and other bereaved family members
Aims related to stillbirth: To create support, peace and hope for families experiencing pregnancy or early infant loss.
Other aims: Support for any pregnancy loss, including miscarriage, early infant loss, and infertility.
Support offered: Support group, in person one-on-one support, certified bereavement doula care for any birth in any trimester, remembrance photography, bereavement care boxes, burial gowns, help arranging funeral and/or burial, cards sent acknowledging baby's birth day, and our Walk For Hope annual event.
Groups targeted:
Language: English
Geographies reached: Mostly local to the Roaring Fork, Colorado River and Vail Valleys in Colorado.
Location 1: United States 4660 County Rd 311 New Castle Colorado 81647
Aims related to stillbirth: Our Objectives
Oscar’s Wish Foundation is established for parents, families and siblings to:
Provide support through Bereavement Packs and to raise awareness
To help relieve the suffering, distress and misfortune experienced by parents, families and siblings who have lost their baby through miscarriage, stillbirth, genetic interruption, multiple loss, neonatal or infant death
Provision of online support through information and a message board
Holding community and fundraising events to support and raise awareness
To reduce the feeling of loneliness, depression, anxiety and isolation felt by grieving
Support Network for parents by increasing contact with other families who have experienced similar loss
Support for parents, families and siblings who have experienced a pregnancy, bi
Other aims: Our Values
Dedicated to raising awareness
Compassionate about making a difference
Respecting grief is a journey for each individual and is totally personal and unique to them
Validation of every life that is conceived
Offering every parent, family or sibling the same information and support without judgment
Equal acceptance and acknowledgement of every loss for every loss is unique.
Support offered: Provide support through Bereavement Packs and to raise awareness
To help relieve the suffering, distress and misfortune experienced by parents, families and siblings who have lost their baby through miscarriage, stillbirth, genetic interruption, multiple loss, neonatal or infant death
Provision of online support through information and a message board
Holding community and fundraising events to support and raise awareness
To reduce the feeling of loneliness, depression, anxiety and isolation felt by grieving
Support Network for parents by increasing contact with other families who have experienced similar loss
Support for parents, families and siblings who have experienced a pregnancy, birth or infant loss with the donation of our "Love-a-Bear" program.
Groups targeted: We provide support for Mothers, Fathers, Birthing people and children- or anyone affected by the loss of a baby or babies.
Aims related to stillbirth: We aim to provide support to bereaved parents all over the world by creating a unifying symbol, sign posting service and educating the public about child loss.
Aims related to stillbirth: Our mission is to end the isolation and distress experienced by many people and their families with the profound life change that accompanies the birth or adoption of a child.
Other aims: Our mission is to end the isolation and distress experienced by many people and their families with the profound life change that accompanies the birth or adoption of a child.
Support offered: Telephone support; weekly women's support groups; partner education sessions; community trainings; resources materials; Provide informal post-stillbirth counselling for parents and families (e.g. peer support), provide resources that are more applicable than our services
Aims related to stillbirth: Our mission is to reach out and provide help and understanding to bereaved parents of stillbirth, miscarriage, and infant loss. Offer support groups in the Puget Sound area as well as a lending library, special events, our annual walk to remember, outreach to the medical community and a quarterly newsletter.
Other aims: Our mission is to reach out and provide help and understanding to bereaved parents of stillbirth, miscarriage, and infant loss. Offer support groups in the Puget Sound area as well as a lending library, special events, our annual walk to remember, outreach to the medical community and a quarterly newsletter.
Support offered: Support groups; lending library; special events; outreach to the medical community; quarterly newsletter; Provide information/advice on stillbirths to bereaved parents and on stillbirth parent support for healthcare professionals, informal post-stillbirth counselling for parents and families (e.g. peer support), a space for bereaved parents and families to meet and support each other, a space for bereaved parents and families to tell the stories of their stillborn babies
Groups targeted: Bereaved mothers, fathers, and other bereaved family members (parents of stillbirth, miscarriage, and infant loss)
Language: English
Geographies reached: greater Seattle Area and Western Washington region
Aims related to stillbirth: Parents supporting parents, peer support, resources
Other aims: Peer support
Support offered: Local support groups; information; signposting; memorial items; bereavement photography; song suggestions; support group every third Thursday of the month from 7.00-9.00pm (hybrid - unperson and by zoom); Provide information/advice on stillbirths to bereaved parents, informal post-stillbirth counselling for parents and families (e.g. peer support), a space for bereaved parents and families to tell the stories of their lost babies
Groups targeted: Bereaved mothers, fathers, and other bereaved family members, healthcare professionals, anyone who needs it
Language: English
Geographies reached:
Location 1: Canada 10608 124 Street Edmonton Alberta T5N 1S3
Partnership for Maternal and Child Health of Northern New Jersey
Aims related to stillbirth: The Partnership works with healthcare providers and parents to prevent stillbirths and support parents who are coping with a loss.
We offer emotional support to parents of a stillbirth and host a monthly virtual infant and fetal loss support group for New Jersey residents.
Additionally, our Fetal Infant Mortality Review Program (FIMR) works with health care providers to support grieving families while also gathering data to better understand the cause of their loss.
Other aims: The Partnership offers many diverse programs that support pregnancy, maternal health, and promote healthy families.
Support offered: We offer emotional support to parents of a stillbirth and host a monthly virtual infant and fetal loss support group for New Jersey residents.
Groups targeted: Parents
Healthcare Providers
Language: English, Spanish
Geographies reached: Northern New JerseyBergen CountyEssex CountyHudson CountyMorris CountyPassaic CountySussex CountyUnion CountyWarren County
Location 1: United States 50 Park Place, Suite 700 Newark NJ 07102
Aims related to stillbirth: Petals aims to improve awareness around the mental health costs of pregnancy and baby loss for women men and couples.
Petals aims to raise awareness of the challenges facing parents who experience baby loss.
Other aims: Petals provide a free specialist counselling service for women, men and couples who experience stillbirth.
Petals raise awareness of the need for specialist psychological support for parents experience stillbirth of a baby.
Petals provide training for health professionals wish to learn about the psychological impact of stillbirth on women, men and couples.
Petals support research into the psychological impact of stillbirth on women men and couples.
Support offered: Petals key function is to provide a specialist counselling service for parents who suffer stillbirth.
We work with our own unique counselling programs that aims to process trauma and coach through grief, working towards a healthy future.
Petals also provide specialist counselling for pregnancy after loss.
Groups targeted: Our counselling support is for women, men and couples who experience loss of a pregnancy of the death of a baby through stillbirth or neonatal death.
Language: English
Geographies reached: South of England, expanding throughout the UK
Aims related to stillbirth: We help grieving children and families after the loss of a close person, including families who lost a child in the perinatal or postnatal period and children who lost a close person (parent, sibling, pet, etc.). We run the Centre of Grief Therapy in Bratislava and provide individual sessions, family sessions, therapeutic groups for children and adolescents, a therapeutic summer camp for bereaved children, and therapeutic weekends for families.
Other aims: We provide home care and palliative care for children with life-limiting and threatening conditions in the region within a 2-hour drive from Bratislava.
Support offered: We run the Centre of Grief Therapy in Bratislava and provide individual sessions, family sessions, therapeutic groups for children and adolescents, a therapeutic summer camp for bereaved children, and therapeutic weekends for families.
Groups targeted: Individual sessions, family sessions, and groups are available to families who live within a reasonable distance to come the Centre (e.g. 2 hrs). Other activities are for families from the whole of Slovakia, specifically the therapeutic summer camp and weekend for bereaved families.
Language: Slovak, English, Czech
Geographies reached:
Location 1: Slovakia Zadunajská cesta 3722/6A Bratislava
Aims related to stillbirth: We offer support, compassion and hope to those parents who have experienced the loss of baby due to miscarriage, stillbirth, or early infant loss. We offer support groups as well as 1:1 peer support.
Other aims: To provide support, compassion, and hope to those who have lost a baby during pregnancy or shortly after birth.
Support offered: We offer a Miscarriage support group, a Stillbirth and Early Infant Loss support group and a Pregnancy After Loss support group.
Groups targeted: Couples, Individuals
Language: English
Geographies reached: Based in Northern NJ/ NYC area however are also currently offering virtual groups open to anyone.
Location 1: United States
Possum Portraits
Website: www.possumportraits.org
Email: info@possumportraits.org
Phone:
Social Media: @possumportraits @mypossumportrait
Aims related to stillbirth: Our aim is to alleviate the distress and suffering parents experience after stillbirth by providing bespoke grief support mementos of their baby for free. Our mementos take the form of memorial keepsake portrait drawings, which our team of professional artists designs in concert with bereaved parents to make sure that the resulting drawing conforms with their commemorative wishes for their baby.
Parents may also choose to share their story with loss on our community forum The Possum Blog, which many do.
Other aims: We also provide an educational resource for families with existing children at the time of loss. Our upcoming children’s picture book “The House in Ollie’s Tummy” (out October 2024) is a new resource to help caregivers explain stillbirth an other types of loss to children. The book contains a resource section for parents and teachers on understanding, recognising and alleviating symptoms of childhood grief in kids.
Support offered: bereavement care
Groups targeted: - families
- bereaved parents
- bereaved siblings
Language: English
Geographies reached: Australia (national)
Location 1: Australia 3/29 Martin Street Brighton Victoria 3186
Aims related to stillbirth: Our online Pregnancy and Infant Loss Support group provides connection for mothers and parents grieving the loss of their baby. Led by PSI trained facilitators, this group helps bereaved mothers and parents find support as well as provides useful information and resources to help them navigate the pain of their loss. Losing a baby can be a lonely experience and this group helps provide an avenue for healing and hope. We are here to help.
