ISA Newsletter

ISA/ISPID Conference 2010
Sydney, Australia, October 8-10, 2010

New ISA Brochure

ISA World Circle of Loved and Remembered Babies



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Support services websites
  • Angel Babies - Forever Loved
    This is a site that includes several items of interest including articles for parents who are grieving. Includes a memorial page, keepsake ideas, poetry.

  • Angel Whispers.
    Angel Whispers offers a variety of services for coping with baby loss such as E-mail Support, Monthly Support Group Meeting, Subsequent Pregnancy Support Group Meeting, a Quarterly Newsletter, penpal opportunity, and a Resource Library among other things.

  • A Place to Remember
    This is a full site that offers lists of support groups by state (U.S), international organizations and web links, a bulletin board and memorial options, and one of the best literature and gift resources for pregnancy/infant loss.

  • Agast
    It is an all volunteer organization dedicated to helping grandparents through the trauma, stress and grief after the loss of a grandchild.  Agast offers a chat forum, newsletter, memorial options and more.

  • Änglaringen 
    This is a Swedish site. This site is an online discussion forum for mothers and fathers whose child has died. The participants range from parents who have experienced late miscarriages to parents whose older children have died. The site contains links to memory sites, stories, books etc.

  • Babyloss
    Information, support, forums, stories and dedications for women and their partners who have experienced the devastating loss of a baby.

  • Baby Remembered
    www.babiesremembered.org - Support books, information, sharing, advice, and networking for bereaved families and careproviders

  • Barn Lille
    This is a Danish site. This site online supports groups for parents who have had a child die from gestational age 16 to two years. Registration is necessary in order to enter the site.

  • Barnet som ikke ble
    This is a Norwegian site. This site is a resource site for parents who have experienced abortion, late miscarriage and stillbirth.

  • Bears for Bereaved Mommies.
    In addition to the valuable information and resources, find out about how to can participate in the bears for mommies program in many areas, as well as the "ribbon campaign".

  • Bears Of Hope Pregnancy & Infant Loss Support
    Our mission is to offer support and guidance for parents who have experienced the loss of their baby during pregnancy, birth or infancy. Through the donation of a bear of hope, parents are provided with the comfort of knowing they are not alone from the very beginning, and offered significant ongoing support to heal their broken hearts.
  • Bonnie Babes Foundation
    This is an Australian site. This site is a nonprofit organization in Australia providing counselling services and training.   Support and resources for families.

  • Born Angels
    This is a site for grieving parents who have had a baby die at any stage of their pregnancy; ectopic pregnancy, miscarriage, or stillbirth...and for their family and friends.

  • Born Still
    This is a Christian site, offers email support, poetry , links, and free greeting cards.

  • Born Too Soon
    This is a UK site especially for women who have lost a baby during pregnancy or birth at any time of their pregnancy. The site discusses in depth the emotional side of pregnancy loss and there are special pages for still birth, ending a pregnancy due to abnormalities, children and grief and a page for relatives/friends on helping someone with pregnancy loss. Also offers free remembrance certificates for anyone who contacts my site and pages for dedications.

  • Carrying To Term Pages
    This site is an online how-to guide for carrying a pregnancy to term after diagnosis of a condition fatal to the baby. The site includes birth plans for terminally ill babies, memorial ideas, funeral planning, and emotional support.

  • Center for Loss in Multiple Births (CLIMB)
    Support families who have had multiple babies and one or more die.  Offer newsletter and support.   Have resource links to Spanish, Russian, French and Chinese sites.

  • Childloss  
    This is a Christian based website offering email support, chat schedules and 24 hour support.  They also design, free of charge, bull web pages for those who have had a child die.  A listing is available of 24 hour support volunteers.  There is a poetry page.  Two parts to the site allow families to choose either pregnancy/infant loss or older child loss.

  • Children Are A Gift Foundation.
    Honors babies who have died, offers links, resources, chat groups and more. 

  • Elizabeth A. Pector, M.D.
    This has set up a page of poetry and prose focusing on multiple birth loss after the loss of one of her twins. From here you can also connect to her multiple birth loss resources page that is quite extensive.  Includes general infant loss sites as well.

