International Stillbirth Alliance

Claire Storey

Claire Storey

Director of Bereavement, Community and Parent Voice

Claire Storey has spent almost two decades working in maternity and newborn care as a parent advocate, commissioner and researcher following the loss of her first born baby Jacob in 2004. She has dedicated her time to highlighting the importance of the parental narrative during pregnancy, birth and the neonatal period, including after the death of a baby and to improving equity and quality of care whilst ensuring parents themselves are adequately supported at every stage.

Claire has been a co-applicant on a number of prevention, bereavement and perinatal mental health research projects and service development initiatives. She has organised conferences and workshops, delivered training to healthcare providers, and led bereavement and antenatal support groups for recently bereaved parents.

Claire has recently been appointed as Director of Bereavement, Community and Parent Voice with the International Stillbirth Alliance (ISA) and Co-Chair to the ISA Bereavement Working Group. She is also the Patient Public Involvement and Engagement (PPIE) lead and Board member of the Tommy’s Stillbirth Research Centre in the United Kingdom, Community and Parent Voice lead to the Gates funded Stillbirth Advocacy and Implementation Guide and Trustee at Mothers for Mothers, a charity providing perinatal mental health support in the South West of England.

Claire’s work seeks to raise the voice and participation of women and their families and to strengthen advocacy for healthy pregnancies, neonatal care, bereavement support, good mental health and wellbeing.