Register for a support group: https://www.postpartum.net/get-help/psi-online-support-meetings/
Other aims:
Support offered: Experiencing the loss of a pregnancy, infant, or child brings unimaginable pain and grief, and can make you feel alone and lost. We want you to know that there are good resources for your loss and grief that provide non-judgmental support, information, and connection with others. PSI provides support groups, individual support through our specialized coordinators, and a webpage of information.
https://www.postpartum.net/get-help/loss-grief-in-pregnancy-postpartum/
Groups targeted: We have the following groups:
Pregnancy and Infant Loss Support for Moms
Pregnancy and Infant Loss Support for Parents
Language: English
Geographies reached: All of our groups are free and virtual
Aims related to stillbirth: To support parents who are pregnant after loss, helping them choose hope over fear while nurturing their grief after stillbirth, and other types of pregnancy, infant, and child loss.
Other aims: Pregnancy After Loss Support is dedicated to ensuring that every mom and her partner who is experiencing pregnancy after loss is able to find support and connection among both peers and health care professionals who understand and validate the unique and complex experience of pregnancy after a previous perinatal or child death. Mission Objectives: AWARENESS To improve awareness and spread recognition that pregnancy after loss is a unique experience. ADVOCACY To advocate for the PAL mom’s health and the health of her baby by empowering her to advocate for herself by trusting her motherly instincts. CONNECTION To connect moms to providers and peers for the added support that is needed during a pregnancy after a loss. EDUCATION To educate both moms and healthcare providers about the difference between the anxiety of a normal pregnancy after loss experience and perinatal mood and anxiety disorders so they know when to seek additional support.
Support offered: Pregnancy After Loss App; online magazine; online peer-moderated support groups; local meet-ups; outreach and education; professional conferences; resources; newletter; signposting; Provide information/advice on stillbirths to bereaved parents and on stillbirth parent support for healthcare professionals, informal post-stillbirth counselling for parents and families (e.g. peer support), a space for bereaved parents and families to meet and support each other, a space for bereaved parents and families to tell the stories of their stillborn babies
Groups targeted: Bereaved mothers, fathers, and other bereaved family members, healthcare professionals; We support loss parents who are trying to conceive, pregnant or parenting after the loss of a pregnancy, baby or child.
Language: English
Geographies reached:
Location 1: United States
Pregnancy and Infant Loss Network- Sunnybrook Health Sciences Centre
Website: https://pailnetwork.sunnybrook.ca/
Email: pailnetwork@sunnybrook.ca
Phone: +18883037245
Aims related to stillbirth: The mission of PAIL Network is to improve care and support for families who experience the loss of a pregnancy or infant through high quality evidence-based information, peer-led support programs, health-care provider education, and public education and advocacy.
Other aims: - peer support for families
-memorial events for families
-education for health care professionals who care for families
-advocacy and awareness
Support offered: Mixed Loss Online Group
Second Trimester Loss Specific Online Group
3rd Trimester Loss Specific Online Group
1:1 Phone Support
Living with Your Loss Group
Pregnancy after loss group
parenting through grief
partners in grief
Groups targeted: Infant/Neonatal Loss Specific Online Group
SUID/SIDS Loss Specific Online Group
Termination of Pregnancy Online Group
Pregnancy After Loss Online Group
Partners in Grief Online Support
Language: English, Spanish, Tagalog, Arabic, Punjabi, French, Traditional Chinese
Geographies reached: Ontario, Canada
Location 1: Canada 2075 Bayview AVe Toronto Ontario M4N 3M5
Aims related to stillbirth: Support for loss of a pregnancy. For any reason Stillbirth is one of the reasons people join the support group.
Other aims: A support group in Belgium for the loss of a pregnancy, stillbirth, infant death, conceiving or expecting after a loss. It is a terrible thing to have to go through the loss of a baby in a foreign country away from family and friends. Even worse is not having anyone to speak to about it
Support offered: Support group; Provide information/advice on stillbirths to bereaved parents, informal post-stillbirth counselling for parents and families (e.g. peer support), a space for bereaved parents and families to meet and support each other, a space for bereaved parents and families to tell the stories of their stillborn babies
Groups targeted: Bereaved mothers and fathers; those who have a loss in Belgium - they may leave Belgium and yet remain in the support group. But 90% are Belgium based.
Language: English
Geographies reached:
Location 1: Belgium
Pregnancy Counselling and Care Scotland
Website: https://www.counsellingandcare.co.uk/
Email: info@counsellingandcare.co.uk
Phone: +441315535565
Social Media: @pccscotland (instagram) Pregnancy Counselling & Care - Scotland (Facebook)
Aims related to stillbirth: We offer up to 10 sessions of counselling, free of charge, to clients of any gender who have been affected by stillbirth and loss.
Other aims: We provide counselling sessions to clients (of any gender) struggling with issues to do with fertility, baby loss, pregnancy, birth or or parenthood.
Our material aid service provides practical support to low income families who cannot afford equipment and clothes for a baby or young child.
Support offered: We offer 10 counselling sessions, free of charge with the option to donate afterwards.
Groups targeted:
Language: English
Geographies reached: We are Edinburgh based (in Scotland, UK) and offer support in this area.
Location 1: United Kingdom Gyle Shopping Centre Unit 53 Edinburgh EH12 9JY
Pregnancy Crisis Care (Plymouth & SE Cornwall)
Website: www.pregnancycrisiscare.org.uk
Email: contact@pregnancycrisiscare.org.uk
Phone: +441752246788
Aims related to stillbirth: Provision of free counselling for those facing any pregnancy-related crises or loss.
Individual and couples counselling.
Unlimited sessions to help support through difficult anniversary dates.
Face to face at our centre in Plymouth, and telephone and Zoom video sessions offered.
Other aims: Counselling and support for those facing anxiety within a subsequent pregnancy after loss.
Counselling for any other pregnancy crisis or pregnancy/ baby loss.
Support offered: Free counselling sessions for individuals and couples.
Groups targeted: Mothers and fathers.
Individuals.
Grandparents.
Language: English
Geographies reached: Plymouth, Cornwall, Devon
Location 1: United Kingdom 2nd Floor, Kinterbury House, Kinterbury Street, Kinterbury Street Plymouth Devon PL1 2DG
Aims related to stillbirth: PLIDA’s overriding goal is to support those whose work supports bereaved families. We are committed to serving as leaders in perinatal and neonatal bereavement care by offering the most up-to-date resources available to our members and the communities they serve.
Other aims: PLIDA’s mission is to promote the highest quality of consistent evidence-based perinatal bereavement care for all families who experience the death of a baby.
Support offered: Professional membership organization for health care practitioners and parent advocates.
Provides opportunities for members to share support, resources, and information on implementing the highest standards of perinatal bereavement care.
Develops and maintains educational resources, along with a members-only networking space.
Produces position statements on the emotional aspects of perinatal bereavement care in clinical settings.
Produces practice guidelines that illustrate relationship-based bereavement care.
Maintains a comprehensive list of resources online.
Sponsors a biennial international conference and yearly webinars.
Promotes the provision of comprehensive care for bereaved families after a loss and throughout the continuum of childbearing.
Groups targeted: Perinatal bereavement professionals (nurses, physicians, mental health professionals, social workers, chaplains, child life specialists), researchers and parent advocates.
Language: English
Geographies reached:
Location 1: United States PO Box 770 Locust Grove Virginia 22508
Pregnancy Loss Support Program of the National Council of Jewish Women New York
Aims related to stillbirth: For more than three decades, PLSP has offered free telephone counseling and support groups for parents who have experienced a miscarriage, stillbirth, newborn death or termination for fetal anomalies as well as support for those who are pregnant following a loss. Our programs are open to all regardless of background, religion, gender and sexual orientation. There is absolutely no religious aspect to our support programs, and all faiths are welcome, as are single parents.
Support groups are facilitated by professionally trained and supervised volunteers, all of whom have suffered their own pregnancy loss. PLSP also works to improve the quality of care in the field of perinatal loss in New York City and beyond.
Other aims: The Pregnancy Loss Support Program (PLSP) provides comfort and validation to those experiencing pregnancy loss from the time directly following their loss, and for many years to follow. PLSP also works to improve the quality of care in the field of perinatal loss in New York City and beyond.
Support offered: Free counselling; support programs; support programs for fathers; follow-on support; professional referrals; telephone counselling; support groups, Pregnancy After Loss Support; Provide information/advice on stillbirths to bereaved parents and on stillbirth parent support for healthcare professionals, informal post-stillbirth counselling for parents and families (e.g. peer support), a space for bereaved parents and families to meet and support each other
Groups targeted: Bereaved mothers and fathers, grandparents, healthcare professionals
Aims related to stillbirth: How to cope with grief. How to memorialize your baby. Information about stillbirth.
Other aims: Advocating for Pregnancy and Infant Loss Awareness. Supporting all families and mothers who have dealt with baby loss thru our custom made memory boxes.