  • Empty Cradle
    This is dedicated to honour all the babies that have left this world before we were ready for them to. Whether you are the mom, dad, grand-parent, aunt, uncle, sibling or friend, you are welcome to put up your FREE memorial for your little angel. Share your story, pictures, poems, or anything else you want to share about your baby.

  • Englesiden  
    This is a Norwegian site. This site is an online discussion forum for mothers and fathers whose child has died. The participants range from parents who have experienced late miscarriages to parents that have had older children die.

  • Fathers Grieving Infant Loss Blog
    This is a blog to fathers who have experienced a pregnancy loss or the death of an infant.
     
  • FEBE
    This is a Swedish site. This site is a network for parents show child has died. The network arranges regular local meetings and provides peer contacts for parents who need it. The site contains information about books, magazines, and more.

  • First Candle 
    First Candle provides information for parents and health professionals on reducing the risk of infant death, including SIDS and stillbirth. Grief resources and referrals are also available for all those affected by the death of a baby. Visit www.firstcandle.org  or call 1.800.221.7437. Crisis counsellors available 24/7.

  • Föräldrarföreningen Spädbarnsdöd
    This is a Swedish site. This site supports families who have experienced perinatal loss or the sudden death of a baby. The organisation supports education and research, and offers peer contacts and local support groups. The site contains much useful information and links.

  • Föräldraföreningen Små Änglar
    This is a Swedish site. This site is a parent organization that supports other parents who children have died in stillbirth, perinatal loss, or as toddlers. The site has a lot of useful information, and provides peer contacts and local meetings.

  • Foreningen
    This is a Norwegian site. This site “Vi som har et barn for lite” is an organization supporting all families who have had a child die under any circumstances. The organization provides peer contacts, local support groups and information to families. The web site contains information for parents, family and friends and includes many links to other organisations, books, research projects, and, and newspaper articles. The organization is membership based.

  • Föreningen Vi Som Förlorat Barn
    This is a Swedish site. This site is a parent driven organization supporting all families whose children have died no matter the circumstances. The organization provides peer contacts, local support groups, and information to families. The web site contains information for parents, family and friends and includes many links to other organizations, books, research projects, and, and newspaper articles. The organization is membership based.

  • Foreningen Plutselig Spedbarnsdød
    This is a Norwegian site. This site is a parent organisation supporting parents whose child has died due to stillbirth, prenatal death, and until two year old infants.

  • Forældreforeningen
    This is a Danish site. This VI HAR MISTET ET BARN is a parent driven organization supporting all families who have had a child die no matter the circumstances. The organization provides peer contacts, local support groups and information to families. The organization is membership based.

  • HAND (Helping After Neontal Death)  
    This is founded in 1981 to help parents, their families and their healthcare providers cope with the loss of a baby before, during, or after birth. It is a resource network of parents, professionals, and supportive volunteers that offers a variety of services throughout Northern California and the Central Valley.

  • H.A.N.D. (Houston's Aid in Neonatal Death).
    A parent run support group in the greater Houston area serving the needs of parents experiencing infant or pregnancy loss through miscarriage, stillbirth, or neonatal death anytime through early infancy. Writings, resources, links and information on support meetings in the Houstan area.

  • HAND of the Peninsula.
    This web site by a local chapter of HAND (Helping After Neonatal Death) offers information on their resources, their programs, their support groups. Includes "telephone crisis" support.

  • Hannah's Prayer
    Christian emphasis, including infertility or the loss of a child at any time from conception through early infancy. Info on their network of local care/support chapters through the US, "live chat" room, and a pen pal connection area. They also have a newsletter, Hannah To Hannah.

  • Haven of Hope and Healing, Inc.
    This is a nonprofit, organization committed to providing mental, emotional, spiritual, and educational support to those who have experienced the loss of a baby through miscarriage, stillbirth or infant death. We are a nondenominational organization that helps parents, their families and their healthcare providers cope with the loss of a baby before, during, or after birth.