Support offered: Memory boxes; Provide information/advice on stillbirths to bereaved parents, a space for bereaved parents and families to meet and support each other, a space for bereaved parents and families to tell the stories of their stillborn babies
Groups targeted: Bereaved mothers, fathers, and other bereaved family members, healthcare professionals, anyone who needs it
Language: English
Geographies reached:
Location 1: United States 13631 Second Street Parlier CA 93648
Aims related to stillbirth: To provide counseling services to women and families with history of stillbirth and newborn deaths
To build capacity and skills of midwives, nurses and doctors who attend to pregnant women in how to communicate and provide acceptable, individualized and professional care to women and families after stillbirth and newborn deaths
To conduct research in stillbirth
To advocate inclusion of issues on stillbirth in national maternal and newborn strategies and activities
To create awareness and conduct public education on prevention of stillbirth
Other aims: Educate the general public on pregnancy and related issues to improve pregnancy outcomes and reduce maternal and newborn deaths
To educate the general public through social media about RMNCAH to improve health status of families
Build capacity of nurses, midwives and doctors in reproductive, maternal, newborn, child and adolescent health
Provide counseling services to adolescents and adults - males and females
Conduct research on health related issues
Write books for training of nurses, midwives and community health nurses in maternal and newborn care
Provide health consultancy services to individuals and organizations
Provide mentoring and coaching services to individuals
Support offered: We provide counseling services to women and families who have suffered stillbirths. We get their details from the hospitals and talk to them and provide them the opportunity to avail themselves of available services.
We provide the families the opportunity to ask questions and talk about their fears - stillbirth is not discussed widely in Ghana among families
We conduct research on stillbirth to identify the magnitude of the problem and possible causes to support the National Health Authorities to take action
We have supported health institutions to set up pregnancy schools which help to improve the communication between midwives, doctors and other health professionals and the pregnant women and their families.
Teach Masters students and Doctors on improving maternal health
Groups targeted: We provide individual and couple counseling services
Women
Fathers
Couples
Siblings
Health care providers - nurses, midwives and doctors
Language: English , Ghanaian dialects - Fanti, Twi, Ga
Geographies reached: We work mainly in Ghana but our education on social media goes outside of Ghana. We have had people reaching us asking about reproductive health issues from different countries including - The Gambia, Nigeria, Sierra Leone, Italy and the USA
Location 1: Ghana 8 Riders Street Takoradi Western Region WS-542-8340
Location 2: Ghana New Ashongman Musuko Accra Ga East GE 2539753
Aims related to stillbirth: End preventable stillbirth in the United States by 2035.
Other aims: We are a diverse coalition of bereaved parents from around the United States, working closely with trailblazing medical researchers, courageous doctors, and other hardworking allies to drive down the incidence of stillbirth in the United States over the next decade by any means necessary.
Support offered: Empowered Pregnancy Tools, Support Resources for Loss, Pregnancy After Loss Resources - all resources are for families and providers.
Groups targeted: All pregnant people, mothers, fathers, partners, medical providers, doulas, midwives, OBs, MFMs
Language: English
Geographies reached: United States but the information is applicable worldwide
Location 1: United States 34 Quicks Lane Katonah NY 10536
Aims related to stillbirth: Acompañarnos mutuamente profesionales y familias en duelo Formación de profesionales, estudiantes... Investigación y divulgación de temas relacionados con la muerte y el duelo perinatal / Accompany professionals and families in pain, train professionals and students. Research into themes related to perinatal death and grief
Other aims:
Support offered: Grupo de apoyo; formación / support group; training; Provide information/advice on stillbirths to bereaved parents and on stillbirth parent support for healthcare professionals and employers, informal post-stillbirth counselling for parents and families (e.g. peer support), a space for bereaved parents and families to meet and support each other, a space for bereaved parents and families to tell the stories of their stillborn babies
Groups targeted: Bereaved mothers, fathers, and other bereaved family members, healthcare professionals, employers, anyone who needs it
Aims related to stillbirth: Red Nose has a 40‐year track record of success in educating parents and health professionals through the delivery of public health promotion campaigns and targeted training for health professionals in Safe Sleep. These campaigns have spanned metropolitan, rural/regional areas, and Aboriginal and Torres Strait Islander communities and have resulted in an 85 per cent reduction in SIDS – making it one of Australia’s most successful public health campaigns. The merge of Red Nose and Sands creates the only national provider of specialist services for parents and families bereaved by the loss of a pregnancy, stillbirth, or the sudden and unexpected death of a baby or child. Core to our organisation is providing support to bereaved parents and their families at any time in the journey of dealing with the death of their baby or child. The organisation’s Best Practice Bereavement Services Framework is informed by our collective bereavement expertise and lived experience and is built on a combination of professional and peer support, therapeutic interventions, risk management and prevention of prolonged and complex grief. To support anyone impacted by the death of a baby or child.
Other aims:
Support offered: Signposting to resources; information and resources; online chat; blogs; online communities; telephone and online support; support library; grief and loss 24/7 support line; Provide information/advice on stillbirths to bereaved parents and on stillbirth parent support for healthcare professionals and employers, professional post-stillbirth counselling for parents and families, informal post-stillbirth counselling for parents and families (e.g. peer support), a space for bereaved parents and families to meet and support each other, a space for bereaved parents and families to tell the stories of their stillborn babies
Groups targeted: Bereaved mothers, fathers, and other bereaved family members, healthcare professionals, employers, anyone who needs it
Language: English
Geographies reached: National (Australia)
Location 1: Australia 670 Canterbury Road Surrey Hills Victoria 3127
Aims related to stillbirth: Reflect is a free support service in North Yorkshire for those in need of support after experiencing pregnancy or neonatal loss.
Other aims: Reflect is a free support service in North Yorkshire for anyone in need of support after experiencing a stillbirth.
We are committed…
…to provide a confidential service to all clients
…to provide care and support to those who have experienced a pregnancy or neonatal loss
…to do this in a caring, safe and supportive environment; being truthful and respecting every individual
…and at all times offer hope
Support offered: Free care and support; structured support programme; one-to-one support; remote support via telephone and video; in person face-to-face support; professional post-stillbirth therapy for parents
We provide individual or couples support to those who have
experienced pregnancy loss through our structured support programme ‘Reflections: Walking through loss’.
Groups targeted: Bereaved mothers and fathers
Language: English
Geographies reached: North Yorkshire, UK
Location 1: United Kingdom The Gateway Centre, Front Street Acomb, York North Yorkshire YO24 3BZ
Aims related to stillbirth: Remember My Baby provides remembrance photography to parents facing the loss of their baby before, during or shortly after birth. Volunteer photographers go into hospitals at short notice to capture images which are provided as black and white digital files free of charge 4-6 weeks later. RMB also provides an image editing service for families who could not access the remembrance photography service at the time of their need.
Other aims:
Support offered: RMB provides remembrance photography and digital retouching services to families facing the loss of their baby before, during or shortly after birth.
Groups targeted:
Language: English
Geographies reached: Remember My Baby operates throughout the UK, though availability varies from are to area and cannot be guaranteed.
Aims related to stillbirth: To raise money for stillbirth research To support be traced couples and families. To advocate and open the discussion around stillbirth in the community
Other aims:
Support offered: Information; signposting; memories; sharing stories; Provide a space for bereaved parents and families to meet and support each other,Provide a space for bereaved parents and families to tell the stories of their stillborn babies
Groups targeted: Anyone who needs it/ no specific group
Aims related to stillbirth: Grief education
Support following loss
Perinatal grief education and training for health professionals
Other aims: RTZ HOPE provides compassionate and holistic support for people who have experienced unimaginable loss during their journey to parenthood.
RTZ HOPE also supports perinatal healthcare providers with a collection of educational opportunities and clinical resources informed by the experiences of bereaved families all over the world in order to create confidence in providing gentle, informed care and meet the varied needs of loss parents.
Support offered: - Virtual support groups and workshops
- In-person healing retreats
- Information and resources related to grieving and healing after loss (website, blog)
- Perinatal bereavement materials for hospitals and providers
- Webinar library, for both parents and providers
- Pregnancy and Infant Loss Directory
Groups targeted: - Pregnancy and infant loss
- Persons of color
- LGBTQ+
- Recurrent loss, infertility, and secondary infertility
- Termination for medical reasons
- Pregnancy after loss
- Parenting after loss
Aims related to stillbirth: We provide monthly in person support guiding our members in their grief journey.
Other aims: We are a pregnancy loss support group in Metro West Massachusetts, USA. We support families experiencing miscarriage, stillbirth and neonatal death.
Support offered: We offer monthly meetings on the second Wednesday of every month. We meet at 7:30 pm in the first floor conference room, 200 Unicorn Park Drive, Woburn, MA. For updated group details contact our group via email webmaster@rindyshope.org or donnamcd@me.com or call 978-663-5477.
Submitted 07/24
Groups targeted:
Language: English
Geographies reached: Metro West, Boston Massachusetts
Location 1: United States 200 Unicorn Park Drive, First Floor Conference Room Woburn Massachusetts
Aims related to stillbirth: The aim of our Pregnancy and Birth theme is to improve outcomes for mothers and babies by understanding the molecular, cellular and physiological mechanisms involved in placental and fetal growth, and maternal health in pregnancy, so we can devise effective interventions and treatments.
https://www.adelaide.edu.au/robinson-research-institute/research/themes#pregnancy-and-birth
Other aims: Our vision is life-time health for all children and families, through research excellence.
Support offered: RRI team leaders include Prof Gus Dekker, whose research in placental development has led the field in predicting and preventing adverse pregnancy outcome with an emphasis on the role of stress, drugs, and poor nutrition, and Associate Professor Philippa Middleton, a perinatal epidemiologist and implementation scientist with research interests in preterm birth, nutrition, stillbirth and diabetes in pregnancy.
The RRI collaborates with Still Aware – Australia's first stillbirth awareness charity – to identify gaps in stillbirth research and potential research initiatives.
Groups targeted:
Language: English
Geographies reached:
Location 1: Australia 55 King William Rd North Adelaide South Australia 5006
Aims related to stillbirth: To save babies' lives
To ensure that anyone affected by the death of a baby receives the care and support that they need
Other aims: To support anyone affected by the death of a baby; To ensure that bereaved parents and families receive excellent and equal bereavement care; To reduce the number of babies dying before, during or after birth
Support offered: National bereavement support services through our Freephone helpline, mobile app, online community and resources, and local UK-wide network of around 100 regional support groups; Provide information/advice on stillbirths to bereaved parents and on stillbirth parent support for healthcare professionals and employers, informal post-stillbirth counselling for parents and families (e.g. peer support), a space for bereaved parents and families to meet and support each other, a space for bereaved parents and families to tell the stories of their stillborn babies
Groups targeted: Bereaved mothers, fathers, and other bereaved family members, healthcare professionals, employers, anyone who needs it
Language: English
Geographies reached: UK wide
Location 1: United Kingdom 10-18 Union Street London SE1 1SZ
Aims related to stillbirth: Sands NZ goals:
To support parents & families who have experienced stillbirth, newborn death, miscarriage or other forms of baby loss;
To provide parents and families with information to assist them to make informed decisions regarding their loss;
To provide ongoing education to health professionals and other caregivers about the experience of baby loss;
To raise public awareness of Sands, the service we provide and issues relating to baby loss;
To promote the implementation of health care policies in accord with our philosophical statement;
To promote research into the causes and consequences of baby loss;
To network with other organisations which hold similar aims.
Other aims: Sands NZ Philosophical Statement:
That the death of a baby through reproductive loss often has a significant and lifelong impact on the lives of women, their partners and families;
That parents and their families must be supported through recognition, acceptance and acknowledgment of their diverse experience of loss;
That partnerships with health practitioners, community groups, grief and bereavement services, the Government and wider community are crucial to raising awareness of the experience and impact of stillbirth and newborn death;
That the diversity of individuals with regard to culture, religion, socio-economic standing, gender and uniqueness of grief reactions must be acknowledged and respected.
Support offered: Information brochures
Local and online support group meetings
Phone support
Online chat groups
Social media groups
National conferences
National training for Sands members and health professionals
Family events
Recognition and events during Baby Loss Awareness Week
Supplying memory boxes and items to hospitals
Assistance with creating memories
Aims related to stillbirth: * visualizar y asistir a las madres y sus familias desde el momento en que reciben la noticia de la muerte fetal
* visibilizar la necesidad de capacitaciones adecuadas a las personas que asisten a las madres en duelo
* Acompañar durante y despues del proceso de despedida de sus niños y asegurar el acompañamiento necesario para un duelo respetado y saludable.
Other aims: Crear politicas de atencion humanizada,
Creacion de leyes que dignifiquen a través de la identidad a los mortinatos y sus familias.
Sostenimientos de proyectos que sean parte de la atencion humanizada y creacion de recuerdos.
Acompañamiento digno en el proceso de duelo.
Support offered: Cajita de sepultura digna para mortinatos menores de 20 semanas
Fotografia de despedia y conmemoración.
Asesoramiento psicológico.
Asesoramiento legal.
Capacitación en abordaje humanizado para personal sanitario.
Groups targeted: * solo madres
* Parejas
* Abuelos
* Familias en general
Aims related to stillbirth: Share's mission is to support families touched by the death of a baby through miscarriage, stillbirth, or infant loss. Share provides free grief support materials to parents and grandparents. Share has a free weekly online support group that is facilitated by the Share staff. Share provides numerous memorial events throughout the year. Share provides professional accredited training for caregivers.
Other aims:
Support offered: Share provides free grief support materials to parents and grandparents. Share has a free weekly online support group that is facilitated by the Share staff. Share provides numerous memorial events throughout the year. Share provides professional accredited training for caregivers.
Groups targeted: Share provides a spring mothers and grandmothers bracelet making event. Share has a fall grandparents event. Share has couples events, with a focus on fathers and numerous October awareness events.
Language: English and Spanish
Geographies reached: The National Share office has events for the local St. Louis and St. Charles county area. Share's online support group supports families across the U.S. Share has chapters across the U.S. providing support groups and resources for their communities.
Location 1: United States 402 Jackson Street St. Charles MO 63301
Aims related to stillbirth: Sharing Parents offers support groups, phone support, community events, and outreach for pregnancy and infant loss
Other aims:
Support offered: Support group; Navigating Grief series; monthly grief support meetings; subsequent pregnancy support; telephone support; closed Facebook groups; October memorial; information signposting; Provide information/advice on stillbirths to bereaved parents and on stillbirth parent support for healthcare professionals, informal post-stillbirth counselling for parents and families (e.g. peer support), a space for bereaved parents and families to meet and support each other, a space for bereaved parents and families to tell the stories of their stillborn babies
Groups targeted: Bereaved mothers, fathers, and other bereaved family members, healthcare professionals, anyone who needs it
Aims related to stillbirth: SiMBA responds to the needs of those affected by the loss of a baby. We exist to support families in the UK and Ireland whose baby has died at any stage of pregnancy or around the time of birth, no matter how recent or long ago the loss.
We:
Donate our Memory Boxes so families can create memories of precious time spent together
Refurbish Family Rooms in hospitals
Install memorial Trees of Tranquillity
Hold awareness events such as Butterfly Remembrances and the annual Wave of Light service.
Enhance support available through our healthcare professional training.
Other aims:
Support offered: Memory Boxes; Support Groups; Family Rooms within maternity units, Trees of Tranquility; Provide a space for bereaved parents and families to meet and support each other, a space for bereaved parents and families to tell the stories of their stillborn babies
Groups targeted: Bereaved mothers, fathers, and other bereaved family members, healthcare professionals
Language: English
Geographies reached: All of the UK and Ireland
Location 1: United Kingdom Suite 6&7 Colliery Court Mcsence Business Park Mayfield EH22 5TA
SLOW
Website: https://slowgroup.co.uk/
Email: info@slowgroup.co.uk
Phone: 07532 423 674
Aims related to stillbirth: To promote and protect the good health of bereaved parents through the provision of self-help; The promotion of social inclusion by offering a sanctuary for bereaved parents to relieve the needs of those people and assist them to integrate back into society
Other aims:
Support offered: Regular meetings in North and South London; SLOWsibs siblings workshops for bereaved children; provide expert grief training for professionals; Provide a space for bereaved parents and families to meet and support each other, a space for bereaved parents and families to tell the stories of their stillborn babies
Aims related to stillbirth: - To promote sound mental health for mothers, babies, and the whole family during the perinatal period
-To train family mental health therapists to provide preventative health during the perinatal period
-To raise awareness through our International Conference on Maternal Mental Health in Africa (ICAMMHA)
-To increase public mental health literacy and education
-To provide supportive services through family based intervention
-To conduct Research and Advocacy activities
-Improve infrastructure for bereaved families
Other aims: SPANS has 5 programming focus areas, namely:
a) Training
b) Conference International Conference on Maternal Mental Health in Africa (ICAMMHA)
c) Family Based Interventions (family therapy)
d) Advocacy
e) Community based interventions
Support offered: SPANS is going to:
-To train family mental health therapist
-Host its International Conference on Maternal Mental Health in Africa (ICAMMHA)
-To strengthening early identification, support, referral, home visits and empower families
-To increase public mental health literacy and education
-To provide supportive services through family based intervention
-To conduct Research and Advocacy activities
-Improve infrastructure for bereaved families.
Groups targeted: SPANS focus groups will be mothers to be, fathers to be, mothers, fathers and the whole family.
Language: English, Shona
Geographies reached: Mashonaland East, Masvingo, and shall cover the whole country with funds permits
Location 1: Zimbabwe Ruwa Clinic, Goromonzi District Harare Mashonaland East Province 263
Aims related to stillbirth: Before SOFT UK was set-up in 1991, most families didn't know where to turn when they received a diagnosis of Trisomy 13 or Trisomy 18. Their experience of Trisomy was hugely isolating and they felt completely alone. Our primary mission at SOFT UK is to ensure families can now access support when they need it. SOFT UK Peer Support Volunteers are parents with experience of receiving a diagnosis of Trisomy 13, 18 or a related condition. They are specially trained to provide information and support to new members. We also run our SOFT FAMILIES Facebook group enabling SOFT UK members to connect with each other online.
Other aims:
Support offered: Creating memories after a loss; resources and information; online dedication page for babies who are no longer with us; Provide information/advice on stillbirths to bereaved parents and on stillbirth parent support for healthcare professionals, informal post-stillbirth counselling for parents and families (e.g. peer support), a space for bereaved parents and families to meet and support each other, a space for bereaved parents and families to tell the stories of their stillborn babies
Groups targeted: Families affected by Trisomy 13, 18 and related conditions; bereaved mothers, fathers, and other bereaved family members, healthcare professionals
Aims related to stillbirth: Spädbarnsfondens vision är att inget spädbarn ska dö av förhållanden som kan upptäckas och där medicinsk kunskap för åtgärd finns tillgänglig. Alla föräldrar till ett barn som dött under graviditet eller förlossning samt under det första levnadsåret, ska mötas av professionell vård och bemötande från hälso- och sjukvårdspersonal och förståelse från omgivningen. / No infant should die from conditions that can be detected and where medical knowledge for action is available; all parents of a child who has died during pregnancy or childbirth and during the first year of life, must be met by professional care and treatment from healthcare staff and understanding from the environment; Our principal purpose is to support parents, and families, who have experienced the heavy loss of a child before its birth, or during its first year. We also spread information about infant death, and offer different types of education. In addition, we also award research grants to promising studies aiming to reduce the infant death toll, or to develop improved methods for treating those afflicted
Other aims: Spädbarnsfondens vision är att inget spädbarn ska dö av förhållanden som kan upptäckas och där medicinsk kunskap för åtgärd finns tillgänglig.