  • H.E.A.R.T.S. (Helping Empty Arms Recover Through Sharing)
    This is a Baby Loss Support Program for anyone who has been touched by the loss of a baby during Pregnancy or shortly after Birth. One-to-One Support, Group Meetings, Resource Library, Monthly Newsletter, Website and a Pregnancy After Loss Group. Created in 1996 by two mothers who discovered a lack of support in their own community after the losses of their precious babies. Located in Sherwood Park, Alberta, Canada but open to all.

  • Heavenly Angels
    This helps bereaved parents all over the world by offering a safe Haven to share the loss of their angels. They believe in programs suitable for each different bereaved parent, activities that continue a healthy grieving process, and memorials like online Memorials along with actual Memorial Quilts.

  • Heavenly Angels In Need.
    A woman's personal ministry has led to a help site with all kinds of way for you to help. Of special note are her free patterns for knitting, crochet, sewing to make things like burial gowns, blankets, etc.

  • Heaven's Lullaby.
    At Heaven's Lullaby you can find information about different types of pregnancy and infant loss, and free memorial pages for your little one. Includes info on Ectopic Pregnancy, Miscarriage, Stillbirth, Abortion, Prematurity , SIDS and Anencephaly.

  • Hjärtebarnsföreningen
    This is a Swedish site. This site is an organisation for parents whose children suffer from a heart failure.

  • Honored Babies
    This is for those who have experienced miscarriage, stillbirth, neonatal death, and/or pregnancy termination. You'll find an online Memorial, Support Email Lists (separate lists for Mothers and Grandmothers), a comprehensive Resource Centre, and Keepsakes.

  • Infants Remembered in Silence (IRIS)
    IRIS is a 501(c) 3 non-profit organization that is dedicated to offering support, education and resources to parents, families, friends and professionals on the death of a child in early pregnancy (miscarriage, ectopic pregnancy, molar pregnancy, etc) or from stillbirth, premature birth, neo-natal death, birth defects, sudden infant death syndrome (SIDS), illness, accidents, and all other types of infant & early childhood death.

  • iVillage
    This is an American site. This site offers discussion boards as well as weekly live chats for people who have suffered miscarriage, stillbirth, etc. The site includes sites for abortion, miscarriage, and stillbirth. It also has discussion boards and information on almost every pregnancy and parenting issue one could imagine.
     
  • Iris Remembers ( www.irisRemembers.com )

    IRIS is a 501(c) 3 non-profit organization that is dedicated to offering support, education and resources to parents, families, friends and professionals on the death of a child in early pregnancy (miscarriage, ectopic pregnancy, molar pregnancy, etc) or from stillbirth, premature birth, neo-natal death, birth defects, sudden infant death syndrome (SIDS), illness, accidents, and all other types of infant & early childhood death.

  • Krybbedødforeningen
    This is a Norwegian site. This site is a parent organization that supports other parents show children have died suddenly – including stillbirth and SIDS. The organization offers local support groups and local networks for parents. The web site includes information about sudden and unexpected death of a child, information about local groups, and links to useful books, articles and other web sites.

  • Landsforeningen til støtte ved spædbarnsdød
    This is a Danish site. This is a parent driven organization supporting all families who have had a child die no matter the circumstances. The organization provides peer contacts, local support groups and information to families. The web site contains information for parents, family and friends and includes many links to other organizations, books, research projects, and, and newspaper articles. The organization is membership based.

  • Little Ones Lost
    This includes information for Mormon families on miscarriage, stillbirth, ectopic pregnancy and infertility. Includes chat and guestbook as well as links section.

  • Loss in a Multiple Pregnancy: Information and Support
    This is the homepage of Lynne Schulz, Coordinator of the Murraylands Lutheran Stillborn Infant Support Service in Murray Bridge, South Australia. You will find a dedication page for multiples, sharing pages, poetry, research papers, and links – with a focus on twin loss.

  • M.E.N.D.
    This offers support with a Christian emphasis for those families whose baby has died, or a subsequent pregnancy after a loss. Links to Bereaved Family Web Pages, other resources, and info about their newsletter and program.