Support offered: Slutet forum; Stödcirkeln; information; forska; Online forum; support circle; information; research; Provide information/advice on stillbirths to bereaved parents and on stillbirth parent support for healthcare professionals and employers, informal post-stillbirth counselling for parents and families (e.g. peer support), a space for bereaved parents and families to meet and support each other, a space for bereaved parents and families to tell the stories of their stillborn babies
Groups targeted: Bereaved mothers, fathers, and other bereaved family members, healthcare professionals, employers, anyone who needs it
Aims related to stillbirth: The Star Legacy Foundation is a 501(c)(3) non-profit organization dedicated to reducing pregnancy loss/neonatal death and improving care for families who experience such tragedies. We are a community of families, health professionals, researchers, policy makers, and individuals dedicated to helping every pregnancy have a happy ending.
OUR MISSIONTo increase awareness, support research, promote education, and encourage advocacy and family support regarding stillbirth, pregnancy loss, and neonatal death.
OUR VISION We believe there is great hope for the future to prevent many stillbirths and neonatal deaths in the United States and around the world. We envision that through the utilization of technology, education, grassroots efforts, and partnership, we can empower families and (cont)
Other aims: health professionals to identify and protect vulnerable babies.
Support offered: Research
Education
Family Support
Advocacy
Awareness
Groups targeted:
Language: English, Spanish - others available with translation
Geographies reached: Primarily nationwide in the US - but generally across the globe. We have numerous chapters across the united states.
Location 1: United States 6400 Flying Cloud Drive 225 Eden Prairie Minnesota 55344
Aims related to stillbirth: The Star Legacy Foundation is a 501(c)(3) non-profit organization dedicated to reducing pregnancy loss, stillbirth, and neonatal death and improving care for families who experience such tragedies. We are a community of families, health professionals, researchers, policymakers, and individuals dedicated to helping every pregnancy have a happy ending.
Our mission is to increase awareness, support research, promote education, and encourage family support regarding stillbirth, pregnancy loss, and neonatal death.
Other aims:
Support offered: Free online support groups for bereaved parents, fathers, grandparents, Parenting After Loss, and Pregnancy After Loss (in English & Spanish)
Free online Pregnancy After Loss Childbirth Education classes
Support Line
Free printed bereavement materials in English, Spanish, Hmong, and Somali
Free Safe Pregnancy materials for families and health professionals to increase awareness of stillbirth prevention opportunities. Available in English, Spanish, Hmong, Somali, Turkish, French, and Arabic. Additional languages available upon request.
Continuing education workshops for health professionals
Stillbirth Summit - 3-day, international research conference held every two years
Pregnancy Research Project - opportunity for all families to contribute to current research aimed at stillbirth
Groups targeted:
Language: English, Spanish
Geographies reached:
Location 1: United States 6400 Flying Cloud Drive, Suite 225, Eden Prairie, MN 55344. Suite 225 Eden Prairie Minnesota
Aims related to stillbirth: Providing Support and Comfort: We aim to offer compassionate support to parents and families who have experienced the loss of a child due to stillbirth. Through peer support groups, counseling resources, and memorial activities, we strive to create a safe and supportive environment for grieving families.
Raising Awareness: We work to increase public awareness of stillbirth, breaking the stigma and silence around this form of loss. By engaging with local communities, healthcare providers, and the media, we encourage open conversations to foster understanding and support.
Other aims:
Support offered: Emotional Support Groups: We offer peer support groups where bereaved parents can share their experiences, connect with others who have gone through similar losses, and find comfort in a supportive community.
Memorial Events and Remembrance Services: We organize annual remembrance ceremonies giving families a meaningful way to honor and remember their children.
Community Awareness Programs: Our organization conducts events and activities to raise awareness of stillbirth, educate the public, and foster greater understanding and support within our community.
Groups targeted: Open Grief Support Group: A general support group for all bereaved parents and families, offering a compassionate space to share their grief and connect with others.
Children’s Grief Group: Specifically for siblings and other children related to the lost child, helping them process their grief in an age-appropriate, supportive setting.
Pregnancy After Loss Group: A group for parents experiencing a subsequent pregnancy, offering a space to share the complex emotions and concerns that often accompany pregnancy after loss.
Group for Unfulfilled Desire for Children: Support for individuals and couples coping with the grief of infertility and the emotional impact of an unfulfilled wish for children.
Men’s Group: A dedicated group for fathers and men affected by the loss, recognizing their u
Language: English, German
Geographies reached: Germany - Lower Saxony
Location 1: Germany Am Friedhof 6 Achim Niedersachsen 28832
Aims related to stillbirth: Our main aim is to engage in advocacy work by creating awareness on mental health wellness, perinatal loss and bereavement support.
Other aims:
Support offered: Child loss bereavement support, virtual support groups, Provide information/advice on stillbirth parent support for healthcare professionals and employers, professional post-stillbirth counselling for parents and families, informal post-stillbirth counselling for parents and families (e.g. peer support), a space for bereaved parents and families to meet and support each other, a space for bereaved parents and families to tell the stories of their stillborn babies.
Groups targeted: Bereaved mothers, fathers, and other bereaved family members, healthcare professionals, employers
Language: English
Geographies reached: Throughout Africa
Location 1: Kenya
Still Aware
Website: www.stillaware.org
Email: hello@stillaware.org
Phone: +61883000980
Social Media: Still_Aware
Aims related to stillbirth: Still Aware are committed to raising awareness of the very real statistics of stillbirth in Australia working to end preventable stillbirth. We educate clinicians, mothers and families about stillbirth prevention and promote open communication. We encourage and support dialogue around the realities of loss, in order to break the silence and taboo surrounding stillbirth.
Still Aware is invested in sharing stillbirth research and actively lobbies for stillbirth to be listed and remain on the policy agenda at a national level. We continue to work with key researchers in the field to gather and report data of care provisions already offered internationally, but which are not offered to Australian patients.
Other aims: At Still Aware our focus is to bring about much needed awareness to the tragic event of a baby born still.
Every year more than 2000 babies are born still in Australia.
Daily 6 babies are born still in Australia…that’s one baby, one family, every 5 hours.
For every baby that dies of Sudden Infant Death Syndrome (SIDS), 35 are stillborn in Australia [1]
Still Aware was formed by mother to a baby born still, at 9 months in South Australia. Alfie Foord-Heath was born without breath on February 12, 2014. With no rhyme or reason for the death of this healthy baby girl, her mother and father – under the guidance of the Still Aware Board and Clinical Advisory Board, with your help – seek to change how we talk about stillbirth prior to the tragedy, educating for awareness and raising awareness f
Support offered: Still Aware\'s Clinical Training offers advice on how to talk to women about stillbirth prevention, how to better understand fetal movements, and how to effectively communicate with expectant parents. Still Aware translates evidence-based research into easy-to-understand, measurable tools for implementation in clinical and consumer practice.
Groups targeted: We focus on everyone related to Stillbirth
Language: english
Geographies reached: Australia wide
Location 1: Australia 18 Grenfell Street Adelaide SA 5000
Stillbirth Foundation Australia
Website: https://stillbirthfoundation.org.au/
Email: office@stillbirthfoundation.org.au
Phone: +61295579070
Aims related to stillbirth: The Stillbirth Foundation Australia was established in 2005 to raise funds to reduce the incidence and impact of stillbirth through research, education and advocacy.
Other aims:
Support offered: Access to a supportive community of families who have experienced baby loss.
Access to the latest information and support for parents and families who experience stillbirth.
Opportunities for families to get involved in research activities.
Support of events to bring parents, families, researchers and clinicians together with the aim to improve our understanding of the impact of stillbirth on our community.
Provision of research grants and support of research activities.
Advocacy to government for better understanding, provisions and support for families affected by stillbirth.
Education via multiple media platforms including social media, podcasts, television and print media.
Groups targeted:
Language: English
Geographies reached: Stillbirth Foundation Australia programs and activities are conducted within Australia.
Stillbirth Foundation Australia grants are only available to Australian registered and based organizations.
The Stillbirth Foundation Australia is a supportive partner for other groups in the Asia Pacific region.
Location 1: Australia Westbourne Street St Leonards NSW
Aims related to stillbirth: Count every stillbirth
Increase awareness
Improve quality of care during pregnancy and childbirth
Provide bereavement care
Other aims: We are a non-profit organization consisting of health care professionals, researchers, and individuals who have come together with the aim of reducing still births and improving care for families who experience such tragedies.
Support offered: 1.Holding monthly focussed webinars on important causes of stillbirths
2. Training pathologists in perinatal pathology
3. Training general practitioners in evidence-based workup of a case of stillbirth
4. Guiding bereaved parents asking for support in next pregnancy
5. Collaborating with local OBGYN societies for creating awareness.
Groups targeted: Bereaved parents
Language: english, hindi, urdu
Geographies reached: India Uttar Pradesh
Location 1: India B-2249, Sector 20, B Block, Indiranagar Lucknow Uttar Pradesh 226016
Aims related to stillbirth: perinatal mortality instead of stillbirth
Other aims: support bereaved parents and others who are affected by the death of a baby and promote the best possible care for them.
Support offered: Bereavement support (by email)
Leaflets (online, some in print) on:
- Saying goodbye to your baby
- The funeral of your baby
- Your relationship after losing your baby
- Research after the death of a baby
- Supporting children after losing a baby
- Returning to work after losing a baby
- Long lost grief
- For grandparents
- For fathers
- For family and friends
- Termination of pregnancy for a wanted baby
- For Colleagues and Employers
- For Parents of Multiple Births
- Pregnancy after losing your baby
Activities during baby Loss Awareness Week
Parents can name their baby on our website
Blogs on social media
Playlist
List with books and films
Overview of memorial spaces
information and webshop for professionals
Specific maternity file for postpartum care
Groups targeted:
Language: Dutch language
Geographies reached: Mostly Dutch speaking parents and others who are affected by the death of a babyWe are investigating the possibilities for support in other languages
Location 1: Netherlands PO Box 4012 Rotterdam Zuid Holland 3006 AA
Sufficient Grace Ministries: Perinatal Hospice & Bereavement Support Services
Aims related to stillbirth: Sufficient Grace Ministries provides global and local support and resources for 1000+ grieving families enduring miscarriage, stillbirth, infant loss, and those facing a life-limiting prenatal diagnosis. *Virtual and in-person support from professionally-trained comfort doulas and remembrance photographers with 24-hour availability who will attend the birth, supporting the parents and will help foster bonding and memory-making during baby's brief life. *Resources and specifically-designed Dreams of You memory-making materials shipped worldwide. *Walking With You Bereavement support groups both online and in-person *CEU-approved Medical Professionals Training - Parent-centered Perinatal Hospice and Bereavement Support Services, emphasizing compassionate care for grieving families.
Other aims: In addition to the services mentioned above, Sufficient Grace Ministries provides perinatal hospice services, both in our local footprint (in-person) throughout Ohio and parts of Michigan and globally through our virtual support services. *Perinatal hospice support and birth planning for families receiving a life-limiting diagnosis in pregnancy and emergent support for those who experience the loss of a baby in any gestation
Support offered: see above
Groups targeted: We support all members of the family as well as medical professionals who are impacted by the loss of a baby or young child.
Language: English (some resources in Arabic and Spanish)
Geographies reached: Global - virtual perinatal hospice and bereavement support from comfort doulas, memory-making resources, and virtual training for medical professionals Entire state of Ohio and parts of Michigan - In-person and virtual support from our comfort doulas and
Location 1: United States 407 S Stearns Ave Deshler Ohio 43516
Aims related to stillbirth: We support Minnesota families grieving the loss of their child from stillbirth. We provide parents with financial assistance for hardships related to their loss and provide healing resources to help them move forward.
Other aims: The BeliEve Foundation provides immediate practical financial assistance and ongoing emotional support resources to grieving families in Minnesota.
Support offered: Financial support
Grief support resources
Groups targeted:
Language: English
Geographies reached: Minnesota
Location 1: United States 1907 Wayzata Blvd, Suite 180 Wayzata MN 55391
Aims related to stillbirth: Our mission is to improve outcomes of pregnancy, childbirth, prematurity, and infancy, as well as aid in the grieving process through financial assistance, education, and advocacy.
Our financial assistance program is what we are best known for and we provide financial help to families struggling financially due to high-risk or complicated pregnancies, NICU stays, or loss.
Other aims: To improve outcomes of pregnancy, childbirth, prematurity, and infancy, as well as aid in the impact of loss through financial assistance, education, and advocacy
Support offered: Financial assistance to bereaved parents and families; education; advocacy; wall of hope
Groups targeted: Bereaved mothers, fathers, and other bereaved family members; families dealing with high-risk or complicated pregnancies, NICU stays, or loss
Language: English and Spanish
Geographies reached: Nationwide in the United States
Location 1: United States 53 West Jackson, Suite 530 Chicago Illinois 60604
The Compassionate Friends Australia
Website: https://tcfa.org.au/
Email: info@tcfnsw.org.au
Phone: +61419949693
Aims related to stillbirth: The primary purpose of The Compassionate Friends is to assist bereaved families in the rebuilding of their lives after the death of their child, of any age and to support their efforts to achieve emotional and mental health.
Other aims: The Compassionate Friends (TCF) is a charitable organisation consisting of bereaved parents, siblings and grandparents. We offer support, understanding and care to other bereaved families who have suffered the death of a child or children of any age and from any cause.
Contact can be made in a variety of ways, such as:
- Drop-in centres
- 24 hr grief support number
- Support groups
- Email
- Online
Support offered: - Drop-in centres
- 24 hr grief support
- Support groups
- Email
- Online
Groups targeted:
Language: English
Geographies reached: Australia
Location 1: Australia
The Compassionate Friends of Canada
Website: www.tcfcanada.net
Email: nationaloffice@tcfcanada.net
Phone: +18668230141
Social Media: Closed Facebook groups available through website
Aims related to stillbirth: The Compassionate Friends offers peer support to parents and families who are grieving the death of a child at any age, from any cause.
Other aims: The Compassionate Friends is an international, non-profit, peer support organization, offering friendship, understanding, grief education and hope for the future to all families who are grieving the death of a child at any age, from any cause.
Support offered: The Compassionate Friends offers peer support to parents and families who are grieving the death of a child at any age, from any cause, including miscarriage, post-natal, and stillbirth.
There are in person support group meetings in chapters across the country as well as online virtual support group meetings.
All information available on our national website
www.tcfcanada.net
Groups targeted: Peer support is primarily targeted to bereaved parents; grandparents and siblings are welcome to participate.
Language: Primarily English, French available in some locations
Geographies reached: The Compassionate Friends of Canada has over 40 Chapters across Canada. Locations and contact details are listed on our website www.tcfcanada.net.
Aims related to stillbirth: We support bereaved parents, siblings and grandparents after the death of a child (any age, any cause).
Other aims: TCFV supports parents, siblings and grandparents after the loss of a child from any age and from any cause. Many of our members have lost a baby to stillbirth.
We provide peer to peer support, all our phone responders and support group leaders are all bereaved.
Support offered: 24 hr, 365 telephone support
Mon-Fri from 9:30am - 4.30pm drop in centre
Formal Support Group
Social Support Group (morning coffee, dinners)
Art Therapy Groups, both face to face and via Zoom
Social Walking Group
Various functions throughout the year, Mother\'s Day High Tea, Walk to Remember, Candle Lighting Ceremony, Galas, Open Days at the Centre
Library stocked with books relating to grief including novels and self help, personal journey and lots of brochures and information relating to grief
Groups targeted: Additional to our general support groups (open to individuals bereaved of a child, sibling or grandchild) we have a men\'s grief-specific group, a sibling grief-specific group, and a suicide-specific group.
Language: English
Geographies reached: We are based in Canterbury, Melbourne, Victoria, Australia and support people throughout the State of Victoria and Tasmania. We are part of a worldwide organisation.
Location 1: Australia 229 Canterbury Road Melbourne Victoria 3126
Aims related to stillbirth: Our commitment remains steadfast in supporting hospital maternity units by providing bespoke equipment to enhance bereavement facilities, empowering midwives to deliver personalized care during difficult times. Additionally, we strive to elevate the standard of care by offering specialized grief training programs for midwives and healthcare professionals.
Other aims: Providing support for parents during their stay in hospital with AbiCots, CuddleCots, memory boxes, resources and providing a suitable environment for the healing journey
Support offered: Resources and equipment for bereavement suites, resources for parents ,memory boxes, planting trees for memorial garden, training for healthcare staff.
Aims related to stillbirth: The Raymee Grief Center provides free one-on-one Grief Consultations and Grief support groups for individuals and families who are affected by grief. Run by therapists at The LightHouse Arabia, the center can help you to understand what to expect from grief, how grief can impact you, and how to heal you and your family.
We run our free of charge monthly grief support group "Little Lifetimes" for pregnancy and infant loss. Prior to this support group, we provide parents with a one-to-one confidential, 60-minute, free grief consultation. During this session, individuals will gain a deeper understanding of what grief is, what to expect from it, and how to heal through it.
Other aims: Same as below
Support offered: Free of charge one-on-one 60 minute grief consultations.
Free of charge monthly grief support group for pregnancy and infant loss.
Therapy sessions with experienced therapists.
Groups targeted:
Language: English
Geographies reached: Our monthly support groups and individual grief consultations are currently held online, and so are open to individuals all around the world.
Location 1: United Arab Emirates 821 Al Wasl Rd., Al Safa 2 Villa no 1,2,5 and 6 Dubai Dubai 334273
Aims related to stillbirth: To promote and assist in research and the implementation of best practice to identify the causes and help reduce the incidence of the death of a baby in the uterus, at birth or soon after birth.
Other aims: To promote psychological, emotional and physical well-being of parents, their families and friends when a baby dies in the uterus, at birth or soon after birth, by:
a) Supporting and promoting information to bereaved parents, their families and friends.
b) Working collaboratively to improve and enhance professional practice with health and social care professionals for the benefit of bereaved parents and their families.