  • Mindet
    This is a Danish site. This is a site where parents (and other people who have had a loved one die) can create memories of the deceased. The site has an impressive list of different support groups, relevant literature, and a web shop.

  • M.I.S.S. (Mothers In Support and Sympathy)
    This is a grass roots, international organization dedicated to supporting parents one to one after the death of an infant or young child. Referrals to peer contacts and ancillary organizations offered. List of Do's and Don'ts to help bereaved parents, and a listing of groups and resources in Arizona and other states.  Leader in the stillbirth certificate project for all US states.

  • Odense University Hospital  
    This is a Danish site. This has made a list of recommendations for parents whose child has died.

  • Our Angel Baby
    Angel Baby  is a place where you can honor the memory of you own angel baby and  help to bring about peace in your life.

  • Perinatal Bereavement Services Ontario
    This is a Canadian site. This site provides a variety of unique support services tailored specifically to meet the special needs of bereaved families who have experienced perinatal loss. The organization has also grown to include developing and implementing educational training seminars for health care professionals, caregivers, clergy and funeral directors on how to best support these families.

  • Perinatal Loss--Grief Watch
    This is an American site. The Grief Watch site was created to provide you with bereavement resources, memorial products and links that can help you through your personal loss. As part of its mission to the bereaved, Grief Watch and its companion program, Perinatal Loss, publish books, videotapes, audiotapes and other helpful resources aimed at persons who have suffered loss.

  • Pregnancy and Infant Loss Network
    This is an American site. This is an an extension of the SIDS Network, Inc. The site has a home page which includes guest book, information, and info on joining a Pregnancy and Infant Loss discussion group and a SIDS discussion group, and personal stories of pregnancy loss at any stage.

  • Prematurforeningen
    This is a Norwegian site. This site is an organization that supports parents whose babies were born prematurely. The organization arranges seminars and local meetings. The web site provides information about premature children, a discussion forum for parents, and links to books, articles, seminars etc. The organization is membership based.

  • Rainbow Maker
    This is an American site. This is a "Healing Center" founded by the parents after the loss of their firstborn son. The site includes helpful articles, book reviews, and much more.

  • Rainbows Down Under
    This is an Australian site.  (A Trisomy 18 & 13 Resource) is a site from Australia which contains information on Trisomy 18, Trisomy 13 and other related chromosomal disorders.

  • Små Stjerner
    This is a Danish site.Online membership based support site for parents whose child has died.

  • Teddy Love Club
    Teddy Love Club Pregnancy and Infant Loss Support is an Australian wide support program for bereaved parents who suffer the loss of their baby or babies to miscarriage, stillbirth, termination of pregnancy for foetal abnormality and neonatal death. TLC donates traditional Teddy Bears to bereaved parents, in the hope the bear may help to ease the pain of leaving the hospital with such aching empty arms.

  • Vimil
    This is a Swedish site. This site is a network for people who have had a loved one die. Vimil arranges meetings and seminars, and online support groups. One of the online groups supports people who have had a child die.

  • Walk With Jude
    Walk With Jude Inc is a place for anyone who has been touched by the tragedy of a pregnancy loss.  We are here to offer experience, strength and hope. The loss of a pregnancy at any time can have lasting effects on all those involved, particularly the mother. The feeling of loss, guilt, shame and anger can seem overwhelming at first. You are not alone and thousands of women understand where you are today. We are not experts, but we understand.
  • This is an American site. This is for parents who choose to continue a pregnancy after learning their unborn baby will die before or shortly after birth and for parents who learn their newborn will die soon. Site includes parent letters, resources, and sample birth plans.


  • This is an American site. This is an online "Yahoo groups" support group for anyone who has had an ‘angel’ die due to SIDS/OID, miscarriage, eptopic pregnancy, stillbirth, or early child death and is looking to give and receive support.


  • This is an American site. This is a large site which includes many links, information on stillbirth, an on-line newsletter and educational resources. The site contains information for parents, extended family and friends, and professionals.