Support offered: 1-2-1 Babyloss Support Service
Monthly Support Meeting
Memory Boxes
Pregnancy After Loss Support
Rainbow Baby Group
Support for Men
Support for Children
Support for Professionals
Groups targeted: All family members and friends
Language: English
Geographies reached: West Midlands, Midlands, Warwickshire
Location 1: United Kingdom 10 Fernhill Court Balsall Common West Midlands CV7 7FR
Aims related to stillbirth: The Mariposa Trust is a global support organisation dedicated to supporting people affected by baby loss. Anyone who suffers the loss of a baby through stillbirth, which in the UK is after 24-weeks gestation, in the US after 20-weeks, or in line with each country's stillbirth criteria.
The charity looks to provide resources, befrienders, online support and more, from the point someone finds out they have or will be losing their baby through stillbirth, and for as long as people require support. Grief and loss are a lifelong journey and the charity looks to walk alongside people on this journey.
Other aims: The Mariposa Trust provides support to anyone affected by baby loss, whether that be at any stage of pregnancy, at birth or in infancy, and whether the loss is recent or historic.
The support is also not restricted to the parent or parents affected by the loss, and full support is available to children, siblings, grandparents, extended family and friends, as baby loss affects complete communities, not just parents.
The charity has 6 support divisions that provide support accessed by over 50,000 people a week globally, all of which is provided for free.
Support offered: Resources
Befrienders
Online Support
Information and Advice
Groups targeted: The charity provides support for everyone affected by baby loss, including extended family and friends. The charity has specific projects and campaigns including 'Dads Matter Too', which aims to encourage men to seek support and assistance following loss.
Language: English
Geographies reached: The charity's head office is located in the UK, but operates as a 501c3 Not for Profit called 'Mariposa International' in the US, and provides support and resources globally.
Location 1: United Kingdom The Mariposa Trust C/O CCEM, PO Box 6885 Stratford Upon Avon CV37 1WG
Location 2: United Kingdom Mariposa International, 801 US-1 North Palm Beach Florida 33408
Location 3: United Kingdom 20-22 Wenlock Rd London N17GU
The Perinatal Bereavement Program at Good Samaritan Hospital
Aims related to stillbirth: We offer support groups for Stillbirth as well as support groups for Grandparents/family and friends, support groups for the loss of one or more of a multiple pregnancy. We also offer counseling to anyone who is expecting a baby with a terminal or devastating diagnosis. We hold a Walk To Remember every October and a Candlelighting ceremony every December. Our services arefree of charge to anyone who needs them.
Other aims: We also offer support groups for families who suffer miscarriage, heartbreaking choice, infant loss and pregnancy after loss.
Support offered: Support groups meet every month on the third Thursday in the evenings at our meeting house.
We are also available to meet with families on a one to one basis should there be a need.
We also are available to talk or text on the phone anytime.
Our active Facebook page, and private page for stillbirth families only connect people day or night to minimize the feeling of being alone.
Groups targeted: Our support group is open to mothers and fathers. We have a separate group for Grandparents/family and friends, and we also have a support group for fathers only.
Language: English, Spanish
Geographies reached: We greatly encourage local people so that they can attend the support groups, though we talk, email, text with anyone who needs us.
Location 1: United States 255 Lafayette Ave. Suffern NY 10901
Aims related to stillbirth: To improve the care of women and couples experiencing miscarriage, medical termination, stillbirth, newborn loss and infant loss.
To educate health professionals in best practice bereavement care to support women and couples who experience the loss of their babies.
To facilitate access to professional counselling services for bereaved parents following pregnancy loss, and during subsequent pregnancies.
To promote forums for bereaved parents to meet other bereaved parents, and to provide quality information around parental loss.
To provide information about community support services to practitioners and to bereaved parents and their families.
Other aims: To facilitate legacy pledges that support not for profit bereavement services.
Support offered: Information; signposting; counsellors; Provide stillbirth information/advice; support to bereaved parents; Support for healthcare professionals; Provide information/advice on stillbirth; support for employers; Provide professional post-stillbirth counselling for parents and families; Provide a space for bereaved parents and families to meet and support each other; Provide a space for bereaved parents and families to tell the stories of their stillborn babies
Groups targeted: Bereaved mothers, fathers, and other bereaved family members, healthcare professionals, people experiencing stillbirth/termination of pregnancy due to fetal abnormalities - 1st, 2nd and 3rd trimester losses
Language: English
Geographies reached: Melbourne, Australia.
Location 1: Australia Melbourne Victoria
The TEARS Foundation
Website: Www.thetearsfoundation.org
Email: admin@thetearsfoundation.org
Phone: +12535907373
Aims related to stillbirth: We compassionately assist bereaved families with the cost of funeral assistance for their precious child who has died.
Other aims: Ongoing emotional support in the way of support groups (in person and virtual) and one on one Peer Companions.
Support offered: Emotional support as well as financial support by way of helping with the funeral expenses.
Groups targeted: Mothers, fathers, siblings and grandparents
Language: English
Geographies reached:
Location 1: United States 11102 Sunrise Blvd East Suite 112 Puyallup WA 98374
Aims related to stillbirth: TEARS Kenya\\'s mission is to provide compassionate, culturally relevant programs to facilitate healing for families after the loss of a baby from stillbirth and other perinatal loss experiences.
We aim to offer support groups, healing retreats, and forums that address pregnancy after a stillbirth or any other perinatal loss.
Other aims: Educate parents on the need for healthy grieving and educate communities on ways of supporting grieving families.
Engage healthcare workers on the need for compassionate and respectful care after perinatal loss.
Offer compassionate leadership training for communities and healthcare providers
Make written appeals to relevant institutions to engage in compassionate and respectful care after a perinatal loss.
Support offered: Support Groups are carried out as closed groups running for 12 months. These gatherings end in a healing retreat. The support groups are facilitated by a certified grief educator and a perinatal loss counselor.
Helping parents keep memories and honoring significant dates.
Pregnancy After Loss is an opportunity for those who experience stillbirth to come to share on the subject - next pregnancy when they need to think about conception. This group is facilitated by a healthcare provider and perinatal loss counselor.
Groups targeted: Mothers
Fathers
Siblings
Grandparents
Language: English
Geographies reached: Kenya
Location 1: Kenya Sports Road Nairobi 25374-00100
Three Little Birds Pregnancy and Infant Loss Support
Aims related to stillbirth: Our mission is trifold - 1. We support the immediate and longterm needs of pregnancy and infant loss (miscarriage, stillbirth, neonatal loss, termination for medical reasons and palliative care). 2. We support medical professionals with our upcoming training program 3. to globally #shatterthestigma of pregnancy and infant loss through connecting with other loss non-profits, community sponsors and families across the world.
Other aims:
Support offered: Memory making; infant remembrance portrait; funeral/memorial service coordination and support; complimentary angel gown; financial and bereavement resources; one-to-one support; Provide information/advice on stillbirths to bereaved parents and on stillbirth parent support for healthcare professionals, professional post-stillbirth counselling for parents and families, informal post-stillbirth counselling for parents and families (e.g. peer support), a space for bereaved parents and families to meet and support each other through making memorial crafts or doing other activities that promote physical, emotional and spiritual health and wellness. Provide a space for bereaved parents and families to tell the stories of their stillborn babies
Groups targeted: Bereaved mothers, fathers, and other bereaved family members, healthcare professionals, anyone who needs it. We serve all families at NO COST within 50 miles of the Philadelphia/Southern New Jersey metro region (including Philadelphia, Camden and Atlantic City). We support all ethnic, religious and personal backgrounds with the same compassionate and personalized care and offer a nest of families who "get it".
Language: English
Geographies reached: Pennsylvania, Southern New Jersey Metro Area
Aims related to stillbirth: Provide education & support
Other aims: To provide education & support for all types of pregnancy loss
Support offered: Information signposting; comfort kits; remembrance wall; Provide information/advice on stillbirths to bereaved parents and on stillbirth parent support for healthcare professionals, a space for bereaved parents and families to meet and support each other, a space for bereaved parents and families to tell the stories of their stillborn babies
Groups targeted: Bereaved mothers, fathers, and other bereaved family members, healthcare professionals, and anyone who needs it
Language: English
Geographies reached: United States
Location 1: United States 3568 Edgemont St Edgewater Maryland 21037
Aims related to stillbirth: Pregnancy loss
Miscarriage
Stillbirth
Termination
Ectopic Pregnancy
Infertility and Secondary Infertility
Birth Trauma
Support during pregnancy
Other aims: TimeNorfolk provides wellbeing support to anyone in Norfolk and Waveney who experiences mental health challenges due to pregnancy loss at any stage, baby loss or pregnancy choices.
Support offered: Up to 16 sessions of free counselling support.
Groups targeted: Women and men
Women and their partners
Language: English, please enquire about additional language
Geographies reached: Norfolk & Waveney, East Anglia, UK
Location 1: United Kingdom TimeNorfolk Norwich 8 Chalk Hill House 19 Rosary Road Norwich UK NR1 1SZ
Aims related to stillbirth: We are available in a limited capacity to support families going through birth-related complications such as NICU stays.
Other aims: We provide education, healing retreats, and burial clothing for families experiencing stillbirth. We provide emotional support and can arrrange doula support for families experiencing loss, in a limited geographical region.
Support offered: We provide bereavement clothing for babies who pass away at any stage in pregnancy at no cost to hospitals, grief organizations, and directly to families experiencing loss. We mail care packages to loss families upon request (financial contributionsWe gratefully accepted). We also host retreats and events for loss families a few times a year.
Groups targeted:
Language: English
Geographies reached: Our bereavement clothing can be shipped anywhere in the United States. Our direct services are available in the St. Croix Valley region of Minnesota and Wisconsin.
Location 1: United States 227 Chestnut Street East Suite 2 Stillwater Minnesota 55082
Aims related to stillbirth: All of the services mentioned for stillbirth are available to families affected by any type of pregnancy, baby, or infant loss. In addition to the loss services and resources we provide, we also support local families through pregnancy after loss:
-1:1 and group support
-resource pack
-doula support and birth preparation session
-specialist antenatal classes
We also support local organisations with training.
Other aims: Towards Tomorrow Together provide a range of support and resources to families affected by pregnancy, baby or infant loss (including stillbirth), who live in Somerset and the South West of England. We support from the point the family discover their baby has died, or is likely to die, throughout their grief journey. This includes:
-birth planning session, doula support through induction, labour and birth
-memory boxes and keepsakes, cuddle cots, loan library
-online and in-person, 1:1 and group support
-occupational therapy, holistic therapies and 3 Step Rewind
-memorial service, family events
-crisis and bespoke support
Support offered: -birth planning session, doula support through induction, labour and birth
-memory boxes and keepsakes, cuddle cots, loan library
-online and in-person, 1:1 and group support
-occupational therapy, holistic therapies and 3 Step Rewind
-memorial service, family events
-crisis and bespoke support
Groups targeted:
Language: English
Geographies reached: Somerset, South West UK
Location 1: United Kingdom The Nurture Shed, Moor Road, Middlezoy Somerset TA70PQ
Location 2: United Kingdom Bridgwater Somerset TA6 3RR
Location 3: United Kingdom Taunton Somerset TA26BJ
Other aims: By 2022, we will: ✓ Save 580 babies’ lives ✓ Stop 1,100 babies needing neonatal care ✓ Reduce 8,300 expectant parents’ anxiety and prevent up to 800 from developing PND ✓ Support 7,500 concerned or upset parents ✓ Be the first place our families go to for information.
Support offered: Befriending service, newsletter, Facebook bereavement support group; signposting to resources, other organisations, resources; Provide information/advice on stillbirths to bereaved parents and on stillbirth parent support for healthcare professionals, informal post-stillbirth peer support for parents and families, a space for bereaved parents and families to meet and support each other thorough a memorial service held yearly, a space for bereaved parents and families to tell the stories of their stillborn babies
Groups targeted: Bereaved mothers, fathers, and other bereaved family members, healthcare professionals
Aims related to stillbirth: The core aim of Umzanyana Birth Services is to address the silence and stigma surrounding stillbirth by providing compassionate care and education to affected families. Through its workshops and support groups, the organization creates safe spaces for parents to share their stories, access resources, and connect with others who understand their grief. This is complemented by certified bereavement facilitation and the founder’s lived experience, ensuring culturally sensitive and empathetic support.
Other aims:
Support offered: Bereavement Facilitation
Certified guidance to help families process grief and navigate the emotional aftermath of stillbirth.
Support Groups
Safe spaces for bereaved parents to share their experiences, connect with others, and find solidarity.
Culturally Sensitive Support
Emphasis on African approaches to bereavement care, incorporating cultural traditions and practices into the healing process.
Advocacy and Awareness
Raising awareness about stillbirth as a public health issue and advocating for improved healthcare policies to prevent avoidable losses.
Memory-Making Activities
Encouraging families to create tangible memories of their baby, such as keepsakes or remembrance ceremonies, to honor their child.
Educational Workshops
Groups targeted:
Language: English, isizulu
Geographies reached:
Location 1: South Africa 74 sage drive Welbedacht west KwaZulu Natal 3092
Aims related to stillbirth: Research - developing novel and new approaches to investigate the causes of stillbirth, better support the parents, and easy to prevent it.
Bereavement: supporting parents through the delivery to postpartum, connecting them with community partners to further support after leaving the hospital.
Awareness & Policy: new aim we are developing to better advocate and implement legislation to protect this population, and working with the department of health to address the population health factor of stillbirth and care.
Other aims: Our goal is to improve women\\'s health and care across the lifespan of an individual.
Support offered: Maternal-Fetal Medicine specialists whose expertise lies in stillbirth and recurrent pregnancy loss. Can assist during pregnancy or pregnancy following a loss.
Bereavement support after the diagnosis of loss, social workers and grief counselors, pictures, molds, clothing, and blankets for baby. Free cremation, and discounts with partnered mortuaries for burial. Free autopsy.
Offers diverse research opportunities ranging from a biobank observational study to genetic studies of the entire family.
Groups targeted: Mothers - but we do offer research opportunities to the entire family if desired
Language: English, interpreter services available for over 220+ languages
Geographies reached: Utah, rural areas of Nevada, Idaho, Wyoming, and Montana
Location 1: United States 50 North Medical Drive Salt Lake City Ut 84132
Aims related to stillbirth: We counsel and accompany grieving parents and siblings of stillborn children in groups.
Four times a year we also offer a farewell ceremony for the little ones at the Hamburg-Öjendorf cemetery.
Other aims: Our association enables groups to get together and exchange ideas and also offers a wide variety of joint activities and workshops in and around Hamburg.
Support offered: farewell ceremony
Group meeting
Companion
Consultation
Burial
Groups targeted: Mothers
Fathers
Siblings
Parents
Grandparents
Aims related to stillbirth: Offer emotional & spiritual support to grieving parents.
Increase awareness & promote education on Pregnancy And Infant Loss (P.A.I.L
To work in partnership with healthcare professionals to ensure that bereaved parents and families receive the best possible care.
To promote improvements in practice and fund research to help reduce the number of babies dying from preventable causes.
Strengthen research and advocacy of P.A.I.L.
Other aims: We believe there is great hope for the future to prevent many pregnancy losses, stillbirths and neonatal deaths in Uganda and around Africa.
We envision that through the utilization of technology, education, grassroots efforts and partnerships, we can empower families and health professionals to identify and protect vulnerable babies.
Support offered: Perinatal bereavement training for health care professionals and care providers.
Peer to-peer grief coaching.
Professional grief & trauma therapy sessions.
Support group sessions for:
Early pregnancy loss (below 10 weeks)
Miscarriage.
Stillbirths.
Neonatal deaths and baby loss (Below one year)
Pregnancy After Loss.
Aims related to stillbirth: VFN has created a safe space for parents of babies who are no longer here with us. The VFN Pregnancy Loss Support Group is free to join for any parent living in Vienna (you don´t have to become a VFN member) and seeks to acknowledge those parents and create a space for them to share, grieve and connect with other parents who have a shared experience of living life after miscarriage, stillbirth or neonatal loss.
Other aims: Vienna Family Network (VFN) is a not-for-profit organization (Verein). It is run entirely by volunteers willing to invest their time and energy in an organization that supports them in their journey into parenthood, allows them to create long-lasting friendships and enables them to feel part of a community where they are trusted and valued. The help and support that VFN provides goes beyond simply our members. At the beginning of each year, VFN members select a charity for whom they will raise funds throughout the year.
Support offered: We offer a Facebook group where parents can share their stories. We also have two professional counsellors who volunteer to run a monthly self-help session.
Groups targeted: English-speaking parents living in Vienna (Austria)
Language: English
Geographies reached: Vienna, Austria
Location 1: Austria Ogugasse 5 Vienna Vienna 1220
Whetūrangitia
Website: https://wheturangitia.services.govt.nz/
Email: LifeEventsServicesTeam@dia.govt.nz
Phone: +6493390852
Aims related to stillbirth: To connect with parents and whānau in need of information and support following the death of a baby or child up to the age of 12 years.
Other aims: Information for family and whanau experiencing the death of a baby or child. Sending aroha to you
Support offered: Information about stillbirth and other pregnancy/baby loss; information about financial entitlements and support; Provide information/advice on stillbirths to bereaved parents and on stillbirth parent support for employers. Note: this service points them to professional service and/or peer support as required. Midwives and SAND org also hand Whetūrangitia information cards)
Groups targeted: Bereaved mothers, fathers, and other bereaved family members / Whanau, healthcare professionals, employers, anyone who needs it; Māori and Pasifika families.
Language: English
Geographies reached: National (New Zealand)
Location 1: New Zealand
Wisconsin Center for Stillbirth and Infant Death
Website: https://starlegacyfoundation.org/wicsid/
Email: wicsid@starlegacyfoundation.org
Phone: +19527157731
Aims related to stillbirth: Star Legacy Foundation created the Wisconsin Center for Stillbirth and Infant Death. This is a statewide program that provides a framework for early referral and intervention when a baby dies in Wisconsin. Eligible families are those who live in Wisconsin and experience the death of a baby through stillbirth, neonatal death, SUID/SIDS, or any other infant death. The Center is Wisconsin’s resource for information on strategies to reduce the risk for stillbirth and infant death. We provide comprehensive answers to frequently asked questions, as well as grief resources, funeral assistance and support for bereaved families.
Other aims: Suid/SIDs and Infant Death support for families
Support offered: The Wisconsin Center for Stillbirth and Infant Death will contact each family and offer the services of our Family Support Coordinators. These individuals are health professionals who have expertise in caring for families after the death of a baby. They can listen, provide information, ensure families have access to appropriate resources, and minimize barriers to quality bereavement care. Family Support Coordinators can continue to be a contact person for the entire family for the months to come.
Each family situation will be assessed to determine which resources could be helpful or are desired. Examples include information, birth planning, books/blogs/podcasts/websites, counseling/therapy, support groups, support line, bereavement photography, spiritual or cultural support, funeral
Groups targeted:
Language: English, Translator services available for phone calls. Resources available in Spanish, Hmong, Somali
